STEFANY KEISER - 12/12/00 00:29:09
My Email:SCOTTKIZ@HOTMAIL.COM
Date Diagnosed: FEB 1997

Comments:


Carolyn - 12/09/00 14:36:01
My Email:carolyn@imagine.co.za
Date Diagnosed: 1999

Comments:
I have had most of the symptoms since before my daughter who is now two. i was always told that the pain I had was normal and part of being a woman. It is encouraging to see so much information on the net about this condition as not much is know by doct rs and gynae's over here. My only problem is that there are so many support groups within the USA and online chats in the USA but none of these really help me much. Your site however has been most useful. Keep up the hard work.

Pam Hughes - 11/13/00 16:05:40
My Email:pamhughes@webtv.net
Date Diagnosed: Oct. 1994

Comments:
In Oct. 1994 my GYN found out through lapro. that I had moderate edo. I had my appendix removed and a large cyst off one of my overies. I was put on the birth control pill called Ortocept, and have been on it since then. My pain comes and goes,and most of the time I feel pretty good. My concern is taking this birth control pill for such a long time. I am 39 and am not married nor have any children. At one time my GYN wanted me to have a hysto. but then chnged his mind because he said I may want to try and ave children first.I have itching in my rectrum and been given all sorts of creams for this, I also have terrible breast pain as well. I am hoping to not have to have a hystro, since I do not have perods since I have been on this pill. I am worried about ong term birth control pills and those effects on my body.I suffer from mild depression, but do not take medication for it, I do not like to take pills, and take only vitamins and my birth control pill.

Kelli Swick - 11/09/00 23:26:52
My Email:kelliswick@hotmail.com
Date Diagnosed: November 1, 2000

Comments:


Heather Junkin - 11/08/00 18:39:06
My Email:heather.junkin@wcom.com
Date Diagnosed: March 1997

Comments:
I have been diagnosed since March 1997. I have taken every kind of birth control pill known, I have also been treated with Lupron which did not help my either. Now I'm about to have my 2nd laproscopy. It is wonderful to know that there are other people that I can talk to about this disease.

Heather Junkin - 11/08/00 18:38:58
My Email:heather.junkin@wcom.com
Date Diagnosed: March 1997

Comments:
I have been diagnosed since March 1997. I have taken every kind of birth control pill known, I have also been treated with Lupron which did not help my either. Now I'm about to have my 2nd laproscopy. It is wonderful to know that there are other people that I can talk to about this disease.

Pamela/Canada - 11/08/00 01:31:07
My Email:rjcbetourney@ca.inter.net
Date Diagnosed: 1988

Comments:
Hello everyone. I really enjoyed your stories and share your frustrations and pain. I have been living with endo for a long time. The first time I was diagnosed, the doctor told me that when I couldn't stand the pain anymore I would just have a hystere tomy. I had one child and wanted more so I tried the hormones. I became pregnant to soon after the treatment and lost the baby in my 4th month. I was devistated. I kept trying. Had another laperoscopy done and the doctor that I was with, painfully sp lled out my options to me. After a week of depression, I picked up my chin and started planning other things in my life. About a month later I found out that I was pregnant. How about that! And they said I would never have another child! This was eig t years after my first diagnosis. Three years after my daughter was born I could no longer take the pain and was offered Depo Provera. Everyday of bleeding was enough for me. I said no more! I've had it! You win! I had my hysterectomy Feb 1999 and a ter a couple of months I never felt better. My life was my own again. I didn't have to organize my activities by the calendar because I felt fine every day. But about 7 months ago I started to get pains in my abdomen. I thought it was an intestinal th ng. Then one day my husband asked me if it was possible that my endo has come back. I couldn't even move. I thought oh no! They told me that it was possible but not common. Well ladies, maybe I'm parinoid, but I've been timing my so called attacks. hey are 28 days apart. Tomorrow I will be seeing a doctor to discuss my problem. I'm scared as hell and I'm tired. I thought everything was over. I guess the outcome will be to remove my remaining ovary and take hormone treatments. I guess that isn't so bad! I guess the thing that I'm scared of the most is having to go through all the tests and treatments and doctor discussions. This is a terrible disease. Yes, there are worse but until you have lived in excruciating pain and almost torn apart your amily because of your emotions souring off into the sky it is really hard to explain the devistation that it can cause as hard as it is to diagnose. I wish everyone success in beating this. My heart is with you all.

Clare - 11/03/00 21:44:02
My Email:youngmansfancy@peoplepc.com
Date Diagnosed: 5/99

Comments:
I guess I should elaborate on LUPRON a little more. I had 3 injections. Immediate menopause. (while on Lupron) Not only the hot flashes, mean personality (I even couldn't stand myself) but one of the side effects is bone deterioration. Well I have a h rse farm and I couldn't even pick up a scoop of grain let alone a bucket of water. My temper was wicked. I felt as if I was going crazy. My whole body ached. My elbows were in excrusiating pain. I wanted to cry all of the time. I'm usually a very ha py person. So happy that people at work ask me how can I be so happy all of the time. Most of these symptoms lasted about an additional 3 months after the injections were stopped. The only good thing was it was winter time and I'm usually cold. The ho flashes prevented that. Don't ever let a doctor tell you "it will go away, it won't!!!!!! Go see another doctor and keep going until you find the right one. Again if you are experiencing pain and/or heavy bleeding there IS something wrong. You can have symptoms from everythin from painful bowel movements and even painful to expel gas, fatigue, to pain after eating a meal. I would venture to guess that painful period cramps are a classic sign of endo but the doctors cannot tell what it is just by an exam. It took laprascopic surgery to actually see it. Find a doctor who is very experienced in endo. I do not know what it is like to be pain free so I have learned to live with it. I can't wait for my surgery in Jan. I could go on and on and on but if anyone has any questions, feel free to email me. I can only tell you what I have experienced and from what I have read, most every ailment I have had was due to endo. Good luck to all with this nasty disease.

Clare Tracey - 11/03/00 21:18:10
My Email:youngmansfancy@peoplepc.com
Date Diagnosed: 5/99

Comments:
I did want to say, I just went to see Dr Fermin Bueretto. He's located out of Mercy Medical and has an office on Osler Dr in Towson. He actually knew everything I had experienced without me telling him. The reason he knows is because he use to be an in ertility doctor. All makes sense now. I will have surgery in Jan 2001. I'm looking forward to a life without as much pain. I know it may never go away but it is sure nice that after 20 some years there is actually a doctor who knows this disease. My ecommendation is if you have "bad cramps" find a doctor who is well versed in endometriosis. It makes all the difference in the world.

