Marianne McGee - 11/13/00 03:10:16
My Email:mcgee@vermontel.net
How did you find the Adult CVS Website?: was aware of
Do you or someone you know have CVS?: me
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes

Comments:
I've suffered since I was 5. Was diagnosed 7 years ago. Either because of the medical help I sought for my own denial I haven't done much to get better in that time. I really need to get my life together, or have one and need to find medical help that will help. I know I am not crazy. Does anyone know of a doctor within New England, New York that will help me without questioning or making me take all those tests again. I live in Killington, Vermont. I have neither the time or money to convince someone what is wrong with me, probably not the patience either. If anyone can help please e-mail me. Thank you and thanks for offering this forum.

Antje Robinson - 11/12/00 15:35:39
My Email:antjerobinson@hotmail.com
How did you find the Adult CVS Website?: surfing
Do you or someone you know have CVS?: me and my mum, I think
Would you like to have the Adult Co-ordinator email you?: yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
I am so glad to have found this site. I have been suffering from nausea and vomiting for about 12 years (guess) and feel fine in between attacks. The attacks have become more regular (every 8-14days) just wake up slightly earlier than normal, ca.6am and h ve a funny feeling in my head and neck. I then know that I will have to spend the day in bed or otherwise vomit at work, in the car, wihtout being able to control it. Now I am taking Vomex A which my mum recommended.It keeps the vomiting at bay but I stil feel nauseous, need to lie in bed in silence and without anybody around me. I sleep for about 34 hours in all and then I am back to normal. Is this CVS? I have just resigned from my job because I missed so many days of work and thought the stress may be a trigger. Now at home I still suffer from attacks. Is this CVS??? And what can I do to stop this. Life is not much fun when you are waiting for your next attack.

Janet Stein - 11/08/00 00:07:32
My Email:antj2@aol.com
How did you find the Adult CVS Website?: under chronic vomiting
Do you or someone you know have CVS?: my 23 year old son`
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
My son was born with a pyloric muscle spasm and would like to know if anyone has the same thing and if this can be a cause of cvs. He started projectile vomiting when he was 10 days old and continued off and on for 18 months. He stopped vomiting althoug he always had a weak stomach. Three and a half years ago he started with episodes of this violent voniting that would last for days on end. He winds up in the hospital for IV's and shots of demerol. Compazine, valium and all the other drugs don't help at all. Hot showers make him feel better but they don't stop the vomiting. Please e-mail me if you can give me any information about the pyloric muscle spasm. Thanks and good luck to everyone. Janet

Mohammad Ali - 09/06/00 14:28:09
My Email:zas@isb.compol.com
How did you find the Adult CVS Website?: Through Doctoc At Shifa Hospital, Islamabad, Pakistan
Do you or someone you know have CVS?: My Self
Are you a professional seeking more information about CVS?: Yes
Would you like to have the Adult Co-ordinator email you?: Yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): Yes

Comments:
I have no question but I must say that the association has done a lot to help people effected with this disease including me. Thanks. Mohammad Ali. Islamabad, Pakistan.

Mary Cregg - 07/11/00 01:47:53
My Email:mecc@baldcom.net
How did you find the Adult CVS Website?: just stumbled upon it
Do you or someone you know have CVS?: I have been diagnosed.

Comments:


Erla - 06/20/00 15:13:00
My Email:erlasv@strik.is
How did you find the Adult CVS Website?: link from CVS
Do you or someone you know have CVS?: my son

Comments:


John Whitmer - 06/15/00 17:18:42
My Email:john.b.whitmer@l-3com.com
How did you find the Adult CVS Website?: medlineplus
Do you or someone you know have CVS?: myself

Comments:
I have been trying to hide it for years. I didn't realize that other people have this.

Misty Robinson - 06/08/00 02:25:51
My Email:jamist99@gateway.net
How did you find the Adult CVS Website?: surfing the net
Do you or someone you know have CVS?: yes
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
I have recently discovered that this syndrom isn't in my head and I'm not crazy after all. I have had this illness for about 4 years and I've been treated and tested for everything. I really would apreciate it if someone would let me know I'm not alone ut there and there are others that have the same thing I do. I am 23 years old and this CVS stuff sucks. I hate it and it is so stressfull to know at any given time I could get sick again. I know that it is certainly hard on my family and my friends bu they've been very supportive. I do have some rather strange side affects to share and maybe others have experienced them as well. I want to take showers! wierd huh? Ya and the hotter the better and lots of them. It helps the nausea to subside I gues . I also don't want to talk to any one. Nor do I want them to talk to me. The talking makes the nausea worse. Is that normal? I also have the urge to guzzle liquids after I vomit. I know the doctors say to sip but I can't. I've been on so many meds nd I found that I'm alergic to phenergan and compazine. Bummer! I also am on Zofran and reglan Paxil and Trazadone. I sure hope it works and good luck to all of those who are experiencing this syndrom also and thank you to those who are there to comfort them. We appreciate you even though you may not hear it.

Misty Robinson - 06/08/00 02:14:49
My Email:jamist99@gateway.net
How did you find the Adult CVS Website?: surfing the net
Do you or someone you know have CVS?: yes

Comments:


