jo venable - 12/22/00 22:48:15
My Email:jvenable1@msn.com
Comments:
ANA, I AM SO PROUD OF YOU AND YOUR ACHIEVMENTS. GRANDPAW KEEPS ME INFORMED.
AUNTIE JO
Debbie Hagan - 12/21/00 15:34:44
My Email:ctd_be@yahoo.com
Comments:
I have always been interested in Childrens Illness. I have never experienced what you went through but your information was very interesting. God bless and good luck for the future. You have a beautiful and blessed child.
Debbie Hagan - 12/21/00 15:32:28
My Email:ctd_
Comments:
Petah Hatcher - 12/18/00 09:52:39
My Email:hatricks@optusnet.com.au
Comments:
Ana you are absolutely adorable. Good luck for the future. You are lucky to have such a caring Mommy and Daddy.
Petah Hatcher - 12/18/00 09:47:38
My Email:hatricks@optusnet.com.au
Comments:
Ana you are absolutely adorable. God luck for the future. You are lucky to have such a caring Mommy and Daddy.
Katie Challans - 12/13/00 16:35:32
My Email:katt_47@hotmail.com
Comments:
i am doing a report on school for this disease--Ana seems like a very strong girl andi wish her the best!
Diana - 11/30/00 22:26:40
My Email:dianners@hotmail.com
Comments:
I wish you nothing but the best for you Ana! Keep your chin up! :)
Brandon Clowers - 11/27/00 04:22:44
My Email:clowers76@hotmail.com
Comments:
Hello! You have a great page. I was doing research for school and came across your page. It was very helpful. Best of luck to you and your beautiful daughter. Thanks!
Brandon Clowers
Tracy Bowermaster - 11/23/00 14:56:47
My Email:rtbowwow@msn.com
Comments:
I enjoyed your website. What an amazing story and little girl. She is precious. Thank you for sharing your story.
Robby, Tracy, Maegan (SB), and Kaitlyn
Theresa Orr - 11/22/00 18:38:50
My URL:http://www.ma.psu.edu/~tao127
My Email:resayellow@hotmail.com
Comments:
I am glad you have your page up. I am a physical therapy major and am just finishing a paper on Spina Bifida. I hope all is going well with Ana! I want to work specifically with the many people living with Spina Bifida. Thankyou for your page!
Karl and Lars - 11/10/00 21:15:44
My Email:Kapt.Blaubaer@t-online.de
Comments:
Hallo,
I and my Son Lars, Born at 20th March in 1999
with Spina bifida and HC, wish you and all the American Peoples with Spina and HC a verry, verry nice Christmas and a Happy and Lucky New Year.
Sorry, my English is verry small...
Bye Friends, and many Greetings from Germany.
Melba Palys - 11/09/00 20:34:17
My Email:palys @hiwaay.net
Comments:
Your story is a reminder of our own. We also have a child with Spina Bifida. His name is Matthew and he will celebrate his eighteenth birthday in February. There has never been one day that I did not thank God for sending him to us. These children are
truly special.
Holly Anglen - 11/09/00 17:48:58
My Email:hanglen@hillandknowlton.com
Comments:
Karen,
This site is so wonderful. I hope to keep in better touch with you now. My home phone number is 835-0246. I live at BrandyChase, so maybe some weekend we can get together for lunch.
Holly
Rick - 11/09/00 07:18:10
My Email:richards_mail777@yahoo.com
Comments:
I want to thank you so much for putting this on the internet. I'm in the process of learning what spina bifida actually is and this has been a great help. again thank you. Rick
Rick - 11/09/00 07:15:43
My Email:richards_mail777@yahoo.com
Comments:
I want to thank you so much for putting this on the internet. I'm in the process of learning what spina bifida actually is and this has been a great help. again thank you. Rick
Christian Garcia - 11/03/00 19:33:01
My Email:garcia_g94@yahoo.com,
Comments:
Hi Karen...I think your story is absolutely wonderful!! Believe it or not we just happen to see the story on TV..Kenny and I were in awe...it looks like Ana is doing wonderful, she is a beautiful little angel. I will check often for new pictures..please
mail if you have time.
Christian Garcia
Shaw Lamb - 10/27/00 04:40:02
My URL:http://www.angelfire.com/nv/lambfamilyhomepg/jamie.html
My Email:JLambsr@aol.com
Comments:
Al, you have done a remarkable job on this website. I want to know which one of you is the photographer in the family...outstanding photos of Ana. She, the whole family, you all have come so far. I'm thrilled to see all the reunion photos, it's like lo
king at *hope*, thanks for posting them on the site. Ana's so big now, growing like a weed, it's happening too fast!
Trenna M Smith - 10/21/00 21:53:32
My URL:http://expage.com/trenna21
My Email:trenna55@mailcity.com
Comments:
Hi I am a 20 years old.And i also was born with spinbifida.i thank that you web page is cool.
Trenna
Stefanie - 10/12/00 04:03:32
My Email:stefanie_barber@hotmail.com
Comments:
Hi Karen,
My name is Stefanie and I am 16yrs with Spina Bifida. Ana is an angel!!
Great Website
Stefanie Barber
brandon williams - 10/07/00 16:32:25
My Email:bdub75@hotmail.com
Comments:
i am a student in north carolina. i am in a child development class in school. we are in the chapter of birth defects and we had to do a project on a birth defect of our choice. i chose spina bifida. after i had done all of my research, complied all o
my information, i typed my paper. after i typed my paper, i looked online for some pictures of children with spina bifida to better understand this condition. ana's page was one of the first pages that i came across. and i have to say, i admire you bo
h as parents. you have a wonderful and unique bundle of joy and love. after looking at all of the pictures of little ana when she was first born, and then looking at all of the pictures when she turned 2, i have to say that you did a wonderful job of ra
sing and loving your child. i want to say thank you for posting her story online so that people like me can better understand what spina bifida is more about. once again i like would like to appluad you on your great achievement on raising ana up to be
very cute little girl.
with much respect to you,
brandon williams
henderson, north carolina
p.s. please feel free to email me at anytime.
kelly jones - 10/06/00 00:09:37
My Email:kjones91@bellsouth.net
Comments:
Lynn - 10/05/00 03:52:08
My URL:http://kimber.cjscreations.com/
My Email:kimber@cjscreations.com
Comments:
Your daughter is a beautiful little girl. I am very happy to se that she is doing so well. She is an inspiration for all those parents out there with doubts about raising a child with Spina Bifida. Keep smiling Ana you are wonderful.
Our web page is being updated and should be up by the end of Oct. Take a lot when you get a chance. My little kimber is 3 with SB-L2
dena kirby - 09/26/00 20:12:01
My Email:denakirby@hotmail.com
Comments:
our daughters are the same age and you and i found out at the same time and when i found out that my daughter (who's name is emily)has spina bifida i asked my doctor if there was a type of fetal surgery and he said no i saw a program on the fetal surgery
f i had known about the surgery i would have been at that reunion also but no turning back now its just upsetting. is ana using a walker and if so when did she start using hers
Hope - 09/23/00 15:07:07
My Email:Vanida@webtv.net
Comments:
What a beautiful smile, Ana! I'm so happy your
Grandpa sent your site to me. Happy 2nd birthday
today! You're a very special little angel. Love
and prayers, Hope
Renette Black - 09/22/00 23:38:07
My Email:mlbr@gate.net
Comments:
Enjoyed your site and will visit again. Al, your daughter is beautiful. The pictures are great. There is one that doesn't seem to fit in-the one of the guy with long hair. Only kidding. I hope that Ana brings you and your wife joy. I have already said a p
ayer for your health and will continue to remember you in my prayers.