Clare Tracey - 11/03/00 21:10:42
My Email:youngmansfancy@peoplepc.com
Date Diagnosed: 5/99

Comments:
I have stage 4 endo. Took 20 years and at least 12 GYN's to find out. I went to the emergency room last year and had 5 different doctors with 5 different opinions. Everything from I needed emergency surgery to "it's going to go away". One doctor even old me I had PID (pelvic imflamatory disease). I didn't know what that was and he told me it was from "dirty sex". The problem was I wasn't having sex. It was too painful. I didn't know who to believe. I'm not with the doctor who diagnost it because I wasn't satified with the treatment. I'm 41 and do not want children. He did laprascopic surgery and followed up with Lupron. My advise.....DON'T TAKE THE LUPRON!!!! IT IS AN EVIL MEDICINE!!!

TAMMY ANDERSON - 10/31/00 07:37:35
My Email:tammy42978@webtv.net
Date Diagnosed: JUNE 9, 2000

Comments:
IT'S COMFORTING TO KNOW THEIR OUR OTHER PEOPLE OUT THERE THAT KNOW THE PAIN AND SUFFERING THAT

Tracy - 10/31/00 02:22:25
My Email:brianh@granbury.com
Date Diagnosed: Sept. 2000

Comments:
Hello all. My name is Tracy, I am 30 and have no children. I am currently engaged for the first time. In Sept. I was doubled over in pain just to be sent home from the hospital as many times before. Over and over I have been told I just have severe cr mping and I am one of those unlucky women. A couple of days later I ended up in the doctors office due to more severe pain. He said he could not find anything but finally agreed to send my to an OBGYN who performed a sonagram or something like that. I ad a cyst larger than a tennis ball on my left ovary. After discussing my options, my doctor immediately called the hospital and had me in the hospital with in an hour. During surgery, they found the endo. My left ovary was 4 times larger than normal an my tube was wrapped around it. There was no way to save it so it was removed as well. They diagnosed it as stage 3 endo. It is still under my uteris, but the right ovary looks pretty good at this time. I took my first Lupron shot in early October. I think I am doing pretty well. I know how frightening it can be to just be diagnosed and I want everyone to know there are people to talk to. Don't be embarrassed or afraid. My prayers are with all of you. Have a pain free weeek. :)

Roxane Zane - 10/30/00 23:57:26
My Email:RoxaneZ@kscable.com
Date Diagnosed: June 1995

Comments:
I had a laparoscopy for a large cyst which showed on my sonogram and also elected to have a tubal ligation. At that time I was diagnosed with having endometriosis. Since my surgery in June 1995 I started having health problems and went to Mayo Clinic an was also diagnosed with hypothyroidism, asthma & allergies, mitro valve prolapse, fibromyalgia, irritable bowel syndrome. I now have constant abdominal and low back pain. I have refused to take the Lupron injections due to the side effects and it is only a temporary solution. I am now scheduled to have endo excision and a supracervical laparoscopic hysterectomy with a endo etriosis specialist in Atlanta, GA on December 8th, 2000. I am hopeful the surgery will be a success and I can live a normal life again.

Danielle Kuba - 10/26/00 05:04:14
My Email:marvintl1000r@home.com
Date Diagnosed: n/a

Comments:
I'm not sure I have endometriosis but think i might and I am just curious

Danielle Kuba - 10/26/00 05:04:02
My Email:marvintl1000r@home.com
Date Diagnosed: n/a

Comments:
I'm not sure I have endometriosis but think i might and I am just curious

Christeena Proctor - 10/23/00 01:44:31
My Email:Betwixt@att.net
Date Diagnosed: Jan. 1998

Comments:


Moriah Miller - 10/22/00 21:51:26
My Email:MothePrincess@cs.com
Date Diagnosed: December 1991

Comments:


KIM E. - 10/21/00 00:16:10
My Email:BUZZED1@VOYAGER.NET
Date Diagnosed: 6 / 95

Comments:
I TRIED FOR 6 YEARS TO GET PREGNANT AND NOTHING .I HAD PAIN DURING SEX,DURING PERIODS AND ALOT OF THE OTHER TIME.I WAS TOLD THAT IT WOULD BE HARD FOR ME TO GET PREGNANT.I FINALLY FOUND OUT AFTER SEEING MY FOURTH DOCTOR THAT I HAD ENDO. I HAD A LAP DONE AN I WAS GLAD THAT THERE WAS A NAME FOR IT BUT I WAS SCARED THAT I WOULD NEVER GET TO EXPERIANCE MOTHERHOOD. AFTER MY SURGERY I HAD FOUR MONTHS OF LUPRON SHOTS ,THE LAST ONE BEING IN DEC. OF 1995 AND I FOUND OUT I WAS PREGNANT IN APRIL OF 1996. I COULD NOT ELIEVE IT,I HAD NEVER BEEN HAPPIER ABOUT ANYTHING IN MY LIFE. AFTER MY SON WAS BORN I DECIDED THAT WHEN HE WAS A YEAR OLD I WOULD TRY TO GET PREGNANT AGAIN. AFTER TRYING FOR A YEAR AND A HALF I HAD ANOTHER LAP DONE AND FOUND OUT I HAD IT AGAIN. THIS TIME WAS NOT GIVEN ANY LUPRON SHOTS AND IT HAS BEEN ALMOST EIGHT MONTHS OF TRYING WITH NO PREGNANCY. IT IS VERY FRUSTRATING GOING THROUGH THIS. I SAID THAT I WILL NOT HAVE A HYSTARECTOMY UNTIL I HAVE A LEAST ONE MORE CHILD I WILL DEAL WITH IT . I AM NOT READY TO GIVE UP MY DREAM OF HAVING ANOTHER CHILD YET. I DON'T THINK ANYONE SHOULD . I WAS TOLD IT WOULD PROBABLY NOT HAPPEN TO ME EITHER BUT IT DID ONCE AND WHO KNOWS MAYBE I WILL GET LUCKY AGAIN. DON'T GIVE UP YET, I KNOW IT IS WHAT YOU FEEL LIKE DOING BUT TA E IT FROM ME I WOULD GO THROUGH IT ALL OVER AGAIN AND A HUNDRED TIMES WORSE TO HAVE MY SON. HE IS THREE AND A HALF NOW AND I NEVER NEW YOU COULD LOVE ANYONE OR ANYHING LIKE THIS. DON'T GIVE UP!!!!!