Roberta Eisenberg - 06/01/00 16:49:46
My Email:timetogo@empire.net
How did you find the Adult CVS Website?: surfing the net for info
Do you or someone you know have CVS?: my 19 y.o. daughter
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
A pediatric gastroenterologist diagnosed my daughter w/abdominal migraines. He assured us after 3 years of searching that it was not a psychological problem or an eating disorder. However, the medical staff in the hospital refused to concur. Our daught r was "written off" as a mental case. In retrospect, she always had symptoms of CVS. As an infant she had projectile vomiting and as she grew older she would often experience a feeling of "fullness" and nausea. She has scoliosis and at 16 y.o. was diag osed with ovarian cysts. She began taking birth control pills to "shrink" the cysts. (At this time, she has been told that she again has two large ovarian cysts - 3rd time in 3yrs.) After taking the pill she began vomiting violently and losing weight. An endoscopy revealing H-Pylori bacteria present, upon return from a H.S. Art Trip to Europe, was ignored. Instead, a sludge-filled thickened gall bladder was removed. Finally an antibiotic regimen cured the bacteria. Throughout this time, she was having episodes of vomiting, struggling to put on some weight, and being told by the doctors "it's in your head". So we took her to a psychiatrist specializing in teen problems. He confirmed she does not have an eating disorder. So we went to another, who rec nfirmed that it is not in her head. Finally, a nurse told me to trust the diagnosis of abdominal migraines; since, according to her, my daughter displayed classic symptoms of cyclic vomiting syndrome. So I went home and searched the net all night. Than fully I found this website, e-friends, and a great doctor. Now my daughter has been removed from the incorrect medicines and is receiving the proper treatment: Reglan before meals (a simple gastric-emptying test showed her stomach to be 97% full 2 hrs. fter eating) / Amitriptylin before bed (to aid in sleep and as an anti-migraine dosage) / Prilosec (to control the severe acid relux). It's only been a couple of weeks but the results are amazing. She is now entering the luteac phase of her menstrual cy le so we are watching for the onset of an attack. Last month was the first time we were aware of the relationship and it proved positive, unfortunately. I hope this info helps someone else and am willing to be in contact with anyone who needs to "talk". br>
Ann Harvey - 05/30/00 21:34:31
My Email:jharvey@megalink.net
How did you find the Adult CVS Website?: surfing for answers to husbands illness
Do you or someone you know have CVS?: yes
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): Jim is using prozak, has this worked for others

Comments:


Mary Baluss - 04/17/00 18:55:29
My Email:mbaluss@yahoo.com
How did you find the Adult CVS Website?: sheer blind luck--researching medical issue for legal case
Do you or someone you know have CVS?: My 18 year old daughter's symptoms seem to fit the profile.
Would you like to have the Adult Co-ordinator email you?: with bulletins

Comments:
My daughter's third major episode (about a week) of acute nausea and vomiting has just ended. Nights in the ER for rehydration and pain control and just horrible days. She's had almost every possible test and all are normal. No food allergies per test, although we know those are not complete. Well, now we have a label, which is a little reassuring along the "misery loves company" line. More important, what do we do about it? mb

deb - 04/17/00 04:20:57
My Email:deb@zaret.com
How did you find the Adult CVS Website?: internet search
Do you or someone you know have CVS?: yes
Are you a professional seeking more information about CVS?: yes
Would you like to have the Adult Co-ordinator email you?: yes

Comments:
I am a doc looking for additional treatment that might help a patient who has a BAD case of cyclic vomiting. He has already tried zofran, inderal, imitrex, amitryptiline, reglan, biofeedback, and fentanyl patches, but is still having hospitalizations 2-3 times/MONTH. He would appreciate any help! Thanks.

Amanda Pellett - 03/26/00 04:26:58
My URL:http://www.angelfire.com/il/domicileofcrazyjoon/
My Email:crazyjoon@rocketmail.com
How did you find the Adult CVS Website?: From the CVSA site
Do you or someone you know have CVS?: I have it.
Are you a professional seeking more information about CVS?: No.
Would you like to have the Adult Co-ordinator email you?: No.
Do you have additional questions about adult CVS? (Please ask in the comment section below): No.

Comments:
I have suffered from CVS since I was 2 years old, and I am now 18. When I was 10, the episodes became very severe, occuring as often as twice a month, and frequently causing hospitalization. I abruptly got completely better, and didn't have any episodes until I was 17. And I have now had five episodes since then, two of which have hospitalized me. It is very difficult, thinking I had overcome this disease, only to have it come back again.

Becky Kuszmaul - 02/21/00 15:03:47
My Email:snoopy34@aol.com
How did you find the Adult CVS Website?: searching
Do you or someone you know have CVS?: my 16 yr. daughter
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: okay
Do you have additional questions about adult CVS? (Please ask in the comment section below): many??????

Comments:
My daughter, 16 has recently been diagnosed with Cyclic Vomiting syndrome, (they think). She has had two vomiting episodes since January 1. She has had no history of these kind of symptons before. Both times she was hospitalized for severe dehydration nd it took a week before she could keep anything down. She first got sick and threw up her dinner and the vomiting just didn't stop. She has been through all kinds of tests for all kinds of things and every test has shown nno problems. She has taken Zo ran, Reglan, and Phenagrin and now is taking elavil hopefully to prevent another episode. The primary care doctors want her to see an OB/GYN. I couldn't imaging why?????? They said these "vomiting spells" may be related to her menstrual cycle. ANyone lse heard of this??? She has missed 16 days of school in 2000 so if she wasn't stressed before she will be now with all that work to make up!!!! I'd be interested in hearing from anyone whose situation sounds similar. We're frustrated!!!!

Becky Kuszmaul - 02/21/00 14:55:38
My Email:snoopy34@aol.com
How did you find the Adult CVS Website?: searching
Do you or someone you know have CVS?: my 16 yr. daughter
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: okay
Do you have additional questions about adult CVS? (Please ask in the comment section below): many??????

Comments:


Joy Kretsinger - 02/11/00 18:38:27
My Email:kret10@aol.com
How did you find the Adult CVS Website?: AOL
Do you or someone you know have CVS?: Husband
Are you a professional seeking more information about CVS?: No

Comments:
My husband is 58 years old and has had CVS for the 36 yrs of our married life. We found out about CVSA in January of 1999. It really helps me to be able to talk to other people who understand how awful this. We have been through alot over all these years nd can maybe answer some questions. Our Drs.are working close with us.

Oliver Sylvester - 01/11/00 14:20:32
My Email:olliestar@yahoo.com
How did you find the Adult CVS Website?: Surfin'
Do you or someone you know have CVS?: Yup, Me!
Are you a professional seeking more information about CVS?: Nope!
Would you like to have the Adult Co-ordinator email you?: yes please!
Do you have additional questions about adult CVS? (Please ask in the comment section below): Yup!

Comments:
Hey Guys and gals! I've had this illness for the last 8 years, bit of a bummer! Attacks come once every 3-4 months and last for about 36 hours. I'm at Exeter Uni (UK) at the mo studying Economics and Politics. I've found no effective drugs to conquer this illness, however ince being at uni, I've been alot less stressed and have only had one attack in 5 months, I'm pretty impressed with myself! If anyone has any suggestions feel free to email me! Also I heard the illness may develop in migraines, is this so, as I've recently been getting some pretty bad headaches, only short, but there like daggers in my head! Is this true?