Lisa Guidry - 09/21/00 15:17:12
My Email:Lisa@Ritterlumber.com
Comments:
My daughter Shaun was born with spina bifida,in Nederland Texas, I had no idea she was going to be born this way, it was a total suprise to her father and me. I didn't even know what spina bifida was. She is 11 years old now and doing wonderful, we go to
alveston Texas every 6 months for check ups. Ana is a beautiful little girl. I hope she is doing ok. I have really enjoyed reading all about Ana. Take care and God Bless.
Lisa Guidry
Port Neches, Texas
Lisa Guidry - 09/21/00 15:11:12
Comments:
jodi - 09/19/00 12:12:18
My Email:Johnty@hotbot.com
Comments:
I am in the process of finding information on Spina Bifida for an assignment. I actually stumbled accross your site and found it to be very interesting. Your Daughter Ana is beautiful!
I am from Perth, Australia. and am trying to find some Australian sites about Spina Bifida, no luck yet! Anyway thankyou for for the privelge of hearing about your lovely daughter Ana.
Jodi
JoAnn - 09/15/00 03:44:27
My URL:/ellisj00/reliv.html
My Email:ellisj00@yahoo.com
Comments:
It is a very touching story. May God Bless You. Thank you for letting me visit. JoAnn
Rebecca - 08/22/00 06:23:23
My URL:http://www.homestead.com/hannahsheaven/hannahsheaven.html
My Email:alia4210@yahoo.com
Comments:
Ana is just charming. I have visited your site many times. I recently revamped my daughter's web page. I added your page to a sb web friends links page. I hope you don't mind. If there is a problem, let me know and I'll remove the link. If you like
ur page, please add it to your links list. Again, Ana is delightful. She is the same age as my daughter, and that drama queen photo could have been taken in our home. Thanks for having such and informative site.
Julie Quick - 07/10/00 03:27:05
My Email:quanta@kcinter.net
Comments:
Amie McCoy - 06/28/00 05:29:57
My Email:amers@bellsouth.net
Comments:
my daughter was just diagonosed with Hydrocephalus 2 weeks ago & had a shunt put in. I am doing some research about it and came along your site. If you have any nfo I sure could use some, she is turning 2 on July 4th and doing very well. Your daughter i
such a miracle, Good luck to you & your family & thanks!!!
John Loughrey - 06/24/00 22:52:42
My Email:Johnleeloughrey@cs.com
Comments:
My Wife and I are raising two children with Spina Bifida, and I really enjoy the joys of your site.
Rachel, Aaron, Leah & Lucy - 06/23/00 16:02:45
My URL:http://www.geocities.com/ra_ron/
My Email:ra-ron@mindspring.com
Comments:
Hi you guys,
What a beautiful daughter you have. I love visiting your web page. I remember all to well the first time I found this page and the amazing turn of events our lives have taken since that time. Thanks for being such an awesome resource to everyone search
ng for info on Spina Bifida and fetal surgery for SB.
Love-
The Coleman Family(fetal surgery for SB #82)
Kirsten Faßbender - 06/22/00 05:55:40
My Email:kirsten1612@hotmail.com
Comments:
Hello!
I like your side very much. There are so beautyfull pictures about Ana. I have a son
seven years old with spinabifida. I´m very happy
that I found the side www.spinabifida.net.
In germany gives not a side like this.
I´m sorry for my bad english.
Happy greetings from cologne in germany.
Kirsten
Deb Elston - 06/16/00 10:55:48
My URL:http://www.Homestead.com/elston/indexhome.html
My Email:elston@free.net.nz
Comments:
'Ana' is one gorgeous little girl!!! I just love your photo's - they show so much detail. I will miss your messages on the list if you do not return, but it was really nice getting to know you. Thanks for visiting Tyler's web page!!! He is visiting the
U.S. with his grandparents in a few weeks time, he is really excited. Keep up the good work with your fantastic site.
Debs from New Zealand
Emily Gonzalez-Abreu - 06/13/00 19:27:03
My URL:http://members.aol.com/emilyandmanny
Comments:
Al, Karen & Ana:
Thank you for welcoming us from the very beginning and for all the words of encouragement that you gave us when Angeline Marie (Vandy #88) was diagnosed with spina bifida at 17 weeks. You are a very special and giving family. I can't wait for Angeline and
Ana to meet each other. May God continue to bless you!!!
Karen Rotherham - 06/02/00 13:31:56
My URL:http://www.geocities.com/dillon_rotherham
My Email:Cannonzie@aol.com
Comments:
Karen and Al,
I was reading through your guestbook and realized when I signed it in July 1999, that was the day I learned that I was having a child with sb. Your web page is the first one I ran into and you are the first ones I talked to as well about the fetal surger
. You have been very upbeat and positive about not only the FS but about spina bifida and have given me alot of encouragement!! Thank you for sharing Ana, she is so beautiful and you are a wonderful family!!! God bless you always.
Kerrie - 05/02/00 06:11:52
My Email:TRIPKERRIE@worldnet.att.net
Comments:
I am glad that the fetal surgery went well for you. My son Samuel was diagnosed at 22 weeks with Cogenital Adenmatoid Malformation of the Lung and by 24 weeks had developed hydrops. Our only hope for him was to have fetal surgery. We went to Children's
Hospital in Phil. PA to have the surgery. The doctors were able to remove the mass from his lung but his heart failed during the surgery and they couldn't get it back. We lost our son Samuel at 24 weeks. We did everything we could for him and we miss h
m so much. The drs there have done the CCAM surgery 19 times---10healthy babies and 9 losses. The drs and nurses in Phil. were wonderful
I am glad that your family is doing well.
Kerrie
collette_brooks - 04/30/00 22:47:27
My Email:collette_brooks@hotmail.com
Comments:
I'm a physical therapy assistant student in North Carolina and I'm doing my research paper on Spina Bifida. I'd like to thank you for taking the time to make this page.....it has been a tremendous help to me, and I'm sure thousands of others as well!! You
have a very beautiful little girl!!
Sherri Mudd - 04/21/00 23:58:55
My Email:marionbethm@yahoo.com
Comments:
Was just looking at your site, as a nurse and someone who is strongly pro-life, your story moved me. The best of everything to you and Ana. May God Bless You.
KW - 04/19/00 21:14:58
Comments:
I truly love children and looking at their pictures. She's beautiful and a blessing. Praise God and thanks for sharing!
Amber - 04/19/00 01:22:48
My URL:http://www.geocities.com/amby715
My Email:Amby876@hotmail.com
Comments:
Your page is very educational and interesting...your daughter is beautiful! i am 20 and was born with spina bifida...my mom and i have been in and out of hospitals and doctors offices all of my life and i don't expect that to end any time soon....my praye
s and thoughts are with all of you!
God Bless!
Amber
anne - 04/13/00 00:54:17
Comments:
hi, i just wanted to say that Ana is one of the cutest kids I have ever seen before! I looked through each and every picture and she is just adorable!! you have really been blessed. :)
a. steiner
Kim Simmonds - 04/11/00 20:19:28
My Email:skipswife@yahoo.com
Comments:
What a beautiful little angel! Recently an acquaintance who was 4 months pregnant and her husband decided to aborted their baby who was diagnosed with Spina Bifida at the direction of her Dr. I was amazed that someone would give up a child so easily wit
out researching this disease at length. That is how I came upon your beautiful web site. (I wanted to know more about it) What a shame that they gave up when so much can be done. Your beautiful little Ana is proof of that.
stacey perriman - 04/03/00 02:34:00
My URL:http://www.iland.net/~perriman
My Email:staceyperriman@hotmail.com
Comments:
I am doing a presentation at my college about the surgery performed on ana, your site was very helpful, thank you. Stacey
Suzanne Souders - 04/03/00 00:51:47
My Email:momagoose@snap.com
Comments:
Your site is a real joy. You have been blessed with an Angel. My nephew and his wife have learned that their little baby girl has spina bifida (L-4) and will be having fetal surgery at Vanderbilt on April 3rd. Please remember them in your prayers.<
r>
Shatab - 03/31/00 03:20:14
Comments:
The name is not real it is our names combided! Your website is very pretty. You are a pretty little girl. Bye Bye :O)
Julius - 03/28/00 20:22:08
My Email:Julius_jag@hotmail.com
Comments:
I'm a 34 year old father to a three year old son with spina bifida and hydrocephalus. Alex had an enormous amount of fluid in his ventricles at birth. This causes a very slow development in him. Allthough he is severely handicapped, we love him very much.
