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09/13/00 19:09:14
| Comments: Amy & Susie, We really enjoyed the picnic! We are so glad we got to come! Hopefully we will be able to come to the Valentines Day party. Jim,Dana,Austin&Cheyenne Hughes |
| Comments: our child isn't born yet but we're aware of her condition |
| Comments: What a nice site! Glad to see that you did something for CHD Awareness Day. I could never get any info on what Washington state was doing. I have a 10 month old son with TOF, who has had his corrective surgery at 5 months of age. I am currently attempting to put together a graphic site dedicated to children and families with CHD. God Bless You and the Kids! |
| Comments: my son is to be born with it. |
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| Comments: great job Amy!!!! I'm very proud of you! |
Name: Free For Chat | My URL: Visit Me |
My Email: Email Me | |
Comments:
Website de Nice. Merci pour me laisser signer votre guestbook
10/24/99 22:03:44
| Comments: I think the site is great. Its so hard sometimes ,but you feel you have to know everthing so this way your ready and understand what their telling you. No matter what THANKS |
| Comments: great site Amy!!!! Love ya lots! Pam |
| Comments: Enjoyed the stories. Thanks for putting the links on your page. I have visited several of them. mj |
| Comments: Our son Shaun was born 7/24/85 and had open heart surgery at one day old. He was born with Critial Aortic Stenosis. Shaun was a very sick child and with lots of prayers and wonderful doctors he is now a healthy (almost) 14 year old. Two years ago Shaun had is last (we pray) open heart surgery. Shaun was given a prosthetic aortic valve. He is doing beautifully and will be turning 14 years old this month. I think that Ami and Suzi have done a fantastic job at putting this organization together. We hav been a Military career family and in all the states we have lived in there has not been any kind of support group for families with children born with heart diseases. Thank you ladies for all your hard work. |
| Comments: Thank-you for establishing this web site! Would love to communicate with parents of children with Ebstein's Anomaly. My son had tricuspid valve replacement 6/98 at Mayo. Our faith in God has been our refuge and strength! |
| Comments: Great site Susie, Thanks for all your help and support. Hope that Nathan will be home very soon. He has been through it all. Diagnosised in utereo 9-3-98. Born 11-13-98. Cardiac cath 11-13-98, Norwood 11-17-98, Attempted closure and pacemaker placement 11-25-98, Closure 12-01-98, Pleural adhesion 12-28-98, Diaphram placation 1-20-99. I hope this is it until our Glenn. |
| Comments: Hi!:+) What a wonderful site you have here. The children are just beautiful!:+) I have a grandson who has HLHS. I did a homepage for him. He has had all three surgerys and is doing great.:+) God bless you all.:+)~~~Matthew's Grandma~~ |
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| Comments: I just wanted to let you know Amy how very special both my nieces are to me. Both have brought such a joy to everyone in and outside of the family and I thank God every day for blessing me with such precious nieces. Emily is not only a beautiful precious irl but also our little miracle. Thank you Amy for giving me the chance to experience the love that I have for both of them. |
| Comments: The site looks great!!! You two did a super job!! I visited it awhile back and I don't remember it having a guestbook. It brings me such comfort to know I have you two in my life and heart! |
| Comments: What a couple of beautiful children you both have. I wish you both all the very best and think it's great that you have started a support group, they are so important. |
| Comments: Susie & Ami, very nice. It's great to see other parents starting support groups to help other parents! Even with taking care of your own children, you can find the time to do this. For anyone who would like to see a bunch of kids with HLHS go to www.ad entureangling.com/chd/hope.htm Lenore, mom to Jeffrey and Matthew |
| Comments: Thanks for visiting our site! Please sign in and let us know you were here! |
| Comments: Hi. :-) I think this is a wonderful thing that you are doing. Although I wasn't born with a CHD, I did have some problems, and I know my parents would've loved the support you have here. I'm your Heartland/Village Community Leader. I want to take a moment to welcome you to Heartland/Village and invite you to come visit us in the Village Community Center (http://www.geocities.com/Heartland/Village/2153) Here you can meet all of the Village Community Leaders and some of the Village 'steaders as well. Have a great day! |
| Comments: Loved the site!! Can't believe how big Joey is, and Emily is just so beautiful!! So glad that all is going well for the both of you, and am praying that they continue for a very long time. Sincerely, Crystal (Mom2Cherub) In Loving Memory of Kaitlyn Nicole-HLHS, 9/12/96-11/16/96 ^^ |
| Comments: Amy & Susie--the website's great! Amy, I love those pictures of Taylor and Emily. You have two beautiful girls! Great work guys! |