Amey Davis - 12/21/99 20:03:49
My Email:Amey@cahf.org
How did you find the Adult CVS Website?: surfing
Do you or someone you know have CVS?: yes, my husband
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: YES!
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
Help! My husband has very similar symptoms to CVS, but has never received a diagnosis. For the past 3 years, he has had recurrent episodes of nausea and vomiting, that seem to have differnent triggers at different times. Sometimes, it seems like stress br ngs it on. Other times it's because he wants to eat fast food at 11:00 PM! - Of course, he only does this when he is feeling better and is really hungry! Tim ate a "bad" piece of meat which gave him food poisoning about 3 years ago and was violently ill the next morning. Since then, he has had recurrent bouts of vomiting and nausea. He has lost about 60 pounds and has a difficult time gaining weight back. e has seen 4 different GI specialists and his primary care Dr. SUCKED! No one had time enough to really figure out what was going on with him. His current Dr. is a lot more kind, and willing to try various meds. Tim has had all the tests possible: blood w rk, CAT scan, MRI, upper and lower GI, stool samples, 2 endoscopies and 1 colonoscopy. All of which turned up ZIP! Has has been on compazine, zofran, taigan and various other anti-emetics. None of which did much. It would seem like they were working and then all of a sudden he would get another episode. Now he takes anti anxiety meds and muscle relaxants and tranquilizers so he can sleep. If anyone would like to give me some hope or help both Tim and I would greatly appreciate it!!

marilyn thomas - 11/15/99 16:46:18
My Email:sokah86@hotmail.com
How did you find the Adult CVS Website?: browsing the net
Do you or someone you know have CVS?: maybe
Are you a professional seeking more information about CVS?: no, a parent
Would you like to have the Adult Co-ordinator email you?: yes please
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
My daughter is 16 yrs old. She has been vomiting about 6 weeks ago. She also has scoliosis which the Ortho. Surgeon will correct next year. He does not think that the vomiting is related to the scoliosis. So I took her to a Stomach Doctor, but the tre tment is not working and for her to eat and not vomit, she takes Gravol 100ml every 12 hrs. Please help me. Does she have CVS??? Thanks in advance

Janine Croskey - 11/10/99 11:33:46
My Email:j9key@aol.com

Comments:


Allison - 11/05/99 01:44:12
My Email:akay33@aol.com
How did you find the Adult CVS Website?: Surfing for hope
Do you or someone you know have CVS?: myself
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes

Comments:
I am a 34 year sufferer that is so relieved to find a place to talk with others with CVS. I just go out the hospital again last night. Last episode also requiring hospitalization was in April. Blue Cross attached a ryder on entire gastro system, and wo 't pay for my episodes. So a disease brought on by stress, adds more stress. Vicious Circle. Does anyone else only seem to find relief in taking multiple hot showers or baths?

Paul Campbell - 11/04/99 11:16:38
My Email:helencam@powerup/com.au
How did you find the Adult CVS Website?: Aust CVS Association
Do you or someone you know have CVS?: yes me
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
What are other people taking to control attacks of Vomiting. I was recently given Zofran , which did pretty well nothing .I vomitted for 4 days straight. In the end I asked the doctor for Pethidine ,as this is the only thing that seems to work for me, but of course they are hesitant to give me this form of treatment. My wife and I are taking solace, in the knowledge that we are not alone.

Paul Campbell - 11/04/99 11:13:46
My Email:helencam@powerup/com.au
How did you find the Adult CVS Website?: Aust CVS Association
Do you or someone you know have CVS?: yes me
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
What are other people taking to control attacks of Vomiting. I was recently given Zofran , which did pretty well nothing .I vomitted for 4 days straight. In the end I asked the doctor for Pethidine ,as this is the only thing that seems to work for me, but of course they are hesitant to give me this form of treatment. My wife and I are taking solace, in the knowledge that we are not alone.

Pat Szuba - 11/02/99 01:34:25
My Email:Pmarie75@aol.com
How did you find the Adult CVS Website?: search engines
Do you or someone you know have CVS?: yes, only the called them abdominal migraines
Are you a professional seeking more information about CVS?: no
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
My 11 year old son had, up until recently, more migraine headaches, then abodminal episodes. (he also has asthma and allergies and seems to have more migraines during his allergy season) Are they normally treated with the same meds? I've given him Phene gan and oral Imitrex. It doesn't always help, and when it does, I don't know if it's just coincidence that the episode is over.

SCOTT KOHR - 10/21/99 06:28:47
How did you find the Adult CVS Website?: SEARCH
Do you or someone you know have CVS?: YES
Are you a professional seeking more information about CVS?: NO
Would you like to have the Adult Co-ordinator email you?: NO

Comments:


Sharron Royalty - 10/16/99 02:33:29
My Email:tlwr@netdoor.com
How did you find the Adult CVS Website?: by looking for info on Sjogren's Syndrome
Do you or someone you know have CVS?: I seem to have the symptoms
Would you like to have the Adult Co-ordinator email you?: yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
I misprinted my e-mail address. It is corrected on this sign in. How do you get this diagnosis?

Sharron Royalty - 10/16/99 02:12:19
My Email:tlwr@netdooe.com
How did you find the Adult CVS Website?: by looking for info on Sjogren's Syndrome
Do you or someone you know have CVS?: I seem to have the symptoms
Would you like to have the Adult Co-ordinator email you?: yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
Are there many adults with this problem. My doctor just tried me on scolamine patches. Sometimes, if I feel like I might be getting sick, I put a patch on. It does not always work and it does not stop the nausea. If caught in time it does stop the act al vomiting. However, the nausea is still almost like dying.

- 10/08/99 19:06:49

Comments:


Kate Hart - 09/29/99 01:07:34
My Email:hart@wcf.net
How did you find the Adult CVS Website?: searched
Do you or someone you know have CVS?: yes, myself
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
After reading thru most of these stories, I do not see anybody doing the course of treatment that I am doing. I have gone thru everything, including two week hospital stays, until I started to see an OBGYN that specializes in problems. She has put my life back to 95%- something I never thought would happen. I have seen everyone and been thru all the worst physical aspects of this until meeting Dr. Gloria Halverson, Waukesha WI. Write if you want more info.