He's the most cheerful little boy you have ever seen.
It is wonderful to see how modern medicin can really make a difference as it has done for Ana.
If only.......
Brenda Corwin - 03/27/00 15:21:35
My Email:jbqcorwin@stans.net
Comments:
Great job on your website! I wish that I was more computer literate and could create one for Quinn (FS#49)
Brenda
Luba Farmiga - 03/27/00 05:33:44
My Email:mlfarmiga@blast.net
Comments:
Beautiful pictures. I am on the Sb Parents-one
list. I remember reading e-mails about the surgery. She is a darling little girl. My Laryssa who was born with SB is now 9 yrs. old.
I have 7 children, but the older four are out of
the nest. You did a great job on your web site.
Luba
Amy Trusty #80 - 03/16/00 15:52:00
My Email:Ctrusty@aol.com
Comments:
I really enjoyed the pictures. Hope there's a 2nd annual reunion this year.
Jeff Baker - 03/11/00 03:54:30
My Email:jbaker2484@aol.com
Comments:
This page is great. I'm sorry I haven't visited it earlier. See you in class big Al!
berta leigh - 03/07/00 19:43:54
My Email:nike1307@hotmail.com
Comments:
your story was really good
Susan Stockell - 03/06/00 23:39:20
My Email:susan.stockell@mcmail.vanderbilt.edu
Comments:
Al and Karen, I just love hearing how Ana is progressing! The FS4SB message about her starting to crawl has just THRILLED me! Thank you for an uplifting message after a tiring and trying couple of weeks.
Doug Eckstein - 03/05/00 01:29:16
My URL:http://www.angelfire.com/oh/dofsix/
My Email:dofsix@wcoil.com
Comments:
Your little girl looks beautiful!!! Wishing you the best and hope everything continues to progress forward.
God Bless,
Doug, Sarah, Adam, Kenneth, Steven, Nathaniel, Laura (SB), Brandon
Marrianne Fretwell - 03/03/00 21:24:34
My Email:mfretwell@start.com.au
Comments:
Hi from Australia. You are very lucky to have such a lovely little girl.
Our first child Katherine was born with SB as 36 weeks, but it was never known until she was born, I had a couple of scans and SB was never detected. Katherine brightened our lives for two days and then God decided she was too beautiful for this earth so
he took her to heaven. We now have twins.
My heart reaches out to any parent who child has SB and lives.
Dale Schoonover - 03/03/00 03:52:32
My Email:schoony71@hotmail
Comments:
HI.My daughter is 6yrs.old and has SB.Do not let her ever quit trying.MY Megan was 18 months when she first crawled.At first the doctors said she would not walk but with her hard work and determnation and some help us.She now walks with AFOs.GOOD LUCK Dal
Schoonover
Sandra Dillinger and Kendra Dillinger - 02/28/00 04:05:08
My Email:sassie0206
Comments:
You are in my thoughts and heart.
Sandra and Kendra
Dillinger
Kim Roman - 02/26/00 20:18:51
My Email:KSRoman@aol.com
Comments:
What a wonderful story and what a wonderful blessing.
Jennifer Morse - 02/26/00 10:01:26
My Email:jmbm63@ozemail.com.au
Comments:
We really enjoyed reading your page. We have a son with Spina bifida.He is now 13 years old. We hope that you too have a wonderful life with your "special" child as our family does with ours. All the best, Jennifer. (26.2.2000)
Jeni Forbes - 02/25/00 17:56:21
My URL:http://www.assure.net/~forbes
My Email:forbes@assure.net
Comments:
Wonderful!!!I was sent an email regarding Dr. Bruners youngest patient, and I cried, not of sadness, but of joy.
This is the link to one of the most incredible pictures I have ever seen.
http://www.independent.ie/1999/302/d20a.shtml
Luis & Yvonne Manjarres - 02/21/00 20:47:23
My Email:LYLA7@WEBTV.NET
Comments:
JUST SAYING HI AGAIN #42 SURGERY LuisAnthony MANJARRES.
Donica Breitenbucher - 02/18/00 18:22:39
My Email:herbshoppe@gorge.net
Comments:
I was so touched by Samuel Armas' story and then I found this link to your daughters story. I have a Samuel of my own born September 17 1999. May you and Ana be blessed always.
Natalie Dominguez - 02/16/00 20:24:18
My Email:NDominguez
Comments:
Shaw Lamb - 02/13/00 06:36:20
My URL:http://www.angelfire.com/nv/lambfamilyhomepg/jamie.html
My Email:JLambsr@aol.com
Comments:
I cannot believe how much Ana has grown! Has it really been that long? You guys look like such a great family, I really wish we would have had more time when we were there, to meet up with each other. I love the "hair-do" photo, it's a definite keeper.
:-)
Sharon Hancock - 02/09/00 23:23:10
My Email:sunni1@aol.com
Comments:
I just want to say God Bless You all. I hope you
have long happy and healthy lives together. I
found your page after seeing the picture of baby
Samuel during his surgery. You have a beautiful
little miracle!
amyevans pickering - 02/09/00 01:30:17
My Email:amyevansgaga@hotmail.com
Comments:
the three of you have truly been an inspiration to us all! the courage, power, and love that you all share models what a "family" is all about! i wish you all the best...especially the angel(Ana):) and may god bless your family.....
peace, amy evans pickering
Dr. Melvin James - 02/08/00 19:43:59
My Email:DrMWJames@aol.com
Comments:
Dear Ana:
You are a very cute and pretty young lady. I have your dad in my class and he is always talking about you, he is very proud of you:). He is a good student and well behaved LOL. Take care and give you mom my regards.
Bye,
Dr. James
sandy - 02/07/00 15:50:16
My URL:http://pages.preferred.com/~7ofus/html
My Email:7ofus@preferred.com
Comments:
What a story. It is such a testimony to God what
wonders He has allowed in this medical research. I
came across your page while I was putting together
my own "prolife" pages. I hope that you all
continue to thrive. She's a beautiful ch
Courtney - 02/04/00 00:30:00
My Email:dancegirl81@yahoo.com
Comments:
very touching!
Darren Osgood - 02/03/00 17:30:00
My Email:osgood@gte.net
Comments:
Hi Al & Karen. Anna looks soo cute! She has very pretty eyes. Becky and I just love that picture of her "mischevious" look. Al you've done a good job on the homepage.
Michael Krizmanich - 02/01/00 15:28:45
My Email:gratemk@mindspring.com
Comments:
love the pictures.
Anita Nestor - 01/26/00 18:33:21
My Email:anestor01@aol.com
Comments:
My 7 week old grandson has spina bifida.
Lisa Plemons - 01/25/00 20:31:26
My Email:Lisa_Plemons@mart.rbec.tenet.edu
Comments:
I am a 5th grade teacher. I was sent the picture of another one of Dr. Bruner's patients, baby Samuel. My class has been discusssing this topic, and enjoying your site. Thanks for sharing it with us.
