Welcome to My Guestbook
| Gina Dial - 06/27/00 16:08:02 My Email:gdial@ijcompany.com Special Interests: music, computer/repair,dogs |
Comments: Just found your 'sight'-HA. It is really beautiful and informative. I had a small blood clot 10 years ago in the retina of my right eye. It cleared up after laser, leaving me with a small distorted spot in my central vision. Now, Feb 2000, I started having more distortion/confusion and went to the same eye-doctors' group. They said it was another blood clot and, since Feb, I have had 2 laser surgerys with little/no results. Last week the doctor said the central vision is gone. He said it would be a miracle if the vision comes back,..a God's miracle. I am happy to have good vision in my left eye, but am worried that later it will happen to it too. I have just started looking at your website and will update you on my progress using your help and advise. Thanks for putting this together! |
| Diane - 06/24/00 00:34:02 My Email:DeNordique@aol.com Special Interests: horses, trying to deal with this awful disease |
Comments: I liked your website and you were very very lucky. I am glad for you, as I know how scary it is. It is hard to deal with it. Thanks for your site. |
| Kathy :o) - 06/14/00 13:11:12 My Email:KTeadid@triad.rr.com |
Comments: Hi Linda, great page!!! I don't have MD, I have POHS (Histoplasmosis). Yep, I came here from Blink's page. Isn't it strange how our diseases can be so different, but so much alike at the same time. When I was diagnosed 12 years ago, they gave me a boo on wet macular degeneration and sent me on my way, at that time and still today, not much is known about Histo. I'll be visiting your page, we are all in the same boat with loss of and threats of loss to our central vision. God bless you. |
| GENE - 05/26/00 14:13:09 My Email:ESHAPIRO10@AOL.COM Special Interests: HELPING PEOPLE |
Comments: I AM A MASON |
| Anita Chan - 05/10/00 01:31:06 My Email:anita.chan@blvdmedia.com |
Comments: I have to agree with you that you're lucky, but not all lucky realize that they are lucky especially when they got that little bit of lucky out of a big problem. I admire your courage to go through that and try to help other people with all your heart. |
| Vera Rinehart - 04/22/00 03:02:01 My Email:vrinehart@hotmail.com Special Interests: reading, family, newspaper work |
Comments: I love you page! You people are so talented! I have dry MD. I can read most things but have some blind spots. People who are more than six feet away are a blur. Keep up the good work. |
| Burc Tylor - 04/20/00 08:07:55 My Email:burc@attcanada.net Special Interests: Reading, self improvement, Freemasonry, networking |
Comments: Hi Linda: Came across your site while researching AMD. It is AWESOME, No Kidding? Tomorrow (April 20} I go to have more pictures taken of my right eye. Had laser surgery done to it and tomorrow we will find out if it was successful. My left eye has alread had the bun, so to speak. Although I haven't given up hope. The situation could be a lot worse. Keep up the good work. Oh yes, I'm a neighbour of yours as I live in Richmond, B.C.I will be giving your page to my Dr. when I see him on Monday. Love from a 6 year young entrepeneur.Burc Tylor |
| Joseph Wynn - 04/09/00 11:54:45 My Email:Joehar@webtv.net Special Interests: Liked to read |
Comments: Hi Linda, I'm new to MD and had my frst laser shot last week. I think you web page is great (same goes for Kimberly). It's so nice that in spite of it all you can find time and energy to keep moving forward. |
| Kimberly Hornbeck - 04/08/00 23:56:09 My URL:http://sites.netscape.net/asylimk/homepage My Email:asylim@hotmail.com |
Comments: Dear Linda, I truly appreciate the link back to Kimberly's Homepage, thank you!! Your wonderful idea of using my logo as the link has prompted me to add Judy's Jolts of Hope logo to link from my page to hers. I'm starting to believe the three of us were sister's in a past life, lol!! God Bless Kimberly |
| Bob Spoljaric - 03/27/00 18:38:48 My Email:Rspoljaric@exec.gsinc.state.pa.us |
Comments: Very enlighting you led me to other very interesting sights, aticles and information on this disease. I'm in the early stages I was first diagnosed with CSC and within 2 weeks as things got worse I called for additional information and was seen and was r diognosed with Wet MD and had laser the next day. My next visit is Thursday to tell me any next move. |
| Barbara Harriger - 02/15/00 09:24:51 My Email:squeeeks@earthlink.net Special Interests: cats |
Comments: Very nicely done. Enjoy your postings to mdlist I'm mostly a lurker and a neighbor of yours in Seattle. Was diagnosed with wet md 3months after developing lung dise ase and put on oxygen 1/13/99 |
| Loretta Jenkins - 02/12/00 15:56:40 My Email:Kaydidd@yahoo.com Special Interests: small Farm animals . Crafts |
Comments: I really enjoyed your page it was very entertaining. |
| Liz Castle - 01/26/00 22:15:41 My Email:emary@interchange.ubc.ca Special Interests: ROWING, TOO! |
Comments: Hi Linda.... love the rowing pictures.... but I don't see any from 1999! I had no idea that you were suffering from such horrible illness. In fact, I didn't even know that the illness existed. Well, I guess I'm glad to be informed. Talk to you later... Liz PS... I love that you've got to be kidding look. It's just as if I've said, "Hey, how come we only have five people here out of a crew of nine??!!!" |