S. Raymond - 09/20/99 09:39:56
My Email:Rengades@bigpond.com.au
How did you find the Adult CVS Website?: My specialist gave me the address
Do you or someone you know have CVS?: I have suffered for over 30 years
Are you a professional seeking more information about CVS?: No
Would you like to have the Adult Co-ordinator email you?: Yes please

Comments:


Janine Croskey - 09/19/99 02:49:04
My Email:j9key@aol.com
How did you find the Adult CVS Website?: looked up vomiting
Do you or someone you know have CVS?: my daughter
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes

Comments:


Terry Shannon - 09/12/99 03:14:45
My Email:pfaffe@netzero.net
How did you find the Adult CVS Website?: Have know about it for a long time
Do you or someone you know have CVS?: Son
Are you a professional seeking more information about CVS?: No, was just updating myself on what was going on now
Would you like to have the Adult Co-ordinator email you?: no, unless they want to talk, have questions regarding CVS, my son Aaron, is 22 years old

Comments:
Love this new forum. I haven't been in touch lately as seemed to not have alot in commom with other parents(other than CVS), as thier children are younger.

Barbara L. Jones - 09/09/99 21:30:32
My Email:barbarajones@the-cia.net
How did you find the Adult CVS Website?: Doctor suggested the internet
Do you or someone you know have CVS?: I do
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yea
Do you have additional questions about adult CVS? (Please ask in the comment section below): Yes

Comments:
I want to know if there are any new medications on the market that have been approved for use in CVS sufferers. I have been ill for 10 years, but only got a diagnosis in July, 1999. The medications that have been prescribed for me do not work but about 0% of the time, so if they don't, it's off to the ER, and sometimes I am admitted overnight to controll the pain and vomiting.

Lisa - 09/09/99 17:28:58
My Email:sunnysky@netcom.ca
How did you find the Adult CVS Website?: regular cvs page
Do you or someone you know have CVS?: my daughter
Are you a professional seeking more information about CVS?: no
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
I was wondering if anyone has had any dealings with Dr. Tougas at Mcmaster hospital, hamilton, Ont. Canada. I am trying to get doctor to make an appointment with him. I have heard that he is very understanding from one women and then a nurse told me she h s a patient that he told her her illness was pshycosamatic. I am looking for a doctor who will treat my daughter's illness as a physical one. We have been to top pshyciatrists who feel this is a physical issue. I do not want to see her put down or dissapp inted again. Thanks Lisa

Barbara Jones - 09/08/99 15:16:57
My Email:barbarajones@the-cia.net
How did you find the Adult CVS Website?: My doctor suggested to me that I get on the internet so that I could keep up with the latest on CVS>
Do you or someone you know have CVS?: I do. I have had it for 10 years, although I was fust diagnosed in July, 1999.
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
I would like to know if there are any new medications on the market that have been successful at shortening or aborting the episodes? I was diagnosed on July 16, 1999; I have been ill with this for 10 years. I am a 49 year old female. If there is anyone my age out there with CVS who would like to talk about it, I would be more that happy to correspond with you.

George Schuler - 08/25/99 15:47:06
My Email:Geoaudio@aol
How did you find the Adult CVS Website?: searched
Do you or someone you know have CVS?: I am a adult with CVS
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): not at this time

Comments:
I'm 44 and have suffered with CVS for 30 years. I'm glad to find Adult CVS Website!!!!!

Bob DiGregorio - 08/18/99 16:11:19
My Email:DiGregorio@mail.dec.com
How did you find the Adult CVS Website?: Surfing the net
Do you or someone you know have CVS?: My Son Has It
Would you like to have the Adult Co-ordinator email you?: yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
My son who is 24 years old first started having episodes 4 years ago. We have gone the "full" route of testing and Dr's etc. We are currently in the care of a DR. at Lahey Clinic In Burlington MA. The Dr. has been very reluctant to "recognize" CVS, and in fact until confronted with info we pulled off theseweb pages he never even mentioned it. We are looking for someone in our area that understands and treats patients with CVS. Progress o date with our current DR. has been VERY slow and non-effective. We have lost confidence in him and are seeking another Dr. Any help would be greatly appreciated....Thanks.Bob

Bob DiGregorio - 08/18/99 16:10:56
My Email:DiGregorio@mail.dec.com
How did you find the Adult CVS Website?: Surfing the net
Do you or someone you know have CVS?: My Son Has It
Would you like to have the Adult Co-ordinator email you?: yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
My son who is 24 years old first started having episodes 4 years ago. We have gone the "full" route of testing and Dr's etc. We are currently in the care of a DR. at Lahey Clinic In Burlington MA. The Dr. has been very reluctant to "recognize" CVS, and in fact until confronted with info we pulled off theseweb pages he never even mentioned it. We are looking for someone in our area that understands and treats patients with CVS. Progress o date with our current DR. has been VERY slow and non-effective. We have lost confidence in him and are seeking another Dr. Any help would be greatly appreciated....Thanks.Bob

Karen - 08/11/99 12:27:00
My Email:kkool218@webtv.net
How did you find the Adult CVS Website?: Web search
Do you or someone you know have CVS?: yes
Are you a professional seeking more information about CVS?: yes and no
Would you like to have the Adult Co-ordinator email you?: yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
My name is Karen and I have had numerous tests done to find out why I hve lost almost70lbs and keep vomiting and have severe abdomial pain... My GI MD stated he was stumped and to go see my primary MD.. who is also clueless.. I have read some info on CVS and need to know more. I can't eat or drink fluids without nausea or vomiting. I have tried several meds. and they don't seem to help. I'm practically suicidal at this point.... I'm too weak to go back to work..I am nurse and need to know more for myself and potential CVS sufferers. Any HELP would be appreciated. Thanks kkool1

merlin@caltel.com - 08/11/99 00:05:27

Comments:


Claire Rosenbaum - 08/08/99 01:12:50
My Email:Claire_Rosenbaum@juno.com
How did you find the Adult CVS Website?: CVSA
Do you or someone you know have CVS?: my sixteen year old daughter
Would you like to have the Adult Co-ordinator email you?: yes