Ilana Blitzstein - 01/23/00 19:50:04
My Email:IlanaCB@aol.com
Comments:
Sandy Mercer - 01/19/00 03:54:03
My Email:okeefolkie@mindspring.com
Comments:
Ana is beautiful! I love your music, and hope to meet Ana some day. I have a young (28 now) cousin with SB, who is quite the princess still, and ornery as you can get!! She's the star of the family, needless to say.
love ya'll-
SandyM
Michelle Hechler - 01/18/00 21:14:02
My Email:MHechler@MaitlandPIs.com
Comments:
I have a four-year old son with Spina Bifida. I have been there and done that. It is rough, but worth it. My son is a very happy and sweet child. He has had 11 surgeries, and is going to get his second wheelchair this year. Keep your head held high,
emember as they say, it is going to get better. If it wasn't for my family and friends I surely could not have done it. You see, I was 18 when I had Douglas. It is very rare for someone my age to have a child with this kind of disability. You just tak
it day by day, I guess. I just wanted to let you know that I enjoyed your web page and it reminds me how lucky I am to have my son. Thank you! Michelle Hechler
Nat Baldwin - 01/13/00 18:38:26
My Email:hyflyer2@webtv.net
Comments:
Hi All...I enjoyed seeing the wonderful pictures
of Little Ana and I will be looking forwards seeing Ana and all again soon...Nat
Pam - 01/05/00 17:05:11
My Email:MomNWifey@aol.com
Comments:
Your page is wonderful! As a mom of 2 children with spina bifida (yes, biologically mine), it brings me great pleasure to see webpages such as this, to bring about awareness of spina bifida! I wish lil Ana and your family the best! May God bless you!
Debbie Hankey - 12/16/99 12:03:32
My Email:hankey@dbis.ns.ca
Comments:
This page has been great. We recently were told are unborn child has SB we are pretty scared at this time.
ELIZABETH HERNANDEZ - 12/03/99 02:03:53
My Email:KIKIH@PRODIGY.NET
Comments:
YOU HAVE A BEAUTIFUL LITTLE GIRL GOD BLESS YOU.
YOUR PICTURES ARE REALLY GREAT.
Mary - 11/28/99 14:21:38
Comments:
I think what you did for your baby is great. Your daughter is beautiful! I consulted with Dr. Bruner back in August of 97 because I was pregnant with a girl with sb and severe hydrocephalus. We were just too scared and devestated to go through with the
urgery and pregnancy. We elected the worse of 2 evils and ended the pregnancy. We will never know what she could have accomplished. You will. Even though I have gone on to have a healthy girl, I always think of my other little girl. I wish Ana a happ
life.
Ariel - 11/16/99 18:54:30
Comments:
How brave of Ana's parents to go through with this!!!! God obviously knows you are wonderful and smart people!!
Joyce Garcia - 11/15/99 01:54:36
My URL:http://www.nicholasfetalsurgery.com
My Email:joyceg3@home.com
Comments:
Al, Karen & Ana,
We really enjoyed reading about your experience. You have a unique way of telling your story. Great site and great pictures too! Ana is very fortunate to have special parents like you. So sweet! So loving!
trista flynn - 11/14/99 03:18:49
My Email:trista_ouch@hotmail.com
Comments:
Hi my name is trista and i'm 15 year old. i have spina bifida and have had many surgeries my self. i'm glad that your daughter is doing well and i hope she continues to. i would like to know more about how you deal wtih spina bifida so that i can know how
sincerely trista anne flynn age 15
Angelheart - 11/09/99 09:27:38
My Email:angel80bellsouth.net
Comments:
I just viewed Ana's site and I think she is adorable, good luck to you and may God bless you.
Stacy Sheffield - 11/09/99 06:32:51
My URL:http://hometown.aol.com/spacyfield/myhomepage/index.html
My Email:SpacyField@aol.com
Comments:
Terrie & Don - 11/08/99 03:27:03
My URL:http://hometown.aol.com/tent01812/myhomepage.index.html
My Email:Tent01812@aol.com
Comments:
My aol and computer finally able to go on www again. Love the new pictures. The site looks great since I last saw it. Youre lil angel sure is getting big. I never realized how quick they really grow up till our Justin came into our lives. Just wait till t
e terrible twos come - feel free to call me when the time comes and your at wits end. Been there done that - still am....
Love ya,
Terrie, Donny, Justin, & Gypsie
Heather Misiluti - 11/02/99 01:09:11
My Email:misihf1@studentmail.unitec.ac.nz
Comments:
Your story is very inspirational and Ana is a beautiful little girl. My son Jamie had spinabifida but sadly he died during delivery . I only wish that some of the technologies available to you in your country were available here .Jamie was born in Jan of
995 so it was not too long ago.However his birth had a great purpose in that everyday I realise what a blessing life is and each day brings something new to learn and appreciate .
Thank you again for your story.
Heather
Rebecca - 10/30/99 04:54:58
My URL:http://www.homestead.com/hannahsheaven/hannahsheaven.html
My Email:becca111@pe.net
Comments:
Thank you for sharing your beautiful daughter with the world. My daughter, Hannah, is a few months younger than Ana. She'll be a year on nov. 8. We learned of her SB at birth. Fortunately, she is doing great and loves to be on the go! Feel free to vi
it our website!
Astara Angel - 10/29/99 16:08:50
My URL:http://members.xoom.com/Astara_Angel/index.html
My Email:astaraangel@atl.mediaone.net
Comments:
What a beautiful family you have.
Comments:
Gwen - 10/23/99 05:30:18
My Email:GWENDOTR@prodigy.net
Comments:
I am glad your daughter is doing ok. I do not know anyone who has spina bifida, but I know about it. I am glad that there was a operation to help your daughter. May God Bless you and your family.
alanna bill - 10/22/99 20:43:39
Comments:
Good luck little one. My older brother has spina bifida and everyday I look to him for inspiration.. Don't ever let anyone tell you you can't do something... he is a 27 year old university graud persuinga career in journalism. The sky's the limit for you
too...
Blanca Atienza Bregante - 10/17/99 14:47:04
My Email:jatienza@retemail.es
Comments:
Blanca is our first daughter. Born March, 24th 1997 in Madrid, Spain (UE).
She is also Spine Bifida (L1).
She stars walking with some aid.
Lee Friedell - 10/16/99 06:29:45
My Email:fried@palmnet.net
Comments:
I sent you an e-mail so hopefully you'll get it. I love your music and hope you're all doing well.
Eve - 10/15/99 20:36:09
My Email:eveie@tesco.net
Comments:
To a fantasic family,it was so nice to meet all 3 of you in August as part of our holiday in Florida.
Anna is a beautiful litle girl who has two most caring parents looking forward to you crossing the Atlantic one day!
Love Eve ,David, Joanna(14 years SB &H) & Michael Manchester England UK
Phyllis D. - 10/13/99 01:10:12
My Email:Lourdes110@aol.com
Comments:
Al~
What a beautiful story and inspirational web page! I still have tears in my eyes. May God continue to bless the Lyons family. I only have one question: who is the guy in the band with the long hair?! May the angels continue to walk beside each of you!
Peace,
Phyllis
Donna Archer - 10/06/99 06:00:38
My Email:darcher@cerainc.com
Comments:
I enjoyed your website. I am preparing a Life Care Plan for a little one-year old girl with Spina Bifida. Her myelomeningocele was at L-5/S-1. I am trying to find out more information on how teenagers and adults with this level of lesion are doing. If
ou know of anyone who could help me, it would be most appreciated.
P.S. The book mentioned on your page, "Living With Spina Bifida" is great. I bought it, read it and had the great pleasure of having Dr. Sandler sign it during a meeting with him a few months ago.
Good Luck to you and your family.