- 10/19/00 21:12:59

Comments:


Jamie Leigh Geels - 10/19/00 01:09:43
My Email:PryncessJamie@AOL.com
Date Diagnosed: 10/03/00

Comments:
I was just recently diagnosed with endometriosis. I am only 19 years old. I choose this topic for my research paper for college. I am using the paper as an information source for myself about what I have. I have read book after book, but never really h ard personal stories, and feelings from women who have been through what I am going through.

gale santiago - 10/18/00 04:48:38
My Email:got2gorn@aol.com
Date Diagnosed: 10 years ago

Comments:
Im going to see a speacilist finally named Dr. Reich in NYC for a lap. Has anyone seem him. I shced for surgery 10/25

Kerrie Bruce - 10/17/00 18:16:33
My Email:kerriebruce@hotmail.com
Date Diagnosed: june 1998

Comments:


- 10/16/00 02:28:09
My Email:pattyaburns@aol.com
Date Diagnosed: 12/99

Comments:
I was diagnosed with adenomyosis last December. My GYN wants to do a partial hysterectomy. I will schedule it for February, 2001. I have many questions such as should I have a total hysterectomy if there is a history of cervical cancer on my mother's si e of the family and my mother had a hysterectomy in her 50's because of an abnormal pap smear. I will discuss it with my doctor when I see him in December. Can you have a hysterectomy with a epidural and sedation instead of being put under a general? M adenomyosis is pushing on my bladder causing me to wake up at least 4 to 5 time a night. I have been told that my uterus is the size of a 2 month pregnancy. Loestrin seems to be keeping my symptoms from getting worse. I feel that the more research I d , the more confused I feel.

Sue - 10/12/00 13:35:54
My Email:britbred@msn.com
Date Diagnosed: Aug 97

Comments:
At my wits end, like most of you, hang in there, according to the doctor help is on its way !!

- 10/11/00 21:40:09

Comments:
This site will be update soon. Thank you EVERYONE for your support and keep coming with the questions/comments/answers and "your story". We will be sending out a monthly newsletter starting in January of 2001. Everyone who signs the guestbook will reciev the newsletter. Thanks again! -Lia

Rebecca Foste - 10/05/00 04:35:58
My Email:rfoste79@yahoo.com
Date Diagnosed: 7/97

Comments:


Greta - 10/04/00 19:02:48
My Email:greta@pentslc.com
Date Diagnosed: 9-15-00

Comments:
I'm 26 and just found out that I have endometriosis. I have been trying to get pregnagt for 2 years. I went through surgery to have my endometriosis removed. My doctor has now given me the choices of lupron,or birth controll pills. I am not feeling ri ht about either one. I have a friend who recomened using wild yam cream. Has anyone used this before? I would love some feedback on what others have done. Thanks!

Leanna Bidwell - 09/24/00 01:44:34
My Email:lbidwell@kent.edu
Date Diagnosed: 9-15-00

Comments:
I've had endometriosi since I was 14. I wasn't diagnosed until about 9 months after that. I would really appreciate anyone who wants to talk about it. Noone really knows what its like until they have experienced it.

Lucy Rudge - 09/23/00 01:08:29
My Email:ler@nctimes.net
Date Diagnosed: May 1999

Comments:
I live in San Diego and there is nothing that I have found as far as support groups or anything here. Knowone understands what I'm going through. My mom tries, but she doesn't know what it really feels like. With everything I try I feel like I'm hitting a brick wall.

Angie - 09/21/00 18:43:51
My Email:akp69_69@yahoo.com
Date Diagnosed: 08-1997

Comments:
I am getting ready to undergo my second laposcropy in only 3 years. I began having problems in late 1996 once I went off of birth control pills. I am 26, no children, and not married. My doctor says that I really need to consider children, but I can't ee myself raising a child alone after a sperm donation. Pain has been worse the last 6 months. I'm really miserable, very fatigued and have gained 12 pounds in 4 months. Been tested for everything from thyroid, diabetes and chloestrol. Tests all negat ve so we go back to endo. In 1997, my mother, my sister and myself all had a lap. for endo. within a 9 day period. Mother has since had a hysterectomy. I have refused lepron treatment and wonder just how many times I can have the surgery. I need encou aging words. E-mail me.

nancy long - 09/06/00 02:50:30
My Email:njlong2@aol.com
Date Diagnosed: 1994

Comments:


Amy Harris - 09/03/00 01:29:58
My Email:harrisa@garygreene.com
Date Diagnosed: 10-1995

Comments:
I have gone through 2 lapaproscopies and been on Lupron . Was fortunate to get pregant, but pain is back again. Frustrated with pain and being told that we are exhausting all of our options besides having a hysterectomy. Would not do Lupron again !! Massive amounts of weight gain, that is almost impossible to loose. Know several other women that gained more weight then I did with the drug and can not take the weight off.

Tessa Shelley - 09/02/00 22:56:59
My Email:tessdgoff@hotmail.com
Date Diagnosed: June 1,2000

Comments:


shelly - 09/01/00 16:45:51
My Email:smratte@windo.missouri.org
Date Diagnosed: aug.3-00

Comments:
i would like to now what i need to do? i have to doctors, they more less give you the run around about things. i have been sick now for over a month and off work because of this. i'm a heavy bleeder bloating like am going to have a baby and i can't, my tu e are fixed.pain in my rightside,been on birth contol, i'm on throyid med. weight gain ,lower pelvi pain that burn's, all the test they have done shows every thing is o.k. the cts the utersounds the bladder check they are going to do a laparascopy test ne t on me ,but then what. i'm just give out in about 2 hour if i try to do anything.a lot of presure to go to the bathroom all the time, it like every thing is going to fall out of me.

Linda Reichlin - 08/29/00 20:15:00
My Email:LindaR@agentsupportgroup.com
Date Diagnosed: April 99

Comments:
My daughter went through years of pain, she is currently 18 is was diagnosed with endo in 4/99. She was on Depot Lupron for 3 mos and called it quits. She has been on Synarel for almost six months and I have many concerns regarding long term affects and what's next. Does anyone know how long someone can be on this.

