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First Name : Mark Taubensee, the author of this site
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Email Address : dovelake1@cs.com
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Comment : Thanks for visiting. You can post your own comments to this page, too. Be sure to check out the archive of past comments. If there are only a few comments to read here, it's because I have recently archived the comments. At present there are 7 volumes of
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First Name : Vinson
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Email Address : bushnell@bloomington.in.us
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Comment : By far the most useful and interesting site I've found on the topic. And what most delights me is that it originates from my own town, and that two of Mark's doctors are my doctors as well, by pure chance.
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First Name : Vinson
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Email Address : bushnell@bloomington.in.us
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Comment : I forgot to include the URL for my recently started HCL web page:
http://www.bloomington.in.us/~bushnell/ Be warned that it is already long, with lots of peripheral material.
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First Name : Charles
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Email Address : cfloyd@ckt.net
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Comment : I just discovered your web site on HCL and thought that I may give someone hope with my story. I am a male now 73 years old. I was first diagnosed with HCL in 1986 when I was admitted to the hospital with pneumonia. At that time, I had not received any pr
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First Name : lou
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Email Address : sjgctco@hotmail.com
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Comment : I had chemo therapy for HCL how do I know if it is coming back?
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First Name : Ralf Kleinjung
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Email Address : ralf@kleinjung.de
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Comment : hi
there is a site in germany !
http://www.haarzell-leukaemie.de
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First Name : nick
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Email Address : goofies@iprimus.com.au
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Comment : am a sufferer of hcl since 1998 have had chemo and my spleen removed in late 1998 ok since aug 2000 when infections started have been hospitalised numerous times since with another course of chemo.
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First Name : Barbara Eble
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Email Address : haarzell-leukaemie@t-online.de
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Comment : I am living in Germany, we have here a group of 185 HCL-patients, 1 meeting a year (we had the 9th this year) with a specialist. I'm often surving to the US-HCL-friends to get the news. Please visit our homepage www.haarzell-leukaemie.de, Barbara
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First Name : richard
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Email Address : dick-medhurst@supanet.com
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Comment : I am a HCL sufferer since and i understand that there is an excellent site from australia but cant find it,can anyone tell me its address
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First Name : Keith Paler
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Email Address : keith.paler@xtra.co.nz
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Comment : 15 months out from treatment with 2CDa I now have all my blood counts in the normal range. Am running 10kM a day, have been ski-ing with the kids. HCL is not the end of the line but just a phase in life.
Are there any other HCLers here in godzone?
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First Name : AUGUST
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Email Address : augustcruz@hotmail.com
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Comment : I WAS DIAGNOSED WITH HCL IN 1997. AFTER TREATMENT WORSENED THE SITUATION, I STUDIED, TRIED A VARIETY OF NATUROPATHIC AVENUES AND FINALLY DEVELOPED A REGIMEN WHICH HAS REVERSED THE RISE IN MY WHITE BLOOD COUNT AND STABILIZED MY CONDITION. I LOWERED WHITE C
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First Name : AUGUST
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Email Address : augustcruz@hotmail.com
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Comment : I WILL TRY AGAIN. I AM NOW A RAW FOODIST AND WOULD LIKE TO TALK WITH ANYONE INTERESTED IN ALTERATIVE METHODS OF HEALING. I BROUGHT MY WBC DOWN TO 19K FROM 47 K IN 4 MONTHS.
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First Name : ROBERT
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Email Address : BOB&DIANE3@HOME.COM
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Comment : DIAGNOSED 5/24/01 I AM 57 YEARS OF AGE,I WAS GETTING BAD COLDS ,INFECTIONS,AND BRUSINGS, FOR ABOUT 2 YRS. WENT IN FOR CHECK UP.ALLCOUNTS WERE LOW.6/7/01 REC. 2CD KEMO FOR 7 DAYS AND NIGHTS.I NEVER DREAMPT THAT SOMETHING LIKE THIS COULD EVER HAPPEN TO ME.
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First Name : Jerome D. Schnydman
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Email Address : jds1@jhu.edu
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Comment :
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First Name : don
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Email Address : dandeneau
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Comment : ive just finished my second round of 2cda so far my temp hasent risen im hoping i wont have to be hospitalized because thats when you feel like sh-- got my fingers crossed
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First Name : Annie
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Email Address : awareham@ctgla.org
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Comment : I am a 45 year old woman who was diagnosed with HCL in January of this year. I had a picline placed in my arm for 7 days of chemo and was in remission by mid-March. I am not a big internet communicator, and I know how to turn my computer on, write somethi
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First Name : Jan
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Email Address : omgzeta@aol.com
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Comment : I find thsi site so helpful. I will be having my third bout of 2CD-A in a little over trwo years. There is no spleen involvement, but I do have alot of joint pain. Is this common?