Comments:
My 16 year old daughter started episodes of vomiting about 2 years ago. At first they were about four times a year. This past spring they increased to several times a month as frequent as five days apart sometimes. The episodes seem very much like the d scription of CVS. Her neurologist suspected that this is what we were dealing with. However, she said that the vomiting profile tends to accur in children and then change to migraine headaches aafter puberty. Whereas, my daughter never had vomiting or igraines until tha vomiting started around thirteen. We have gone through a lot of tests to rule out other things: GI problems, seizures, other neurological anomolies. My daughter has significant mental retardation and features that indicate a probable enetic syndrome, but none that has yet been identified. With her vomiting, a Compazine suppository seems to make the episode less prolonged and violent, but doesn't stop it altogehter. Other preventative medications are not indicated because of the Rita in and Clonidine she already takes for her impulsivity. I was interested to hear that other adults do experience CVS because that was the only hesitation for her Doctors in assigning the diagnosis to Hannah -- that she was "too old for the profile."

Kristin Pallas - 08/03/99 16:18:48
My Email:KEP524@aol.com
How did you find the Adult CVS Website?: CVS home page
Do you or someone you know have CVS?: I do
Are you a professional seeking more information about CVS?: No
Would you like to have the Adult Co-ordinator email you?: Yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): Yes

Comments:
I was diagnosed at the Mayo Clinic in Rochestor in 1989. I had a few hard years living with CVS, but have kept myself in good spirits & have never gotten depressed from having it. Even though at times it can be a hard thing to live with! I've been married for 7 years & have 2 healthy boys. I had hard pregnancies, but both sons were healthy. When I was diagnosed I was one in a handful of people who were actually diagnosed with CVS, so I'm shocked to discover all this info on CVS now! My oldest had a spell hen he was 4 & was in the hospital over night, but has been fine since. I take zofran when I feel an attack coming on & it helps alot! Feel free to email me, I want people to know that there is hope & you can get better! I like to think that I've overcome this horrible thing!

janine croskey - 07/29/99 13:27:36
My Email:j9key@aol.com
How did you find the Adult CVS Website?: email form listserver
Do you or someone you know have CVS?: yes
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes

Comments:


Kathy Dennehey - 07/29/99 11:06:03
My Email:kadennehey@aol.com
How did you find the Adult CVS Website?: Yahoo
Do you or someone you know have CVS?: I think I do
Are you a professional seeking more information about CVS?: No
Would you like to have the Adult Co-ordinator email you?: Yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): Yes

Comments:
How hard is it to diagnose? I've been having recurring episodes of morning sickness for approximately two years and have found now cause. I've undergone several tests and I'm perfectly healthy. I don't vomit for long, once maybe twice in the morning, bu it lasts 3-4 days and I feel miserable throughout the episode. Any information I can get would be helpful.

Eleanor Beckwith - 07/27/99 02:38:39
My Email:www.beckwithellie@hotmail.com
How did you find the Adult CVS Website?: by looking up "vomiting"
Do you or someone you know have CVS?: no
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes

Comments:
My husband is a prostate cancer survivor (13yrs) this past year he has been having bouts of vomiting steadily every month almost to the day. He would vomit all night, and rest the next day, and then return to normal. We have been blaming it on his medica ion, as he has and still is on lupron ( a very powerful female hormone ) which can have vomiting as a side effect. But since he has been on this for years with no apparent side effect like this, possibly it could be this CVS. I just happened upon this s te on the web, and see that the symptoms are the same as every one is claiming. His Oncologist and Urologist can't understand this vomiting on a regular basis at all. Could this appear out of the blue with no other explanation? Thank you for your help. Sincerely, Eleanor Beckwith.

andee Stein - 07/23/99 23:07:11
My Email:andee41@hotmail.com
How did you find the Adult CVS Website?: I was trying to find out more about this and found this was one of the only useful pages that I was able to find on the web
Do you or someone you know have CVS?: We are trying to figure out if I do
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes please
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
I am 22 years old. I have been having my "vomitting episodes" for as long as I can remmeber. It has always been associated with anxiety or stress, and at one point, after a year of counseling, I felt that I was able to control this. I never inderstood hy this happened, and still do not know if in fact it is CVS. I am in the process of having some blood work and other tests done. It is comforting to read some of the comments on the web page. However, I am very confused as to whether my syptoms actual y match up with CVS. There are times that I can come out of an episode after a few hours like nothing even happened, and there are times that I need to be hospitalized. It is something that I have ben struggling with for such a long time, but something hat I have always thought I could control if I just learned how to relax enough or distract myself during the episodes. Having this mentioned to me by my psychologist and a gastrointestnal specialist is comforting in a sense, but at the same time, it har to know if what I have can be defined as CVS. I was just wondering if someone that suffered from this could related to these feelings or had any helpful hints for trying to figure this out. The web page was so helpful, so I thank you for that. It has iven me a feeling fo hope that has been lost for so long, and without hope, I live in fear of my next episode.

Mykie Morneweck - 07/20/99 20:03:47
My Email:Mykie_Morneweck@yahoo.com
How did you find the Adult CVS Website?: by chance
Do you or someone you know have CVS?: I think I do
Would you like to have the Adult Co-ordinator email you?: yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
Approximately once a month or so I experience severe abdominal pain and then begin unstoppable vomiting. My doctor has tested everything possible but to no avail. He has mentioned intestinal migraines. My story sounds much like the ones I have just rea on the guestbook postings with the exception of the severe pain. I wonder if any of you could help me. Do any of you experience severe abdominal pain with these episodes. This has been going on for about a year and a half. My husband and I want a fam ly but doc says no until we figure this all out. Please help!