Linda Reichlin - 08/29/00 20:13:09
My Email:LindaR@agentsupportgroup.com

Comments:


Christie Mayberry - 08/27/00 19:27:14
My Email:ybnrml@dmv.com
Date Diagnosed: 1991

Comments:
Hello, I am finally glad to have found a support group in Maryland. When I was 17 I had painful periods and went on birth control pills. I decided to stop taking them at about 20 years old. Then I started getting stabbing pains about a week before and week after my period. I got horrible migraines the week of my period. Imitrex and Zomig were not available then so this started me on my rounds with pain pills. I think I have been on every different kind which I eventually become immune to. In 1992 I had my first laparoscopy. I was diagnosed with Grade I endo. That doctors recommendation to me was to get pregnant (I was 23, not married, and had a full-time job and was a full-time student). The last thing on my mind was to get pregnant. He tried me on many different bcp's.(This was in CA). I moved to MD in 1994 and started having the increasing pain again but much worse with the bloating, painfull bowel movements, painfull intercourse, back pain, and horrible abdominal pain. I knew what it was and I kept a 3 month calendar documenting how I felt. I found a new woman obgyn in MD and she looked at the calendars, examined me and scheduled my 2nd laparascopy. I had endo on my rectum(which they left), pelvic area, bladder, and ureters. I was then put on Lupron injections for 6 months. After the 3rd shot I started experiencing mood swings, joint pain, depression, and a feeling of being "crazy" (I had to take a week off work just to relax per doctor's orders). She then supplemented the Lupron with .5 strace and 40mg prozac while I finished the injections. I will never go on Lupron again! I was pretty much pain free for 2 years (except the week before and the week during my period when I still got migraines). Then it started coming back with a venge ce. I was sent to a neurologist and he put me on Depakote for the migraines. That did not help the migraines but I did gain 15 pounds in 3 months. I went off of the Depakote. I live on the Eastern Shore of MD and the selection of good OGBy's with endo etriosis experience is pretty slim to none. Until now all of my OBG's have been women because I feel more comfortable with them and can empathize with you more (although I met one with no bedside manner). I was referred to a specialist at the University of MD who was a male. I met with him for the first time in 4/2000. I loved his bedside manner. He was very knowledgeable with endo and teaches other doctors about it. By the time I met him I pretty much knew my options. Oh! After first surgery I wen on Desogen birth control pills (they were the only ones I could tolerate and did not give me as many migraines). My option was to have another Lap., go on Lupron, or go on continuous birth control pills and use painkillers. I was already having a period only every 3 months. He switched me to Lo-estrin and I tried it for four months. I gaine 24 pounds in 4 months, felt very swollen all the time, and my breasts hurt so bad. I asked him to switch me back to Desogen. He told me he would do another surger if I wanted to but doing so many surgeries would cause scar tissue which could cause the same amount of pain as the endo. I am now 32 and have had the same boyfriend for 6 years. I just finished graduate school for getting certified to teach elementary chool. I do my student teaching this year and then will have my own class next year 2001. My doctor suggested that I wait to have surgery until I wanted to get pregnant (within a year or two). Since I have switched back to the desogen I started spottin daily and having pain at a level 8 for me. My regular female MD told me to double the amount of Vicoprofen I take when I have alot of pain. She said she could put me on something stronger but was worried about addiction and I was worried about teaching ith the children. I spotted for 3 months and then the OBG told me to go off and have a period (it had been 6 months since my last period). I was in so much pain during this week (10+) that I was taking perocet daily. I started the pills again today to ee if that helps so that I don't spot but the Dr. said it could take months. During this entire time I too have missed numerous days off from work. Once I used up my sick time I had to start using vacation time. (I have been doing accounting work up unt l now). I have never been fired but have switched jobs frequently up until now. I was always afraid to get fired and feared that noone understood what I was going through at work. I was going to plan to get pregnant in a year or two and then have a tota hysterectomy (my mother had one at age 25 after me because of endo). I was under the impression that if you had a hysterectomy the pain would go away. I have spent the last 6 hours on the computer and have read numerous stories about women that have ha hysterectomy's and still have endo. Now I am thinking twice. During this time I also turned to alcohol for the pain since the pain pills were not working. I became an alcoholic. I am not currently drinking but am taking the pain pills. I would love o become part of a group to talk to other women with this disease. Thank you for allowing me to share my story. Christie.

Debbie - 08/21/00 19:27:35
My Email:carpet@coastalnet.com

Comments:
Hi! My name is Debbie I am having a hysterectomy next week as I have suffered long enough with this pain .I hope this is going to work.Feel free to e-mail me I could use some mail on this disease that absolutey interupts being able to enjoy your daily life. I am 31 and have pretty much had problems since I first started my period when I was 13. Thanks

Tina Brasiel - 08/14/00 16:23:37
My Email:DJDJackson@aol.com
Date Diagnosed: 3/97

Comments:
Any one looking for Natural alternatives try starting at www.tidesoflife.com- some very intersting info. in there to think about

Tina Brasiel - 08/14/00 15:49:12
My Email:DJDJackson@aol.com
Date Diagnosed: 3/97

Comments:
I am looking for individuals taking alternative medications for Endo. such as Natural Progesterine. Would like to hear from anyone trying this method of treatment and how it's working for

Renee - 08/11/00 18:58:18
My Email:rwilliams1@ogslp.org
Date Diagnosed: 7/14/00

Comments:
I was officially diagnosed in July 2000. But I have been having problems since I was 17. I am now 24 and having a really tough time. It started after my daughter. I have had 4 surgery's and been through a number of tests. I don't really feel I have t e support of my husband and that aggrevates me alot. I am on Lupron shots now. I have had no relief from the pain yet. I just want some support cause I don't feel I can do this alone. I need to talk to someone who is going through the same thing. So f anyone wants to talk just e-mail me.

Candace Tuiolemotu - 08/03/00 17:51:28
My Email:tuisfive@hollinet.com
Date Diagnosed: 1987

Comments:
I have been dealing with this illness for some years now. I have had 3 children and 1 miscarriage. I am now at the point where I don't want to be on birth control (one treatment) anymore and I don't know if I should have a hysterectomy or not.