Dalene - 10/06/99 00:34:06
My URL:http://www.angelfire.com/il/mdjensensfamily
My Email:mdjensen@cin.net
Comments:
Al and Karen , Ana is a beautiful little girl ! You have so much to be proud of !
I am pleased to hear she is doing well.
Jane Kulas - 09/29/99 12:42:27
My Email:www.kulas@chariot.com.au
Comments:
I attended the International conference on Hydrocephalus and Spina Bifida held in Perth Western Australia 23rd- 26th September 1999 and had the delight in being able to attend the presentations of Dr Joseph Bruner and the pioneering work that is being car
ied out at Vanderbilt. This has led me to the web site and all that it has to offer.My role as an outreach nurse for the Adelaide( South Australia )(SpinaBifida @Hydrocephalus assoc. enables me to gather all sorts of information and this website is great!
Keep up the good work.
regards Jane
Jane Kulas - 09/29/99 12:37:31
My Email:www.kulas@chariot.com.au
Comments:
I attended the International conference on Hydrocephalus and Spina Bifida held in Perth Western Australia 23rd- 26th September 1999 and had the delight in being able to attend the presentations of Dr Joseph Bruner and the pioneering work that is being car
ied out at Vanderbilt. This has led me to the web site and all that it has to offer.My role as an outreach nurse for the Adelaide SpinaBifida @Hydrocephalus assoc. enables me to gather all sorts of information and this website is great!!
Keep up the good work.
regards Jane
Susan Eloise - 09/28/99 22:07:16
My Email:susan.stockell@mcmail.vanderbilt.edu
Comments:
I thoroughly enjoyed the pictures--especially those taken after Ana's nap! The reunion shots were delightful and really caught the spirit of the event. Thanks for sharing!
Lori Smith - 09/27/99 01:31:03
My Email:Kattno1@aol.com
Comments:
Ana is such a beautiful little girl. It was such a pleasure meeting you and Karen in TN.
Learn6 (Benjamin Kibblewhite) - 09/27/99 01:29:48
My Email:Learn6@yahoo.com/ KLKibble@netcom.ca
Comments:
You know my mother, so thats how I found your page. My mothers Name is Lorraine Kibblewhite. KLKibble@netcom.ca is her e-mail.
kerry - 09/25/99 10:57:41
My Email:kerryb99@rcn.com
Comments:
I have a nephew with spina bifida and i have been trying to learn so much about it and you store seem just like what we went through but they did not do the surgery until he was born i love to talk to someone that is going through the same thing me and my
family are going through.
Brigette & Chris Radcliff - 09/19/99 21:21:35
My Email:jdavis@aol.com
Comments:
I remember watching your story... it brought back memories from when our daughter, Anastasia Noel, was born in may 1997. Glad to see & hear that everything is going well. She's a cutie!
Kathy & Greg - 09/18/99 16:08:17
My Email:kdl34@webtv.net
Comments:
Hello,
We saw the dateline show the week before we found out our boy has sb. Because of that info we were able to ask our parinatologist about fs4sb. To make our long story short we were #7 at Children's Hospital in Philadelphia. They operated at 23 wks, deli
ered at 36 wks, and took our boy Davis home after 2 wks in the NICU.
Whenever we hear someone say they are telling their story in order to help one person we think about the fact that you are the family that told your story and helped our family. We were excited to realize we could link via the onelist because we real
y just want to say "thank you".
Jennifer Gamache - 09/18/99 08:17:17
Comments:
Ana is so beautiful. She has grown so much and the both of you couldn't look happier! I can't wait to see her.
Sandy Foster - 09/13/99 03:50:12
My Email:jimfoster3@netzero.net
Comments:
Good job on the web site. Tell Karen I'll refer my friend Eda to this site. She's the MOPS mom (non-journalist) that wants to interview Karen for a story on children w/ disabilities. Check out Mops (Mothers of Preschoolers) website for Karen. It's a go
d support group for stayhome moms. They meet all over the U.S. & there are several in Tampa Bay area. I go to 2 in Largo & Clearwater.
Jill Diehl - 09/12/99 23:12:41
My Email:KNJDiehl@sprintmail.com
Comments:
Wonderful job!!!! Ana is beautiful!!!
Al Scortino - 09/12/99 19:38:08
My URL:http://members.aol.com/scortinos/al.html
My Email:Scortinos@aol.com
Comments:
Glad to see anna doing so well, and you guys too.
Jay - 09/12/99 19:35:20
My Email:JSchra5168@aol.com
Comments:
Finally got to see the wonderful pictures. Thaks for the tour of "Ana's world".
Paul Garfinkel - 09/11/99 19:26:12
My URL:http://www.jacksonville.net/~pgarf
My Email:pgarf@mediaone.net
Comments:
Al, I had no idea...My day job is at a Children's specialty clinic in Jacksonville. Ana's story is wonderful and inspiring! I observe and learn from the amazing strength of children every day. Bless all of you!
Oh, yeah...nice fiddle...
Paul
Leny Que Go - 09/08/99 23:49:25
My Email:lenyqg@direct.ca
Comments:
Your sharing of your daughter, Ana, is very helpful and encouraging for I have a daughter too now 21 months old who was born with spina bifida.
We are Canadians but non-resident now living in the Philippines. We came purposely here in Vancouver to have our daughter checked and evalutated. Browsing over the other cases of
spina bifida children from America and even Canada, we can say that you are still very lucky to have good rehabilation center and therapists that would early intervene with the gross, fine motor of your daughter or son.
We're just hoping for the best and do what's best
for her and the rest we leave it to hands of our
mighty Lord above. Thank you very much.
leny (mother of Iris- 21 months old)
Leny Que Go - 09/08/99 23:49:20
My Email:lenyqg@direct.ca
Comments:
Your sharing of your daughter, Ana, is very helpful and encouraging for I have a daughter too now 21 months old who was born with spina bifida.
We are Canadians but non-resident now living in the Philippines. We came purposely here in Vancouver to have our daughter checked and evalutated. Browsing over the other cases of
spina bifida children from America and even Canada, we can say that you are still very lucky to have good rehabilation center and therapists that would early intervene with the gross, fine motor of your daughter or son.
We're just hoping for the best and do what's best
for her and the rest we leave it to hands of our
mighty Lord above. Thank you very much.
leny (mother of Iris- 21 months old)
Leny Que Go - 09/08/99 23:34:42
My Email:lenyqg@direct.ca
Comments:
Your sharing of your daughter is very helpful and
encouraging for I have a daughter too now 21 months old who was born with spina bifida.
We are Canadians but non-resident now living in the Philippines. We cam purposely here in Vancouver to have our daughter checked and evalutated. Browsing over the other cases of
spina bifida children from America, we can say that you are still very lucky to have good
rehabilation center and therapists that would early intervene with the gross, fine motor of
your children.
My daughter can't sit on her own yet, can't say
words like "mama", dada like what I've learned
from Julia Mae who is 1 month 17 days younger than
my daughter.
We're just hoping for the best and do what's best
for her and the rest we leave it to hands of our
mighty Lord above. Thank you very much.
leny (mother of Iris- 21 months old)
- 08/25/99 21:23:19
Comments:
Sara Yost - 08/05/99 22:01:49
My Email:Muphinn21@aol.com
Comments:
Your web page was very informative. I am almost 5 months pregnant and was told today that my AFP test came back elevated for Spina bifida. We don't know for sure yet, but I wanted to read up on SB just in case that was the outcome. Thank you very much.<
r>
Ronda Bryan - 07/24/99 20:58:47
My URL:http://home.talkcity.com/ChaplinCt/redneckgirl86/index.html
My Email:redneckgirl86@talkcity.com
Comments:
Your little girl is very beautiful. Just keep praying and hoping and everything will work out fine. My aunt had a friend whose little girl was born with spina bifida, this was long before they could operate in the womb. She has had surgeries to close t
e spine. The last I heard she was doing very well. I am sure your little girl will be just fine. My thoughts and prayers are with you and your family.