Gwen Richardson - 07/17/99 14:59:55
My URL:/cgi-bin/geoplus-apps/ans-entry
My Email:grr@dixie-net.com
How did you find the Adult CVS Website?: going to adults
Do you or someone you know have CVS?: yes
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
I am Gwen Richardson I suffer from this Cycle vomiting since around 6yrs old i take Riopanplus levisin bentyl mixture phengeran 20 mg zantac 75mg and librax i am back on librax i have also taking librium how do you get tested and what kind of doctor do ou need I live in Ripley Mississippi38663 what doctors in Ripley would you go to Gwen Richardson 186 Moores Mill RD. I need more infromation i am not able to work that is how it affects me i am disable since i took aleave in 1987 and then got disable in 1990 please email me Thank you Gwen Richardson

James Hamlet - 07/14/99 18:18:21
My Email:dstra@loc.gov
How did you find the Adult CVS Website?: ask.com
Do you or someone you know have CVS?: my spouse
Are you a professional seeking more information about CVS?: yes
Would you like to have the Adult Co-ordinator email you?: yes

Comments:


Barbara Ploumen - 07/09/99 03:17:05
My Email:BurpLou@aol.com
How did you find the Adult CVS Website?: my sister

Comments:
Just needing to know more ....think I am a sufferer......

jason briggs - 07/02/99 23:39:25
My Email:animalworld@mindsprings.com
How did you find the Adult CVS Website?: searched the NET
Do you or someone you know have CVS?: I do
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes

Comments:
This comment is from Ed, Jason's dad, We are at a loss finding a doctor that can help Jason. He is 24 years old, has had CVS for 5 years and is suffering terribly with it. He is a strong young man, thankfully, but has lost 4 jobs and a fiance' as a result of the ailment. He just came back o us from Huntington Beach Ca. He lost his job which he loved and just felt he couldn't make it on his own. He wants despirately to do well in life and of course get rid of this devistating ailment. Possibly, hearing from you will lift his spirits. He s currently sick and cannot go more than 2 or 3 weeks without recurrance. Thank you for listening, Ed Briggs

Deborah Daboub - 07/01/99 19:45:49
My Email:s_daboub@twu.edu
How did you find the Adult CVS Website?: CVS Association
Do you or someone you know have CVS?: My son, 30 yrs old
Are you a professional seeking more information about CVS?: Yes
Would you like to have the Adult Co-ordinator email you?: Yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
My 30 yr old son started having vomiting episodes two years ago; there was no apparent trigger. There is no family history of CVS or migraines. He was diagnosed after about 6 months of visits to the ER and several specialists. He is currently taking Elav l every night and Zofran when an episode begins to try and stop the vomiting. So far this does not appear to be working. He is still having episodes every 2-3 months. I am interested in any information about medications, diets, etc. which have worked or others. Thank you.

Cheryl K - 06/30/99 04:02:11
My Email:ckilvington@earthlink.net
How did you find the Adult CVS Website?: searched abdominal migraine
Do you or someone you know have CVS?: I do
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
After much medical testing, always with negative results, a 2nd opinion offered the idea of abdominal migraine. This doctor prescribed compezine for nausea and darvecet to make me sleep during an episode. I haven't tried this yet; still waiting for my nex episode. Anyone else try this?

- 06/20/99 05:50:15

Comments:


Kimberly Mistysyn - 06/18/99 14:49:46
My Email:kmistysyn@cpso.on.ca
How did you find the Adult CVS Website?: search engine
Do you or someone you know have CVS?: myself
Are you a professional seeking more information about CVS?: non-professional
Would you like to have the Adult Co-ordinator email you?: already has.

Comments:
I may appear on this board twice because I forgot my comments the first time. I am a 29 year old woman who has had abdominal migraines for the last going on 5 years now. I was just diagnosed a few months ago. Happy to have a name for it and groping at s raws to link with people who share my experience. My epsiodes last about 12 hours every two months or so. As long as my stomach is empty, I do not vomit at all. The strangest thing for me is that I do not come from a family with migraine history. Eithe I'm the first, or even this diagnosis is incorrect. But all my tests are perfect and I'm fine between bouts. Feel free to email me if you want to share stories.

Kimberly Mistysyn - 06/18/99 14:00:29
My Email:kmistysyn@cpso.on.ca
How did you find the Adult CVS Website?: serach engine
Do you or someone you know have CVS?: I do. Abdominal migraine.
Are you a professional seeking more information about CVS?: non-professional
Would you like to have the Adult Co-ordinator email you?: already has.

Comments:


Lynn Degen - 06/16/99 13:53:24
My Email:KB9DK@aol.com
How did you find the Adult CVS Website?: cvs assoc.
Do you or someone you know have CVS?: son age 35
Would you like to have the Adult Co-ordinator email you?: yes

Comments:
Hello! My name is Lynn. I have a 35 yr old son that is having a real hard time with cvs. We are trying to get help on meds and wondering what works if anthing. Thanks for any info.. Also does anyone know of dr. in Chicago area that is up on cvs? Tha ks

Jim McCracken - 06/03/99 18:27:01
My Email:mccraacke@umr.edu
How did you find the Adult CVS Website?: web search
Do you or someone you know have CVS?: yes - daughter
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: no
Do you have additional questions about adult CVS? (Please ask in the comment section below): no

Comments:
My daughter suffered with CVS for about 4 years before I got mad at the pediatric doctor and demanded to have a specialist referred. I feel very lucky to have been referred to Dr. David Fleisher in Columbia, Mo. He is great.

Mary Emmerling - 05/24/99 01:34:23
My Email:memmerling@telis.org
How did you find the Adult CVS Website?: through the listserv
Do you or someone you know have CVS?: I am a mother and on the cvs board
Are you a professional seeking more information about CVS?: no thanks i have her mail

Comments:
I am so glad we have the www. It has helped so many of us with info and support.