| shirley - 01/17/00 01:02:06 My Email:sscott@csonline.net Special Interests: macular degeneration |
Comments: Just diagnosed with this and having a test Tues. to see if it is the wet or dry type. I'm scared! |
| Jim Rowland - 12/23/99 15:04:52 My Email:JRow608545@aol.com Special Interests: Making music in the Senior Community |
Comments: I'm impressewd with your web page------I've been quietly a part of the MD community for quite some time now. I have myopic macular degeneration and have for almost 12 years now. I was able to work for almost 7 years and have now been on disability for alm st 5 years. In some ways it has been the best thing that could have happened to me. I have been proforming in the senior community [nursing homes, assissted living centers, senior meal sites ......] for almost 15 years now and the disability has given me he time to do this full time---------it's my thing and I really enjoy it. |
| kathy Ziegler - 12/16/99 21:28:10 My Email:kziegler@madison.k12.wi.us Special Interests: reading |
Comments: Greetings, I am writing because my mother-in-law, age 84 has macular degeneration (wet). She is a avid reader but fears the loss of her sight. Thankyou for sharing. KZ |
| Heather - 12/13/99 15:55:01 My Email:heather.houston@agra.com Special Interests: knowledge!! |
Comments: Linda, you did such a great job of your web site. I, like you, hunger for knowledge when I hear of some rare or threatening disease, especially when it involves a friend. I read everything and was fascinated and sorry that I had not known more when you ere going through this horrific experience. (Maybe I would have been a little more supportive!) I'm sure your positive attitude through the whole ordeal has a lot to do with the successful results. Please keep in touch with your friends at Simons. We' l have to keep up our Week-ender nights; maybe I'll even have one in the New Year, but probably on a Sunday afternoon. Good luck in all of your new endeavours. |
| debbie andring - 11/15/99 23:42:38 My URL:http://www.visuallyimpaired.com My Email:focus93@hotmail.com Special Interests: massage, my son, Christian web sites, macular degeneration web sites |
Comments: I love your site Linda. I going to link you for my macular degeneration page. I we almost neighbors, I like in Yakima Washing. I was not as lucky as you , had mutiple occurences in both eyes and I am now legally blind, but it is nice to hear about others who had problems at a young age i was 34 when I started to have problems. Good luck and God bless, Debbie Andring |
| Thomas May Jr. - 11/14/99 03:04:43 My Email:wombatmonk@netzero.com Special Interests: Computer Technology, Reading, College, The Internet, PC Gaming |
Comments: Linda, I'm Tom May's son, obviously. My Dad was recently diagnosed w/ Dominant Drusen AMD. He's told me how hard it is to find information on the web, regarding AMD, and that it is a little known disease. Thank you for putting such an informative site on he web. Thanks again, and I'll be sure to come back and check out all of your links. |
| Tom May - 11/05/99 11:25:55 My Email:bluto2@earthlink.net Special Interests: Bass Fishing !!!! |
Comments: Hi Linda, Super site! I like the way you put your cards on the table here, it gives the "newbies" like me a ray of hope! If anyone reading this (whether an MD patient or not) has not had the opportunity to "talk" with Linda on the MDLIST and read her inspiring and nsightful thoughts, comments, ideas and encouragement, I encourage you to visit the MD Support web site and join the MDLIST and make that connection. Linda, you're a super young lady, thanks for sharing !! Tom |
| Josephine - 11/01/99 14:04:35 My Email:luckylindyii@cknet.net Special Interests: reading, my 7 grandchildren, gardening & flowers, my church & missions, volunteer work. |
Comments: My husband & I are retired after 40 yrs. of teaching. We both are kept real busy subbing in 6 area school systems. We also like to travel & have taken our grandchildren on several nice trips over the years. We are active in the Gideons International & ampers on Missions. In 1996 I was told I have MD in one eye, & that there was nothing they could do to improve my eyesight. I am thankful my other eye does not have the same problem. I have enjoyed all the information & support about MD found on the Internet. Keep up the ood work. JL |
| Barbara DeVisser - 10/09/99 16:04:54 My Email:bdevisser@att.net |
Comments: My mother has recently lost most of her vision in both eyes due to MD and I am in search of a support group for her in her local area Manahawkin, NJ. If you could offer any assistance I would be grateful. |
| Heather Randolph - 10/06/99 00:18:53 My URL:http://familyzone.home.mindspring.com My Email:otterpoint@mindspring.com Comments: Hello Linda! |
Comments: Hello Linda!!! I saw your link to your website at the bottem of one of your email's, and just had to stop by! I love you site!!!!! I love the Rat Pack! Hehehe! Keep up the good work! From the MD list, Heather Randolph, Tempe, Arizona. GO BRONCO'S |
| dsavage - 09/29/99 02:25:40 My URL:http://pages.prodigy.net/drsavage/docsavag.html My Email:drsavage@ prodigy.net |