Dee - 07/24/99 19:12:31
My Email:lucsmom@webtv.net
Comments:
You have a very dear little one and I hope all goes well with her and your whole family. My prayers and thoughts go out to you.
Carmen - 07/22/99 18:57:21
My Email:cehlers@wabeno.k12.wi.us
Comments:
God Bless your little Ana! My grandson, Adam, was born March 18, 1999 with SB. He has a shunt, and has to be cathed every four hours. He can move his right leg quite a bit and his left leg a little. We don't know yet if he will walk. My son and daug
ter-in-law looked into this fetal surgery and decided against having it feeling it was too risky. I know it was a very hard decision for them. We love our little Adam very much and hope and pray he will have a happy, satisfying life and we wish the same
for you. I would like to hear from anyone with SB children and how you are getting along.
Grandma Carm
tamara/sunbeamin - 07/22/99 18:04:18
My URL:http://home.talkcity.com?ROFLWay/sunbeamin/sunbeamin.html?14347
My Email:twolfe0674@aol.com
Comments:
Just always know that GOD is so awesome, he lets everyone amount to something! All you have to do is BELIEVE! I will keep Little Ana in my prayers always! Wish that I would of known her sooner! ALL MY LOVE, Tamara
Samantha - 07/21/99 03:52:36
My URL:http://www.geocities.com/SoHo/Cafe/6879/
My Email:vanish726@aol.com
Comments:
I hope that you and Ana are doing well! Your story is extremely inspiring! My sister had spina bifida, and later developed severe scoliosis. Unfortunately, she died when she was six (in 1972) after she had surgery to put rods in her back. Ana is livin
proof of the kind of technology that exists today, and of how lucky we all are that such technological advances have been achieved. I hope that Ana grows to become the intelligent and beautiful woman that I know my sister would have been!
CHARITY OWEN - 07/18/99 23:23:35
Comments:
HELLO! MY NAME IS CHARITY. I WATCHED YOU SHOW ON
DATELINE ABOUT ANA. IT WAS VERY INSPIRING TO KNOW THAT I AM NOT THE ONLY INDIVIDUAL WHO SUFFERS FROM SB.I GOT YOUR NUMBER AND HAD CALLED AND SPOKE WITH KAREN ON 1-13-99.I HOPE ANA IS DOING OKAY. SHE SURE IS A BEAUTIFUL BABY! MAY GOD BLESS YOU AND YOUR FAM
LY AS HE SO DID MINE. I AM A 23
YEAR OLD. MY HUSBAND AND I LIVE IN S.C. HE IS IN
THE USMC. I AM CURRENTLY USING A FRIEND'S COMPUTER
SO I HAVE NO E-MAIL.I WISH I DID BECAUSE I WOULD LOVE TO CHAT WITH YOUR FAMILY AND KEEP TABS ON ANA.IT MAKES ME FEEL BETTER TO KNOW THAT I AM NOT THE ONLY ONE DEALING WITH SB. BUT TOGETHER AND WITH GOD WE CAN OVERCOME ANYTHING. GOD ISN'T GOING
TO GIVE US ANYTHING WE CAN'T HANDLE!!MAY GOD BLES AND KEEP YOU!!.
CHARITY OWEN - 07/18/99 23:14:17
Comments:
CHARITY OWEN - 07/18/99 23:14:15
Comments:
Karen Rotherham - 07/17/99 14:02:00
My Email:cannonzie@AOL.com
Comments:
I love your story and you have a very beautiful little girl. Your story has brought alot of encouragement out there to families with SB children. I pray that Ana continues to do well and may God bless your family!
steven - 07/06/99 01:29:37
My Email:swheels13@aol.com
Comments:
Al Lyons - 06/05/99 02:59:34
My URL:http://www.geocities.com/EnchantedForest/Meadow/7105
My Email:alyons@helios.acomp.usf.edu
Comments:
Just testing the guestbook. Some folks have had difficulty leaving a message...Al.
lois bengson - 06/05/99 01:59:36
My Email:cbengson@nmu.edu
Comments:
this should helpthe parents to be who contacted me and many others who are facing the birth of a sb baby. my daughter is 30 and in a wheelchair and I'm the president of or up. michigan chapter
lois bengson - 06/05/99 01:58:50
My Email:cbengson@nmu.edu
Comments:
this should helpthe parents to be who contacted me and many others who are facing the birth of a sb baby. my daughter is 30 and in a wheelchair and I'm the president of or up. michigan chapter
Paul Lyons - 06/02/99 22:46:37
My Email:paultlyons@aol.com
Comments:
Jennifer Roy - 05/27/99 03:02:03
My URL:http://hometown.aol.com/rjenni/myhomepage/index.html
My Email:Rjenni@aol.com
Comments:
Beautiful page Al, Karen and Ana. I have followed your story through dateline as well as the SB-Parents list. May God bless your family.
A.ABDULKAREEM - 05/23/99 23:12:20
My Email:abduam0y@aramco.com
Comments:
good luck i wish you all the best
Sharon Boone - 04/14/99 16:33:00
My Email:samboo9@gte.net
Comments:
I was born with spine abifida many years ago. Mine is on the upper spine. I feel you made the right decesion to go ahead with the surgery and one day your little angel will thank you for it. May god bless you always and it wont be easy for her but she wi
l be a fighter just to make it in this world she's had a great start. My best to you and your family. I will check back now and then to see how she is doing. A friend Sharon
rachel schmidtke - 04/07/99 01:00:34
My Email:raejaewebtv.net
Comments:
o glad I found you. LIke little Ana I was also born with Spina Bifida. I know you probably won"t believe this but I will be 68 years young in Oct. i am a paraplegic due to the birth defect but was able to bear 4 beautiful daughters/and have 3 grandchild
en. I am incontinent so must wear a bowel and urine bag.They are very convient for me to take care of. I had my spine closed at 5 days of age and my parents were told I would live about 2 years. Guess they were a quite a
few years wrong and probably passed away now! They also said I would never sit up,be hydrocephlic and be retarded.This never happened. I really had the greatest parents in the world. They motivated me and treated me
ike my normal brother and sister. At 7 years of age I had corrective surgery On my right hip and both legs so I could be fitted with waist high braces and given crutches.I walked with them till I was 21 years old then had to use a whellchair because I w
s pregnant and couldnt blance my body in this condition. I been in the chair ever since because of more children and its just more practable. Oh,I spent 3 hours around trip on a school bus for 12 years to get a high school education. I graduated at
18. In closing I just want to say have faith in the Lord and motivate little ANA to do all she can.
- 03/28/99 08:49:15
Comments:
Kevin Jones - 03/24/99 01:53:36
My URL:Under construction
My Email:kevinj@tampabay.rr.com
Comments:
We also live in Tampa . How is Ana doing? My son, Keith, is two and a half and also has Spina Bifida. He just got some braces from the Shriners hospital today. Hope to hear from you soon.
kate bautista - 03/23/99 10:04:15
My Email:kte4@hotmail.com
Comments:
It was so nice.May God bless you.
Karen - 03/23/99 05:45:10
My Email:drewkarehank@worldnet.att.net
Comments:
Congrats on little Ana, hope all is going well.
I have a little Hannah who will be 3 on May 3rd.
I saw you on T.V. and even now I cried for you, but Hannah has brought us nothing but joy. Hannah
can not walk and they say never but never is a long time and time will tell. Good luck, Karen
Heather Green - 03/19/99 00:14:27
My Email:gelli_16@hotmail.com
Comments:
I am doing a research project on spina bifida and the picture of your baby was beautiful.She is very pretty.