Geri Gotaas - 04/28/99 18:36:12
My Email:ggotaas@muskegon.k12.mi.us
How did you find the Adult CVS Website?: Surfing re CVS
Do you or someone you know have CVS?: yes, my son
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes

Comments:


Lynne - 03/26/99 02:23:47
My Email:hartatwork@usamail.com
How did you find the Adult CVS Website?: snap.com search
Do you or someone you know have CVS?: me?????
Would you like to have the Adult Co-ordinator email you?: yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
Dear Ms Rhodes, I am so happy that there is someone out there who may have an understanding of what I have been going through; I can't even express it. If I have carried on too much in this email, I apologize in advance. I promise, there is no quiz at the end. I am a 40 year old single mom who, in my former life, was a maternal-child health nurse and OB/GYN Nurse Practitioner. I retired several years ago to pursue other interests. During my time as a professional caregiver, I was almost always involved in an academic environment. I like to think that I gave my very best to all of my patients, including the ones who presented puzzling challenges. About a year ago, I began having episodes of unexplained vomiting. The episodes are really quite remarkable for their: 1. [unbelievably] rapid onset 2. forceful, violent, character [ I've come to call them my 'Linda Blair' impersonations] 3. random, yet repeated, occurence 4. complete lack of any logical explanation 5. complete lack of any associated nausea 6. consistent occurence at night, and most often, following a good meal 7. complete lack of any positive findings from a progressive battery of tests. 8. relative consistency and similarity of episodes The third time I experienced an episode of unexplained vomiting, I was in Versaille, France, [having a lovely time celebrating my 40th birthday, I might add]. I spent hours 'rejecting' the most magnificent meal I ever had; $500.00 worth. Instead of continuing my trip to Washington DC and New York City as I had planned, I went home to see my HMO assigned primary care physician. He listened to my description of: *the Versaille 'episode', *the 'I-almost-got-killed-on-Interstate-5-one-night' episode and *the SUDDENLY-waking-up-in-the-middle-of-the-night episode He promptly worked me up for menopause, and considering that the only possible symptom I had of menopause was some hot flashes during these episodes' I thought it was kind of wierd to look at menopause first; after all, I spent 10 years as an OB/GYN Nurse Practitioner and had seen plenty of women go begin menopause without vomiting their brains out. In fact, I never heard of even one woman vomiting at all. But I wanted to be compliant so I went along with it. After recovering from the episode itself, as well as the jet lag, I realized I had RUQ pain that sometimes radiated toward my back. It seemed to 'settle' at the superior aspect of my R kidney but I wasn't really sure. Off I went for an ultrasound to check for gall stones. Through a series of events that perfectly describes 'bad care', I learned that the results of the ultrasound showed no gall stones, but did show a 4-5cm lesion---hemangioma---on my liver. I was assured that this was not causing this horrendous vomiting. Meanwhile, I had several more episodes; all of which were witnesses by a variety of reliably sane people. To say they were amazed, really, really understates how they felt about what they witnessed. I've never had any one ask me what they were supposed to do if *I* aspirated. Eventually, I was referred to a gastroenterologist with a pretty good reputation in the community. He ordered new tests each time I had an episode. To date these tests include: HIDA scan Upper GI with small bowel follow through Abdominal CAT scan ...remember, I also had bloodwork to rule out menopause which included LFT's and a CBC [but no amylase] ultrasound With the exception of the hemangioma on my liver, all of the tests were normal. My last episode was on Valentine's Day, another bad time to ruin my life. Generally, I start to feel better about three weeks after each episode, even though I'll still have some intermittent RUQ pain. It's also after about three weeks, that I begin to think this may have happened for the last time. Of course, I've always been wrong. I called my gastroenterologist on the Monday after the last episode; I was very tearful. I feel pretty confident that I don't have anything that will cause my early demise or cause any kind of commonly feared debilitation. However, as I spoke to my gastroenterologist's nurse that morning, I remember saying to her: 'Jane, I can't take this. It's ruining my life. I feel like a waliking time bomb; I don't want to go out to eat; I don't want to go far from home; I'm afraid to meet new people [if a stranger EVER EVER EVER witnessed this, I would surely die from embarrassment]; I'm afraid to get a new job; I might not be eligable for health insurance; PLEASE help me'. Dr. Block was very empathetic; very accomodating and very kind. But I don't think HMO doctors have the time for academic challenges. The best plan we could come up with was for me to show up at the emergency room during one of these episodes [HOW EMBARRASSING] so we can do whatever needs to be done WHILE I'm in the throws of the worst of it. Today, I finally worked up the nerve to look into this a little more closely for myself. I found you and the CVSA website. I'm not big on support groups [for myself], but I'm wondering if someone might be able to tell me a little more about the diagnosis process. I do have insurance, but I don't have a ton of money. I wonder if it's a diagnosis of exclusion. I wonder what ALL of the differntial diagnoses are and to what extent it's worth performing all the test necessary to exclude everything else. I wonder what the natural history of the disease is and what the prognosis is. I wonder if there is any associated long-term problems. You may have already become bored, perhaps you've heard this story a hundred times. if you have, that's good for me. It may finally be an answer...even if I don't like it. I live in Laguna Niguel, CA, in south Orange County. If you have any information for me, you can either email me, or cal: 949 495-6224 or you can send mail to: Lynne Hart. 25122 LaEstrada, Laguna Niguel, CA 92677. Thank You for your time Lynne

Tina - 03/24/99 04:55:59
My Email:DJNY0262
How did you find the Adult CVS Website?: was looking up info on CVS
Do you or someone you know have CVS?: i have it
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes

Comments:
i am not sure if i definetly have it but from what i have read so far my symptoms are exactly the same, last year i went to the emergency room for dehydration and the doctors told me they thought it could be CVS, but nothing further was ever done about it i am very curious to see if this is what i really have.

Jan Martin - 03/20/99 05:45:55
My Email:Martinjo@flinet.com
How did you find the Adult CVS Website?: HSC-QA
Do you or someone you know have CVS?: I think my 31 year old daughter might.
Are you a professional seeking more information about CVS?: Seeking a doctor who may be able to diagnose her one way or the other.
Would you like to have the Adult Co-ordinator email you?: Yes!
Do you have additional questions about adult CVS? (Please ask in the comment section below): Yes.

Comments:
My daughter is getting very frustrated because this has been going on for approximately 15 or so years. As of yet no one has been able to tell her what is wrong. They've even gone as far as to say that maybe she was doing this to herself.She also suffers rom Chronic Epstein-Barre Virus as do myself, my husband and her 3 other sisters and sometimes just that alone makes it hard to get through the days because when that illness is in effect she is extremely fatigued and weak. It's hard for her to get things done but she manages. Then you add to that the incessant vomiting and it's enough to really drag you down physically and emotionally, especially when people think that there's nothing really wrong with you. she has even been told that "Maybe it's Psycholo ical". I was thrilled when told about this web site because I felt that at last maybe we can finally get some answers. I am sorry to have gone on so long but we are desperate. What doesn't help right now also is that she is 4 months pregnant and worried a out the baby because in the past 2 months she's had 3 episodes without ever losing the intense nausea. Yes I know part of it may be morning sickness but it's too severe to be just that. She's been in and out of the hospital a number of times in these past 2 months but they always send her home finally while she's still very sick. Thanks for letting me get rid of some of my emotional garbage about this.