Comments: nice site I am a retina specialist from Pennsylvania enjoyed your insights |
| J. R. Dillon, O.D. - 03/03/99 17:35:27 My Email:dillonj@cfw.com |
Comments: Hi Linda, I finally took time to check out your web site. You have done an outstanding job, not only of creating your web site, but of describing your vision problems in a way that others can appreciate what it means. This is a great help to those who are only be inning to have vision problems as it gives them hope and understanding that all is not lost. There are many great doctors such as your Dr. M who will do everything within their power. Also, thank you for your input to the MD list. J. R. Dillon, O.D. |
| Joyce Garnes - 03/01/99 19:20:38 My Email:joyesqart@aol.com |
Comments: Hi Linda, whar a great web page. I'm sending your link to my daughters and nieces. I'm still reading it and following your links so I'll let you know what I think when I finish. By the way, when the little animals started running across the screen (my lower left ,,, I have MD in my RIGHTeye) I was about to pick up the phone and call my oph. LOL Joyce Garnes |
| Ken and Susan Olsen - 03/01/99 01:47:21 |
Comments: Great Page! We've learned a lot, and are consequently more prepared for the future. Thanks. When Susan's mom gets comfortable with e-mail, we'll send her to this page. SEE you soon. |
| Dejan Radoicic - 02/23/99 20:22:32 My Email:dradoicic@stantec.com |
Comments: The web page is very well done, and very informative, Thanks Linda, Dejan |
| Joyce Tuckwood - 02/21/99 18:30:42 My Email:FishPratt@aol.com Special Interests: Grad school..aaaaaggh |
Comments: Cool! |
| Lindsay - 02/18/99 03:46:11 My URL:http://www.cprost.sfu.ca My Email:lphughes@sfu.ca |
Comments: Looks good... |
| Suzanne Bassinger - 02/17/99 02:45:55 My Email:sbassinger@aol.com Special Interests: horse riding & training, reading |
Comments: Hi Linda, your site is wonderful. I am a 43 yr old, diagnosed with myopic macular degeneration. I had my first and second leak 11 and 10 years ago, the latest just two weeks ago. The retinal specialist told me: prepare to be legally blind w/in the nex 4 mos. and there is nothing to be done. I can't accept that! I am so glad to read that you found help, thank you so much for sharing that. I am trying to decide how to proceed, and how urgent I must make my search for help. Thanks again for the great info. One question: were you ever told to avoid rough activity or jarring? I don't want to give up my livihood (training horses) but I've gotten conflicting advice. Thanks again-Suzanne |
| Val Gawne - 02/11/99 20:53:41 My Email:vgawne@hasimons.com |
Comments: Fabulous, wonderful, excellent, enjoyable and not to mention, very well done! |
| Pam Moore - 02/04/99 13:16:00 My Email:PMoore2966@aol.com |
Comments: Dear Linda I just visited your web-site. Congratulations. It is an excellent site and so helpfully informative. Well done. You really were lucky to get that surgery done so quickly and that it was so successful, and now you can encourage others and give them the benefit of your experience. Wish I had a doc like yours here in England. My MD didn't develop quite as quickly as yours, but it might have been worse if I hadn't recognised the signs as soon as I noticed a distortion of my vision, 2 & 1/2 years ago. You see, my Mum developed MD some 15 years ago and I'd gone through it all with her. At 95 she can see very little but stays cheerful and still lives on her own, though housebound and living what to me must be a deadly boring existance! I was lucky that lasering then has kept my left eye stable, but my ight went the same way last June and despite 2 lots of lasering my central vision was gone in a couple of months. Wish I could have that surgery. Again: Congratulations on your site. Glad you found the group. Love, Pam |
| Rachel Lowry - 02/03/99 11:07:00 My Email:Rachel Lowry [rlowry@vanhosp.bc.ca] |
Comments: ...Thanks for the information about the internet support group. I found it interesting to read your web page and hear about your experience. Macular Degeneration I don't really know a lot about. What a scary experience!!!! If you don't mind I plan to keep your website with the link to the support group available in the Patient & Family Resource Centre. Your web page looks great. I like the animated cat!!! Best Regards, Rachel Coordinator, Patient & Family Resource Centre |
| Dean Hughson - 02/03/99 11:07:00 My Email:Dean Hughson [dean@PRIMENET.COM] |
Comments: Linda: Your homepage is so helpful for those of us who don't have MD to understand it. Thanks much for your hard work. Dean in Vegas |
| Claire Dillman - 02/03/99 01:32:57 My Email:claire.dillman@asmhq.com |
Comments: My 82-year-old mother has had dry macular degeneration for three years, and wet since April 1998. I'm on the MD list so I saw your Email and went to your site. |
| Lynn Louise - 02/01/99 05:03:21 My Email:LynnKoki@aol.com Special Interests: Sculpture by education and home bulder by trade |
Comments: Nice page, Linda. Ilike your spunk. Keep it up |
| DoraLee Ludwig - 01/31/99 01:06:19 My Email:dode1@webtv.net Special Interests: current events |
Comments: I saw your website while reading my mail. Just thought I would check it out since I'm pretty green.... a newbie. I enjoyed it and thought it interesting. |