Darlene Moll - 08/03/00 16:57:45
My Email:DARDAR13@YAHOO.COM
Date Diagnosed: AUGUST 1999

Comments:
I HAVE HAD FEMALE PROBLEMS SINCE I WAS 16 YEARS OLD. FIRST IT WAS A CYST THEN IN 1982 I HAD MY FIRST CHILD AND HAD TO HAVE MY LEFT OVARY REMOVED BECAUSE OF ANOTHER CYST. IN 1983 I HAD A MISCARRIAGE AND MORE PAIN THAT LED TO A D&C. I HAD CERVICAL CANCER CE LS REMOVED IN MAY 1983. THAN I HAD A TUBIAL DONE IN 1993. THAN I HAD SURGERY AGAIN IN 1999 FOR SEVERE SCAR TISSUE BUILD-UP AND LOTS OF PAIN. NOW THEY TELLME THAT WHEN THE LAP. WAS DONE THAT THEY FINALLY FOUND MY PROBLEM AND IT IS ENDOMETRIOSIS. IT HAD BEE A LONG ROAD AND LOTS OF MONEY UNTIL THIS WAS DISCOVERED, I HAD SYNOGRAMS INSIDE AND OUT AND CAT SCANS,URINALIZE YOU NAME IT . NOW IT IS A YEAR LATER AND I'M HAVING ALL OF THE PAIN AGAIN AND LIFE IS MISERABLE. WHAT NOW? THE ONLY OPTION THAT I HAVE LEFT IS A TOTAL HYSTERECTOMY.

Kym - 07/29/00 06:34:45
My Email:JKFPmills@aol.com
Date Diagnosed: 1990

Comments:
Don't give up! I had my first laparoscopy in 1990 which confirmed that I did indeed have this terrible disease and severely at that. I miscarried once in 1989 at the start of my 2nd trimester, and again in 1990 in my 1st trimester. I saw many ob/gyn do tors (All who wanted to do more surgeries, and for what......so it could come right back? No thank you!) One doctor put me on the Lupron Shots. I did 3 cycles of this. I don't recommend this treatment to anyone. It made me miserable and everyone else around me, (extreme moodiness, extreme depression, hot-flashes, everything terrible you could think of). After 4 years of trying to get pregnant again, my husband and I decided to see a fertility doctor. I did the whole spectrum of options (i.e. intra-u erine-inseminations, chlomid, etc.). After 8 years of trying everything, I ended up trying in-vitro. (While doing in-vitro, it was also confirmed that I had "bad" eggs which fragment easily, which causes miscarriages). It worked! I have the most beaut ful 2 year old twin girls. The Lord has truly blessed me and my husband. Try in-vitro as many times as you can if you are financially able. It can work, even though you have endometriosis. If you do try it and it doesn't work, God may have greater pla s for you and your husband. It takes really special people to adopt! You would be no less a mother than I am. Please feel free to e-mail me if you need someone to talk to. God Bless.

Marcia Phelps - 07/24/00 17:57:14
My Email:marmar08@aol.com
Date Diagnosed: June 1991

Comments:
I am 29 years old, will be having an Laparoscopy on August 3, 2000. (My 3rd) Durning this surgery if it is determined that I will not be able to have children, I have consented to have a full hysterectomy and appendectomy. Am I making the right choice? I can't stand it anymore - and the other options: hormone treatment, shots, etc... I would like to get pregnant sometime, but I geuss I will adopt! This disease has effected me since I was 12 years old. I wish there were ore options! My husband thinks I am nuts!!!!! Help!

TONYA SPRUILL - 07/14/00 14:17:35
My Email:tspruillt@yahoo.com
Date Diagnosed: 3/1994

Comments:
I have had surgery to remove endometriosis and have taken Lupron Injections twice at a 6 month interval. The last injections did very little to stop the pain. I am tired of pain. I was diagnosed in 1994 but I have always had painful periods. I am now 6 years old and have ran out of considerations. I will not get a hysterectomy because it is like the surgery and the Lupron, there is no garrantee it won't return. The only difference is the hysterectomy is more drastic physically and emotionally. I am now just tired of the pain. I pray every night that some cure is made to stop the pain for me as well as others like me.

shahniza daud - 07/08/00 17:52:55
My Email:shahnizadaud
Date Diagnosed: 8th Sept 1999

Comments:


Linda Mahar - 07/06/00 19:19:44
My Email:lmahar@wtbtvl.com
Date Diagnosed: 6 July 2000

Comments:
I am looking for information regarding endometrial cells left following complete hysterectomy.

Erika - 07/03/00 17:13:19
My Email:red19e@hotmail.com
Date Diagnosed: June 20, 2000

Comments:
I have questions about the Depro Provera shot as a treatment of Endo. If anyone has any information, I would greatly appreciate it!

Jenn Gilson - 07/02/00 22:00:08
My Email:jennscot@gateway.net
Date Diagnosed: 12/93

Comments:
Unfortunately I wasn't given enough information after my surgery in 93 and now it is 2000 and my husband and I are unable to have children. I was placed on birth control pills that allowed me to continually build up more scar tissue without knowing the c nsequences.

AIMEE CARDWELL - 06/28/00 05:53:50
My Email:rmparker@vnet.net
Date Diagnosed: 6/15/2000

Comments:
I have had yhis disease for going on 6 years buut just had it confirmed after a laparoscopy on 6/15/00. The pain has now worsened again I have found some very disturbing sidde effects from others who have chosen lupron, which happens to be the drug of ch ice by my OBGYN. Your comments have brightened me up a little. If it isn't an inconvenience please e-mail me you later results from the overall treatment with lupron.

Gretchen Atwell - 06/27/00 17:08:10
My Email:skylorsmom@yahoo.com
Date Diagnosed: 1997

Comments:
Keep your chins up girls. It has to get better. I am having a complete hysterectomy in 4 weeks. Blame it on Eve!!!

joelle - 06/26/00 19:38:40
My Email:zzjojo@yahoo
Date Diagnosed: january 1995

Comments:


ipetito2000 - 06/23/00 03:43:58
My Email:ipetito2000@aol.com

Comments:
what about chasteberry?

Perla Jamal - 06/20/00 17:04:39
My Email:pjamal@lausd.k12.ca.us
Date Diagnosed: 1990

Comments:
I would like to become a member of your group. And maybe get some answers.

Christy Thomas - 06/15/00 01:14:06
My Email:pumpkinpatch@alltel.com
Date Diagnosed: January 28, 2000

Comments:


Amal Zaki - 06/13/00 17:02:04
My Email:mbader@azaki
Date Diagnosed: 2/1997

Comments:
I'm 31 with 5 years of infertility.I have only mild pain at the time of menstruation in the left groin . Laparoscopy diagnosed first degree endo. I've tried alot to get pregnant using any method like husbend insemenation 3 times IVF 2 times but but allfai ed.I just want to know is there any hope to be a mother only for one time,God only can do so so pray for me.