Stephany Harvey - 03/08/99 22:31:14
My Email:espe@trxinc.com
How did you find the Adult CVS Website?: referred by member
Do you or someone you know have CVS?: ?me
Would you like to have the Adult Co-ordinator email you?: yes

Comments:
Have been diagnosed with "abdominal migraine" and have had the condition for about 15-20 years. Am very glad to find this site, and will explore. Would very much like to correspond with other "abdominal migraine" sufferers.

Tony Meredith - 03/04/99 22:38:59
My Email:ashtj@midwest.net
How did you find the Adult CVS Website?: Doctor
Do you or someone you know have CVS?: I do
Are you a professional seeking more information about CVS?: Yes
Would you like to have the Adult Co-ordinator email you?: Yes

Comments:
I was diagnosed with Cyclic Vomiting at the age of 9-10, although I have had it since the age of 5. I am now 28 and continue to have these episodes, although the vomiting is not as frequent, the abdominal pain and lower back pain have progressively grown worse. Usually I would have an episode every 2-3 months for 4-5 days, like clockwork. I have had only 3 episodes in a span of 2 1/2 years, but have had 2 episodes in the last 4 months. I would like to know if there is any new medication that has worked in either delaying or shortening the episodes. Thanks; Tony

Terry Shannon - 02/25/99 01:43:26
My Email:pfaffe@netzero.net
How did you find the Adult CVS Website?: Member
Do you or someone you know have CVS?: My son 21 has CVS

Comments:
This is a great idea. I have a new e-mail address so I was off line for a while. Glad to be back.

Lee Steiner - 02/12/99 17:45:30
How did you find the Adult CVS Website?: Great
Do you or someone you know have CVS?: yes
Are you a professional seeking more information about CVS?: no

Comments:


Diane Babbitt - 02/11/99 18:03:21
My Email:jschoder@voyager.net
How did you find the Adult CVS Website?: cvsa website
Do you or someone you know have CVS?: I do
Would you like to have the Adult Co-ordinator email you?: yes

Comments:
I gave you the wrong Email address last time, sorry I'm new on the net!

Jim Willetts - 02/09/99 14:13:33
My Email:willetts@worldnet.att.net
How did you find the Adult CVS Website?: Newspaper
Do you or someone you know have CVS?: My son (14)
Are you a professional seeking more information about CVS?: Yes
Would you like to have the Adult Co-ordinator email you?: Yes

Comments:
My son has been suffering from vomiting spells that last from a week to 3 weeks. He has been treated for everything but CVS up till now. We are currently going to a local gastreogist doctor who is researching CVS. As a potential problem.

Heidi Hetherington - 02/06/99 06:13:05
My Email:WildRed975@aol.com
How did you find the Adult CVS Website?: Off of yahoo
Do you or someone you know have CVS?: I suffer from this syndrome
Are you a professional seeking more information about CVS?: NO
Would you like to have the Adult Co-ordinator email you?: Please!

Comments:
Have you heard that CVS is related to Migraines? My doctors has diagnosed me with CVS and/or 'Migraines of the stomach'.

Diane Babbitt - 02/05/99 14:25:05
My Email:jschoder.voyager.net
How did you find the Adult CVS Website?: an IBS website
Do you or someone you know have CVS?: yes
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: yes
Do you have additional questions about adult CVS? (Please ask in the comment section below): yes

Comments:
I'm interested in any perscription meds, diets, natural healing methods that have shown some effectiveness at controlling the vomiting episodes.

Lisa - 01/24/99 20:51:24
My Email:funyfarm@netcom.ca
How did you find the Adult CVS Website?: yahoo search
Do you or someone you know have CVS?: daughter ( maybe?)
Are you a professional seeking more information about CVS?: searching for doctor
Would you like to have the Adult Co-ordinator email you?: yes

Comments:
curious about treatments. great site

Karen L Bradley - 01/22/99 18:37:37
How did you find the Adult CVS Website?: Guess Work Mainly.
Do you or someone you know have CVS?: My daughter.
Are you a professional seeking more information about CVS?: No.

Comments:


Susan Salters - 01/19/99 14:48:22
My Email:ssal2@yahoo.com
How did you find the Adult CVS Website?: Thru Julie Kennedy
Do you or someone you know have CVS?: My son has it
Are you a professional seeking more information about CVS?: No
Would you like to have the Adult Co-ordinator email you?: She has

Comments:


Cheryl Noll - 01/12/99 16:14:37
My Email:a-noll@nwu.edu
How did you find the Adult CVS Website?: from cvs list serve
Do you or someone you know have CVS?: my daughter
Are you a professional seeking more information about CVS?: no

Comments:


Susan Robinson - 01/12/99 00:04:21
My Email:SRobi47273@aol.com
How did you find the Adult CVS Website?: CVS Website
Do you or someone you know have CVS?: yes, myself
Are you a professional seeking more information about CVS?: yes, for myself
Would you like to have the Adult Co-ordinator email you?: Thankfully, already has
Do you have additional questions about adult CVS? (Please ask in the comment section below): Yes

Comments:
Dear Julie, BRAVO!!! Excellent job on new web page. Very needed and appreciated!!! Now many adults can find true answers to their medical concerns about CVS. THANK YOU! I am newly diagnosed with CVS. Would like to hear from any & all persons concerning medication protocol to formulate in my mind what might work. My CVS began with a pregnancy when I was 32. Been having episodes for 5 Yrs. now. ANY INFORMATION would be truly appreciated! Thanks & God Bless You All! Susan

debra waites - 01/11/99 03:15:40
My URL:http://geocities.com/hotsprings/resort/5072
My Email:drwaites@infinet.com
How did you find the Adult CVS Website?: URL sent to me
Do you or someone you know have CVS?: my daughter
Are you a professional seeking more information about CVS?: no
Would you like to have the Adult Co-ordinator email you?: no
Do you have additional questions about adult CVS? (Please ask in the comment section below): no