Heather Green - 03/19/99 00:13:12
My Email:gelli_16@hotmail.com
Comments:
i am doing a research project on spina bifida and the picture of your baby was beautiful.She is very pretty.
Mark & Dena Jordan - 03/16/99 19:20:28
My Email:dmjordan@cji.net
Comments:
Dena and I just found out yesterday, March 15, 1999, that our baby has spina bifida. While doing some research on the internet, I found your article. I did not know this procedure was available or even existed. Our doctor is in Springfield, MO, and I a
going to ask him about this procedure. Your article has given me hope that Dena can undergo this operation for our baby girl. Thank you- Mark Jordan
Jennifer C. - 03/12/99 20:55:57
Comments:
I just read your web page and I started crying. I hope that everything is going good and little Ana is doing great.
Denise Cheesman - 02/28/99 00:49:17
My Email:cheesman@galesburg.net
Comments:
Hi!
I missed your story on Dateline but my sister told me all about it. I have a daughter with spina bifida she's 19 mo. Anything modern medicine can do to improve the outcome of spina bifida babies is great!!!!
Joseph Way - 02/12/99 04:36:15
My Email:ChildrensCancerSociety@msn.com
Comments:
Dear Friend,
We are The Family Crisis Center at the Childrens Cancer Society.
We provide financial support to families in need. If you or someone you know needs financial help do to the costs surrounding cancer treatments of a child, please call or email us.
Also, if you have any prayer requests please let us know.
Thanks and God Bless.
Joseph Way
Childrenscancersociety@msn.com
888-451-HOPE(4673)
Team Conley - 02/10/99 03:47:50
My Email:conleyx3@earthlink.net
Comments:
Beautiful Ana...we can't wait to finally meet you
in person! There is a picture of your parents
under the word "LOVE" in the dictionary. Until
March, with much affection, Michael, Carlye, Baby
Rachel, and Arthur xoxoxoxoxoxoxoxoxoxoxoxoxox
Caroline Nolan - 02/06/99 08:39:26
My Email:careug@indigo.ie
Comments:
Hi Al & Karen
Finally got around to checking out the site - what a doll! Boy those photos bring back memories - especially the one of Ana asleep with Dad - we have lots of them too!!!
Jeremy Winkler - 02/04/99 16:57:57
My Email:JWINX2002@AOL.COM
Comments:
YOUR STORY HAS TOUCHED ME VERY MUCH AND HELPED ME KNOW MORE ABOUT PEOPLE WITH SPINA BIFIDA.
Tiffany Conklin - 02/04/99 16:39:09
My Email:www.tiffanyconklin@hotmail.com
Comments:
I love your story it is so sad. Iam glad your baby is health and has a chance to walk.
Tiffany Conklin
Darren & Rebecca Osgood - 01/31/99 17:06:23
My URL:http://members.tripod.com/~tarpon_girl/index.html
My Email:osgood@gte.net
Comments:
Hello Al & Karen,
Congratulations on your recent promotion Al. Enjoyed the new pics of your little angel, they're great and she sure looks like she's making good progress. May the three of you continue to have all the blessings in the world.
Micki Seymour - 01/30/99 02:19:23
My Email:Greyes@AOL.COM
Comments:
Dear Anna, Karen and Al,
Just checked in tonight to see your updated webpage. How wonderful and I can't believe how big Anna is getting to be. Remember I want to be one of the first who gets one of the CDs when they go on sale. Miss you at work Al, but know you are meant to br
ng harmony wherever you go. Bring Anna by sometime soon, we are felt like we were a part of her birth.
Love ya,
Micki
Nanci Insco - 01/27/99 03:29:23
My Email:ninsco@hcis.net
Comments:
Al, Karen and Little Ana, I haven't been on the SB parents list for a few months now but I have wondered about you and how you are all getting along so I check in here periodically to see what's new! Imagine my surprise when my brother called me and sai
, "turn on Dateline, they are talking about SB" and it was you all! Wonderful piece, very real and personal. I have heard comments about it for the last few weeks! I think it was great how they portrayed SB, not overblown but realistic. And the things
you went through weren't sugarcoated at all either. I continue to think of you and wish you the best.
Love, Nanci and Madison
Anna & Cristiano - 01/26/99 15:52:01
My URL:http://www.geocities.com/Heartland/Acres/1297/index.html
Comments:
What a road we travel, no? But having friends like you sure makes it easier! Wishing you a life of happiness....
Anna & Cristiano
Donna Coyle - 01/26/99 13:27:39
My Email:DonnaCoyle@gov.nb.ca
Comments:
I heard about your story on Dateline, unfortunately I did not see it. Hopefully, it will be shown again. My little girl, Megan, was born with Spina Bifida. She arrived six weeks early and weighed 4lbs.15oz. She will soon be 7 years old. We did not kn
w that she had Spina Bifida until she was born. I had an ultrasound done a few days before her birth but it was not detected. I just wanted to let you know that I think what you did for your little girl was wonderful. Hopefully, it will make a big diff
rence in her quality of life. I am a firm believer that everything happens for a reason and sometimes it is hard to know why certain things happen but God never gives us more than we can handle. Special needs children are indeed "special" and your littl
girl will bring you more joy than you can ever imagine. God bless you and your little angel and I wish you all the best in the years ahead.
Jim and Lisa - 01/26/99 00:37:10
My URL:http://www.geocities.com/Heartland/Fields/6980
My Email:eka6@juno.com
Comments:
Hi Al, Karen and Ana,
We were just checking in too see how everything was going and to see if there were any new pictures. Little Ana is so beautiful. Keep up the good work Mom and Dad.
:o) Jim and Lisa
sonia Hebert Guidry - 01/24/99 16:52:16
My Email:zeke@kaplantel.net
Comments:
wonderful page.. wonderful people.. there are angels among us.. I am blessed to have Annette, Randy, Alyssa & rana in my family and so near to me.. Keep up the great work.. !
Rana's aunt..
Sonia
Lorraine and Jim McCarthy - 01/24/99 12:00:58
My Email:vogels61@hotmail.com
Comments:
Lovely to see pictures of your little one, Al and Karen. I hope that things continue to go well for you all. Lorraine and Jim from Melbourne Australia, and SB Parents
Michael - 01/21/99 05:33:11
My Email:MAFFLOJO@AOL.COM
Comments:
I dont know what to say except this touched my heart. I too have SB except i have a different form of it. Mine is called SB Occulta I look very normal and no one would even know. Although recently i have gone thru 2 more back surgeries and have since
ost bladder and bowel control and have lost my ability to run. I am not sure why God allows some of us with SB to be more normal than others, but i do know that we all have this defect for a reason and your stroy really touched my heart. Thanks for s
aring it
Michael
Doug Eckstein - 01/20/99 01:54:46
My URL:http://www.angelfire.com/oh/dofsix/
My Email:dofsix@wcoil.com
Comments:
What a nice page. Sarah, my wife, saw the dateline segment and thought it was great. Thanks so much for visiting our webpage and signing our guestbook. Good luck to you and your family and God Bless.
mike simon - 01/17/99 05:53:56
My Email:msimon616@hotmail.com
Comments:
Karen & Al,
You may not remember me. I'm the photographer that shot the operation in nashville for dateline.
Just wanted to thank you for your courage to let us tell your stories. I get to do alot of stories and meet alot of people throughout the country, but few are like yours. I'm sure I'll remember it always. Take care of little Ana and keep the faith. The
est of everything, -Mike
ps..i haven't seen the story yet. I'm going to new york this week and hope to see geraldine moriba and get to see it. Hope everything was in focus. -MSS
Kathy Mionske - 01/16/99 19:25:41
My Email:kmionske@earthlink.net
Comments:
Congratulations on the birth your little angel. I am also the parent of a child born with Spina Bifida. Chris is almost 20 years old and he has been the greatest gift that God could give us.