C Threlfall - 06/09/00 05:57:48
My Email:Clare@netlink.com.au

Comments:
Is there a support group or further information about endometriosis near Carrum, Vic? Please contact me by email.

ChristienR - 06/07/00 14:24:28
My Email:msansone@optonline.net
Date Diagnosed: 1990

Comments:
I want to use the chat room but every time I sine in nothing happens .Please tell me if chat room is still open and if it is do I GET IN USING UNIVERAL,COM OR YOUR HOME PAGE

Alejandra Simon de Morales - 06/07/00 01:10:19
My Email:alesimon@hotmail.com
Date Diagnosed: March 3 2000

Comments:
I am from mexico and I have endometriosis, and williing to get pregnant, hope to recieve information and support soon.

Chrystal - 06/05/00 21:17:21
Date Diagnosed: 5/29/98

Comments:
I resently had a baby and just lately I started having pain as though my endo came back. I went to a doctor because I had some unusal bleeding and he said it may have came back. Should I be concerned?

Claire Hutton - 06/05/00 13:04:46
My Email:eclaireswimwear@yahoo.com
Date Diagnosed: 09/o1/99

Comments:
Nice to know there are others out there like me!!!!!!!!!!

Jeannie Walker - 06/05/00 12:08:56
My Email:ladybandit4_2000@yahoo.com
Date Diagnosed: June 1995

Comments:
I am 28 years old i didnt think i was so lucky at the time when i got pregnant at the young of 15 and then again at the age of 20 but now i know i was very blessed by god because if i had not had my children when i did i may have not been able to because f this awfull diseases i really didnt know anything was wrong untill after i had my son i started having really bad pains it was hard to even make love to my husband it hurt so bad i went to the doctor and found out i had endo and had a historectomy they eft both of my overys mine the doctor said was from the c-cections now im worred i may latter on have to have a compleat historectomy because sometimes it still hurts and also would like to know when i should have my daughter tested she is only 12 years o d she has started her monthly so should i do it now? may god bless you all Jeannie

Kimber Pittman - 06/01/00 04:06:26
My Email:kddpitt@freewwweb.com
Date Diagnosed: May 25, 2000

Comments:


T.Cole - 05/31/00 17:29:46
My Email:coletara@hotmail.com
Date Diagnosed: 1998

Comments:
Being relativly new to the disease it has been incredibly comforting to see that there is so much information and support for me.At the tender age of 21 finding myself faced with such an enigma has been very challenging.Thank-you

T.Cole - 05/31/00 16:02:31
My Email:coletara@hotmail.com
Date Diagnosed: 1998

Comments:
Being relativly new to the disease it has been incredibly comforting to see that there is so much information and support for me.At the tender age of 21 finding myself faced with such an enigma has been very challenging.Thank-you

Jenifer Casdorph - 05/31/00 06:37:43
My Email:jcasdrph@yahoo.com
Date Diagnosed: 1998

Comments:


Stephanie Puffer - 05/31/00 03:05:05
My Email:heartlinx@yahoo.com
Date Diagnosed: 3/99

Comments:
I am in the third stage of endometriosis. I've already had a laparscopy, laparotomy and my apendix removed...etc...I've gone through several hormone treatments and now...I'm just buying time. Any help you can offer would be greatly appreciated.

Jeannie - 05/29/00 17:33:02
My URL:http://www.geocities.com/HotSprings/5422/addbook.html
My Email:krahulec@skyenet.net
Date Diagnosed: October 1999

Comments:
Hi. My name is Jeannie and I'm 32 years old. Was diagnosed with stage 4 endo through laparascopy. My husband and I were trying to have children and couldn't conceive. I was devastated when my doctor told me. Since then I've been seeing a fertility doc or. He has been very understanding and helful. I was very scared of taking Lupron from everything I had heard about it but he talked to me about it more and I thought I'd try it. I have to say I am impressed with the injections so far. I have no pain nd the swelling has gone down. I get my third shot tomorrow. So I'm almost halfway through the treatment. The only symptoms I have are the hotflashes, moodiness and depression and sometimes the pain in my joints. But these are a walk in the park compa ed to the pain I had before. I am now dealing with trying to accept not having a child. I am eventually going to have to have a hysterectomy and am scared. I have always wanted a child but know that is impossible now thanks to endometriosis. I sympathize and relate to anyone who has o deal with this destructive disease. May God bless you and comfort you.

angel - 05/27/00 21:28:32
My Email:mad4eternity@msn.com
Date Diagnosed: feb.00

Comments:
at 12 i was put on the pill for cysts. i stoped at 17. found out at 23 it was endometriosis. i had sugery. i was really bad inside but couldnt take alot out cuz would have to remove eggs. i want to have kids. now i am on the pill to regulate i get period 3 times a year i would like to know if anyone is doing this thanks

Mindy Beebe - 05/26/00 16:18:07
My Email:minb2@hotmail.com
Date Diagnosed: December 99

Comments:


Siri Haston - 05/24/00 16:07:18
Date Diagnosed: not yet

Comments:
I Have all the symptoms but my mother wont take me to the doctor. Maybe this info will help her to understand. Thanks!

Sarah - 05/23/00 19:57:38
My Email:Sarahahahaha@hotmail.com
Date Diagnosed: March1999

Comments:
In my opinion, many diseases, such as endometriosis are due to food allergies... In my experience, Caffeine and dairy are major factors contributing to Endo. I have managed to reduce 90% of my chronic pain by ELIMINATING CAFFEINE COMPLETELY. I have not yet managed to eliminate dairy (it's f!@#ing hard!) but my endo pain is directly proportional to how much I consume. Dairy cows are fed hormones to keep them lactating. Endo feeds on excess hormones... do the math.