Steve and Eva Adams - 01/14/99 15:42:51
My URL:http://www.sybercom.net/miracle/index.htm
My Email:1fullhouse@sybercom.net
Comments:
Wonderful story! Little Ana is a wonderful little baby! She will grow up to do wonderful things just as her parents have. It is really nice to be able to keep in touch with you.
GOD BLESS!
Steve, Eva, Patti Rae, and Helen Rose Adams
Nancy Townsend - 01/14/99 15:36:49
My Email:nancy.townsend@mcmail.vanderbilt.edu
Comments:
Hello,
I'm the newest member of the fetal surgery team here at Vanderbilt. I'll be working with Dr. Bruner as a Research Nurse. I just wanted to say your web page looks great. I enjoyed seeing your family story on Dateline. I hope to meet you one day. Congratula
ions on little Ana's arrival.
Nancy
Todd & Lynette Gardner - 01/14/99 05:39:21
My URL:http://www.fetal-surgery.com
My Email:ToddG@fetal-surgery.com
Comments:
Al,
Thanks for visiting my son Zanes page http://www.andrews.edu/~gardner/zane.htm Your site is terriffic, and reminds us of our son's fetal surgery. Great Pictures of the staff. Isn't Dr Bruner the greatest!! Your Dateline show was fantastic. Some day Z
ne will watch it, and know the unconditional love a parent feels for their unborn child. Thanks for sharing. God bless you and yours!!
Jenny & Kevin Harless - 01/14/99 04:19:41
Comments:
Al & Karen, you have a beautiful daughter and did a wonderful job on this site. We had so much fun looking at all your great pictures!
Kevin & Jenny Harless - 01/14/99 04:14:52
Comments:
Pam - 01/07/99 19:23:44
Comments:
Al and Karen,
Just wanted you to know that your story on dateline really touched me. My sweet baby, Alexi, was born with a minor form of Spina Bifida...I can truly understand the pain you felt when you discovered that your sweet pea had spina bifida. However, as you'
e probably realized, it does get better. The joy you will feel as you watch her accomplishments will be overpowering. Best wishes on your sweet little bundle of joy.
Pam
Ontario, Canada
Shaw Lamb - 01/05/99 09:52:32
My URL:http://www.angelfire.com/nv/lambfamilyhomepg/jamie.html
My Email:JLambsr@aol.com
Comments:
Al, Karen & Ana, The three of you in my opinion, are hero's. You are traveling an uncharted road so that hopefully, sometime in the future, people like Dr. Bruner can have 100% success with the in-utero surgery. Had it been around ten years ago, I would
have done the same thing, had I known about Jamie. You guys make one terrific looking family! Ana, so many people waited for you to get here, and you are surrounded by so much love, there will never be anything that you will not be able to accomplish...
he world is yours baby, take it and run! You've already got a great start!
Diana - 11/13/98 13:21:29
Comments:
Well, congratulations to the new parents. I am so glad that you finally got to take Ana home where she belongs. Your webpage looks wonderful also!
Nanci Insco - 11/02/98 04:14:42
My Email:ninsco@hcis.net
Comments:
Al, Karen and Little Ana,
How wonderful your site looks! I feel really quilty now that I don't have one for my little angels, you have way more going on than I do and have managed to do one! Continued best wishes for a beautiful little girl and her very special ( and busy) paren
s!
- 10/27/98 01:46:24
Comments:
Grandpa - 10/25/98 02:26:00
My Email:raksr@msn.com
Comments:
My Dear Little Ana,
You are my special little angel and I am so happy to see you doing so well. You are so sweet and beautiful. I can't wait for you to come home from the hospital. Your grandma and I love you so very much. You will be the apple of our eyes. You have a wonder
ul mother and father who love you more than words can say. You are the best Christmas present that any of us have ever had.
All the love in the world to you our precious little miracle.
Grandpa and Grandma
Susan Eloise - 10/23/98 18:14:21
My Email:susan.stockell@mcmail.vanderbilt.edu
Comments:
What a delightful photo of y'all! Al, thanks for keeping us apprised of Ana's well-being. I hope Karen and you are also doing well. "Normal life" is a relative term...and I hope y'all attain it soon! Ana, I'm looking forward to the day when YOU wield
he camera and scan the photos into your site! Keep growing, dollbaby!
Joseph P. Bruner, M.D. - 10/23/98 17:59:01
My Email:joe.bruner@mcmail.vanderbilt.edu
Comments:
Ana, you're beautiful! Of course, I knew that because I saw you first. Ana, your Mommy and Daddy were very brave to allow you to do this. For years to come, tens of thousands of babies with spina bifida (just like you) will thank you for the love and c
urage you showed. Ana, you are a splendid girl!
Susan Bauman - 10/23/98 13:05:08
My Email:Susan.Bauman@mcmail.Vanderbilt.edu
Comments:
Karen, Al and Ana:
It has been a privilege to know all of you. We love hearing from you. You have our warmest regards. Susan :)
Michael T. Emmons - 10/23/98 03:28:09
My URL:http://www.geocities.com/Heartland/Meadows/8706/
My Email:memmons@ibm.net
Comments:
Beautiful site, maybe we'll get together when we get back home to FL.
Mike & Lisa
Robbie Kates - 10/19/98 16:46:58
My Email:RKates@Sun-Sentinel.com
Comments:
Cindy and I are proud of you guys! Give Ana a kiss for us.
Love, your brother and sister-in-law
Cindy - 10/17/98 15:21:35
My URL:http://www.geocities.com/SoHo/Coffeehouse/1006
My Email:nm45@hotmail.com
Comments:
Its really great to see other people who love children of Spina Bifida, something that I had never herd of until my little foster brother come along. Thanks for the great page!
Darren Osgood - 10/13/98 13:14:44
My URL:http://members.tripod.com/~tarpon_girl/index.html
My Email:osgood@gte.net
Comments:
Congratulations proud Pappa & Momma. Rebecca and I hope you realize all your dreams and wishes with your beautiful baby girl! Dad, keep up the good work with the homepage........its definately showing signs of improvement.
Barbara Rosello - 10/10/98 20:02:37
My Email:Bobbi921@AOL.com
Comments:
Karen &Al,
What a beautiful baby, congratulations.
I shared you web site with the others here at
Matria. Al thank you for sharing this with us
God Bless you and your new baby and please know that our voices are among the choir of prayers being heard by Gods ears.
DIANA BOULLY - 10/10/98 13:16:33
My Email:OBULLY
Comments:
She is a beautiful little girl. Congratulation!
Teresa - 10/10/98 03:10:25
My URL:http://www.geocities.com/Athens/Oracle/5402
My Email:DrumNpoet@aol.com
Comments:
Wow, What a beautiful Neice I have. The resemblance is amazing.LOL. The pictures look 100% better, and all the time I thought it was because I didn't have my glasses on. Great job. Love you all.
Teresa
Lou Anne - 10/10/98 03:01:57
My Email:DrumNpoet@aol.com
Comments:
What a beautiful baby!!! Congratulations! Wishing you & your family continuous happiness and a healthy future.
DAD - 10/09/98 21:54:25
Comments:
Looks Great
Jennifer Jimenez - 10/09/98 04:48:10
My Email:locaboca@webtv.net
Comments:
Al and Karen and Ana,
What a treat to finally put a face with the names! You have a very beautiful family....CONGRATULATIONS to you all.....
Olan Boully - 10/09/98 03:58:16
My Email:OBULLY
Comments:
CONGRADULATIONS ON ONE FINE GIRL! WE WISH YA'LL THE VERY BEST.