Pam - 05/23/00 04:58:53
My Email:pammysue_78@hotmail.com
Date Diagnosed: 5/97

Comments:
It is amazing to me how many women suffer with this disease. I was diagnosed when I was 18 and have suffered since I was 12. I have tried everything but the Lupron--too scared. The next step is surgery again. Any body tried any natural things that help d them? If so let me know.

lolo - 05/20/00 12:36:03
My Email:lolo_20001@yahoo.com
Date Diagnosed: 23/6/1999

Comments:
thanks for this side alot ... id like tohave afriend that know evrey thing about endo and suffer from endo like me ..thanks

Becky - 05/19/00 17:35:58
My Email:rebeccaw@bcpl.net
Date Diagnosed: 1990

Comments:


rachael - 05/17/00 03:47:01
My Email:rachaeld@macpro.com.au
Date Diagnosed: early may

Comments:
my name is rachael i am 22 years old and i am going into hospital on friday for a laparoscopy, my mum had endometriosis and had to have a hystorectomy but up until now i didn't know much about it, i would be interested in talking to someone about this con ition as i am getting different answers from both the internet and friends that have gone through the same thing.i am very scared at future motherhood!!please help

Jamey - 05/16/00 03:00:20
My Email:susy@comsys.net
Date Diagnosed: April 97

Comments:


Carol - 05/16/00 02:23:51
My Email:kcrupert@bellatlantic.net
Date Diagnosed: 08/1997

Comments:
I was diagnosed with endometriosis at the young age of 45!! It was a relief to know there was a legitimate reason for the pain and problems over many, many years.

Tanya Foster - 05/15/00 01:37:05
My Email:tonni10@flash.net
Date Diagnosed: June 1996

Comments:
I have Endo on my C-Section scar embedded in the abdominal wall. I have taken lupron,had 3 surgeries and still I have immense pain on a daily basis. Will be having another surgery soon. Love of my Family and God as my Peace of mind keep me going.

Tanya Foster - 05/15/00 01:30:44
My URL:http://tonni10@flah.net
My Email:tonni10@flash.net
Date Diagnosed: june 1996

Comments:


Dena - 05/12/00 18:14:04
Date Diagnosed: 4/24/00

Comments:


Erykah Malo - 05/11/00 01:54:58
My Email:SKIER10319@aol.com
Date Diagnosed: Sept. 1999

Comments:
I am a 16 year old with endmetriosis. I was finaly diagnosed in last oct. We always knew that was what I had, had. I have tried everything from birth control, lupron, and surgery. I just wish I could find someone that could understand my frustration.< r>
DEBBIE GRADY - 05/05/00 14:10:33
My Email:debbiegrady@peoplepc.com
Date Diagnosed: 1983

Comments:
I had hysterectomy in 1984 for endo. Now have two daughters ages 15 and 22 with disease. Are there any specialists in Greenville, NC? How can I locate a doctor who understands the disease.

Tammy Williams - 05/05/00 13:24:08
My Email:tamimike@gte.net
Date Diagnosed: 11/24/99

Comments:
I am starting lupron shots and would like some feedback from anyone who is taking this drug. I really would appreciate any help you can give. Thanks! Tammy

Deirdre Baldino - 05/04/00 01:35:35
My Email:balzee@netscape.net
Date Diagnosed: 04/11/00

Comments:


Lewanna Morley - 05/02/00 02:16:21
My Email:lewannamorley@hotmail.com
Date Diagnosed: April 2000

Comments:


Drea - 04/26/00 11:28:46
My Email:drea@alphalink.com.au
Date Diagnosed: July 99

Comments:
Thanks to all the brave women out there who have shared their stories and made some of us not feel SO ALONE! and for recognizing this disease for what it is....painful and debilitating!

Niamh Kelly (from ireland) - 04/25/00 04:05:31
My Email:Karina3000_98@yahoo.com
Date Diagnosed: 8-9 years ago

Comments:
Just to say hi to all.... and best wishes for the future.... I'd love to hear from anyone ....especially someone from Ireland

Penny Mae - 04/25/00 01:04:37
My URL:http://members.truepath.com/misswings/home.html
My Email:pennymae1@juno.com
Date Diagnosed: 4/24/00

Comments:
I'm 30 years old and single! I've had the laparoscapy to diagnose this disease. I'm totally overwhelmed. My gynecologist said that I had only three options 1) the pill 2)inject method 3)total hysterectomy. But then, those might not all work as a cure alto ether. I'm so frightened. I've read that if a hysterectomy isn't done, it can lead to breast and/or ovarian cancer. I know I'm not the only one, but I need support and don't know where to turn.

Sheena Brobyn - 04/23/00 16:18:54
My Email:sbrobyn@hotmail.com
Date Diagnosed: Dec. 28, 1996

Comments:


- 04/20/00 18:28:47
My Email:rnorman@fcpcpa.com
Date Diagnosed: 4-20-00

Comments:


Brandy Powell - 04/20/00 00:44:53
My Email:brandy.powell@csfb.com
Date Diagnosed: 1/31/93

Comments:


JODY LYNN - 04/16/00 01:34:33
My Email:JODYPASS@AOL.COM
Date Diagnosed: JUNE1996

Comments:


lola - 04/09/00 22:34:27
My Email:babiedry@aol.com

Comments:
I'm only 15 years old and I'm going to the doctor tomorrow because i might have endometriosis. It's in my family and might be on it's way passed down to me, some of my family members are almost positive i have it. I'm scared and don't know too much about t...if anyone can help me or talk to me please do! e=mail me any info that may be helpful to me if it's possible...thankyou:)

webmaster - 04/06/00 02:15:16
My URL:http://geocities.com/l_jean.geo
My Email:rlmack@gateway.net

Comments:
New additions have been made to this WebSite and your comments and suggestions are greatly needed. Thank you, Webmaster...

- 04/05/00 03:23:00
My Email:pg_99_16701_2000
Date Diagnosed: ???? about '94

Comments:
I was on several drug therapies,neither of which worked.The pain it caused me was very disabling. I had D&C after D&C done. They not only didn't work, but they often caused more pain. I was to the point of considering suicide because I was in pain constantly and the doctors I went to considered it suitable to continue tap dancing around the problem instead of solving it. I was told I had to get married and have kids before I could have sufficient care for it. I finally went to Dr. Richter who performed a hysterectomy in May of 1996. I can't remember when I felt better before this surgery. A lot of male doctors seem to think until you are 40, severe pain should be your lot in life until a man gets what they want out of you.

lolo - 03/27/00 14:49:56
My Email:lolo_20001@yahoo.com
Date Diagnosed: 10/10/99

Comments:
please send to me any information about endo - new information. which is better to do surgery osr take deca peptyle inj then do surgery??????

lolo - 03/27/00 14:47:09
My Email:lolo_20001@yahoo.com

Comments:


Andrea - 03/27/00 00:12:33
My Email:Andi_O@juno.com
Date Diagnosed: 3-97

Comments:
I was first diagnosed with "endometriosis" in '97 but was told that I probably had it for years. I have had 3 major surgeries in 2 years including a full hysterectomy and the endo is back with a vengeance! I am 28 years old now and am looking toward more urgery. Does anyone have advice?

Liesl Alli - 03/22/00 22:56:49
My Email:ALLI767@HOME.COM
Date Diagnosed: 7yrs ago

Comments:
I have been taking the pill nonstop and have had breakthrough bleeding,doctor told me to have a period and on friday take the Lupron injection. I am really scared from reading all the side effects and I feel alone because I can't find a doctor who knows ore about endo.

Sue - 03/21/00 14:44:19
My Email:suemary@core.com
Date Diagnosed: 1988

Comments:
In 88 I had a endo cyst removed with lap. in 90 3 dcs after miscarriage that got infected. Pain is very bad in lower right groin area now and I am 42 with 2 teenagers husband handicapped terminal. I need to feel good now more than ever. How do I find nd expert in the field. If the ob is endo specialist are they equipped to operate on bowel or is a colon specialist brought in. Alweays have had problems with right ovary what happens if I leave left ovary in. I have hypothyroidism as well which has ne er balanced completely right. Will a hysterectomy make thngs worse or better? Sue

Sue - 03/21/00 14:40:38
My Email:suemary@core.com
Date Diagnosed: 1988

Comments:
In 88 I had a endo cyst removed with lap. in 90 3 dcs after miscarriage that got infected. Pain is very bad in lower right groin area now and I am 42 with 2 teenagers husband handicapped terminal. I need to feel good now more than ever. How do I find nd expert in the field. If the ob is endo specialist are they equipped to operate on bowel or is a colon specialist brought in. Alweays have had problems with right ovary what happens if I leave left ovary in. I have hypothyroidism as well which has ne er balanced completely right. Will a hysterectomy make thngs worse or better? Sue

brandi chamberlain - 03/16/00 20:13:25
My Email:outlawbre@hotmail.com
Date Diagnosed: 10/96

Comments:
Hi, I am 19 years old and have had endometriosis for about 3yrs. I went to the doctors for years before they finally diagnosed me with endometriosis. Since then i have had 2 surgery's in the past year and a half and i am fixing to have number 3. They have already told me i will have a slim to no chance at all of being able to have children. I just want to be cured and live a healthy life again, but above that i want everyone to be aware that this occurs not only to older women but to young ones too. I feel for anyone who has to deal with the same pain i feel everyday. Brandi

- 03/16/00 01:08:00

Comments:


Amy Schorn - 03/15/00 23:41:27
My Email:mudpudl12@cs.com
Date Diagnosed: August 18,1999

Comments:
I was just recently diagnosed with this painful disease and am going through the Lupron therapy right now. I am getting so frustrated with this whole thing because I feel it isn't working. I will discuss surgery with my doctor tommorrow and hope that wi l help. I do want to get pregnant after that and hope that I am successful at it. I hope that I can get strong like some of these people I am reading about.

Linda Hegarty - 03/14/00 15:25:41
My Email:essential.services
Date Diagnosed: October 1996

Comments:
I fnd this an awful disease to have to cope with as I don't know anybody who has it.

LINA - 03/13/00 05:32:55
My URL:http://www.gurlmail.com
My Email:r-link@gurlmail.com
Date Diagnosed: September,1999

Comments:
MY name is lina. My age is 23. Would you give me information about therapy endometriosis because i getting therapy now. Thank you..i'm sorry is my english not good

Raquel - 03/10/00 21:47:02
Date Diagnosed: 11-99

Comments:
I have recently have discovered that this type of pain is very real to me and my life has went through a whirlwind since I've been diagnosed. I have a difficult time releaving the pain and can hardly stand on me feet for great lengths of t

Emily - 03/07/00 01:53:04
My URL:http://www.uoguelph.ca/~esavage
My Email:emily_savage@hotmail.com
Date Diagnosed: Feb 99

Comments:
This site has helped a lot... I first started having problems 3 years ago. After going to numerous doctors trying to figure out why I had cramps ALL the time (the diagnoses ranging from ovarian cysts to "needing to empty the bowels"!!!)I finally found a doc who thought a laporoscopy w uld be good. At 20 years of age, all I had ever been certain of was my desire to be a mom. The thought of infertility made me so depressed. A very close friend of mine had to have a full hysterectomy due to endo at 35 years of age. I was terrified to thin that that could happen to me! The lap confimed the diagnosis of endo, with treatments of birthcontrl pills (2 a day, every day!!) seems to have helped a little. Lupron is looming in the future, as my doc wants to help me in any way he can. Thanks for the account of the Lupron. It is also reassuring to know that there are other young women suffering from this aswell.

MELODIE DENEEN - 03/05/00 00:33:15
My Email:melodie_d_1999@yahoo.com
Date Diagnosed: july 1999

Comments:
I HAD A HUGE CYST ON MY RIGHT OVARY. WENT IN FOR SURGERY HAD AN OVARY AND TUBE REMOVED AND WHEN I WOKE UP WAS TOLD I HAD VERY BAD ENDOMETRIOSIS AND WOULD NEED TO TAKE DEPO SHOTS TO HELP KEEP IT DOWN WHAT A NIGHTMARE. I ENDED UP FINDING MY OWN NATURAL WAY OF DEALING WITH IT WITH VITAMINS, IS STILL PRETTY NEW BUT SO FAR SO GOOD NO REAL PROBLEMS.

Indira Luciano Montalvo - 03/02/00 18:36:17
My Email:inlumo@yahoo.com
Date Diagnosed: february-2000

Comments:
I was diagnosed with endometriosis a month ago and I didn't know anything about this disease. I have learn a lot about endo in the Internet. Thnk you for the help.

Holly - 02/27/00 18:39:04
My Email:HLee78@yahoo.com
Date Diagnosed: Feb. 97 (age 17)

Comments:


peggy - 02/24/00 19:51:39
My Email:peggysue@idirect.com
Date Diagnosed: jan 29, 1999

Comments:


Shelia Enders - 02/21/00 19:00:18
My Email:SEnders@hotmail.com
Date Diagnosed: 1999

Comments:
This page is really great. It had good links that I found helpful - Thanks