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First Name : galaxi
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Email Address : galaxi20022000@yahoo.com
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Comment : hi everybody
your site is great
iam a hcl surviver,took the treatment 4 moths ago and at remission I feel excellent,
the only problem:platele count 100000, any comment?
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First Name : Betty
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Email Address : maukb@blazenet.net
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Comment : I was diagnosed with HCL in August 2001.Because the only symptom that I have is low white cell count(2.6) my oncologist decided to wait for more symptoms.Since then my white cell count has gone to 2.3.He said i would get 2cda after flu season is behind us
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First Name : SUSIE
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Email Address : PATTSGRANDDMA
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Comment : HI OUT THERE!! SO AM I THE ONLY WOMAN THAT HAS BEEN THROUGH CHEMO.THAT HAS HCL??
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First Name : sugees
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Email Address : sugees@boltblue.com
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Comment : check this website out as it produces information about HCL t-lymphoproliferative diseases as well.
http://www.angelfire.com/ga/sugees/index.html
http://www.bloodline.net/stories/storyReader
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First Name : Bryon
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Email Address : butlers@softhome.net
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Comment : I had hcl in 1998, and with 2cda have survived. I was married with one child. We now have two and one due this year! We are living and working in Argentina. Does anyone have stats on the return rate of hcl? I've been looking throuhout the site, slowly get
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First Name : Robert
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Email Address : oysterl@yahoo.com
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Comment : Mark, I think this is a great site and I have learned a lot and developed some excellent contacts. It seems that now I am unable to access the message board. Is there a Yahoo problem?
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First Name : SUSIE
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Email Address : PATTSGRANDDMA
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Comment : IVE BEEN IN REMISSION NOW FOR 3MO.ANDIM HEADING TO TH DR. TOMORROW TO SEE IF I STILL AM OK--IM A 52YR. OLD FEMALE -I WAS DIAGNOSED IN SEPT OF 2001 HI TO YOU ALL--
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First Name : susie
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Email Address : pattsgrandma@aol.com
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Comment : stil not sure how really to get a message out there and really get one back --good news for me --i made it today with no drs. call to come in now for another bone marrow test-my blood tyest was yesterday so no calls at work means to me is still remission
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First Name : susie
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Email Address : pattsgrandma@aol.com
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Comment : stil not sure how really to get a message out there and really get one back --good news for me --i made it today with no drs. call to come in now for another bone marrow test-my blood tyest was yesterday so no calls at work means to me is still remission
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First Name : susie
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Email Address : pattsgranddma@aol.com
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Comment : now i really wish id paid more attention in typing--after i read what i wrote i'll get better i'm sure if i had a real person to write to this is nothing like my pc at work-- but even with typing that sucks i have no e-mails with any women with hcl --i co
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First Name : susie
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Email Address : pattsgranddma@aol.com
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Comment : now i really wish id paid more attention in typing--after i read what i wrote i'll get better i'm sure if i had a real person to write to this is nothing like my pc at work-- but even with typing that sucks i have no e-mails with any women with hcl --i co
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First Name : warren
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Email Address : waskeen@msn.com
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Comment : I find this site very helpful to me.I just compleated my 2nd round of 2cda don,t know yet if it worked march 25 2002
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First Name : susie
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Email Address : pattsgranddma@aol.com
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Comment : good news for me im still in remission-- no dr. for 6 months unless i feel the need[temp or infection] white cell above 6.3 highest in 2 years--i could even get a cold now and not wind up in the er--good luck to all and keep me posted on you!!
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First Name : Alan
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Email Address : thesurvivor@planet.nl
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Comment : I read that Jan had three relapses. could you or anyone, please contact me as I would like to know why, and in such a short period of time. I hope someone can respond urgently. I am deeply concerned. April 12, 2002.
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First Name : jim
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Email Address : jfs_tas@yahoo.com
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Comment : I had 2CDA in May 2001. My white counts are still only 1700 and platelets only 97,000. Have any of you had to wait this long?
This was one of the first websites I found when I was first diagnosed with HCL last year. I'm 39, a martial artist and a form
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First Name : unknown
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Email Address :
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Comment : i think that everyone writing and talking about their leukemia are strong people. It takes a lot to put your business out there. I just want to let everyne with leukemia know that i'm praying for each and every one of you. My dream is to come up with a cu
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First Name : Ezra
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Email Address : ezrawhite2000@yahoo.com
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Comment : Hello, my name is Ezra. Wile living in Mexico I heard about an old, indian, herbal extract that they say rebuilds blood in days apparently good for anemia and leukemia conditions. If you are interested, contact me.
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First Name : ken
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Email Address : kenandmj@blast.net
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Comment : It is now July 16, 2002. I last left a message in December of 1997...(see messages). I was surfing the internet and rediscovered this page. I am happy to say that the chemotherapy has been and still is a great success for me . I still get blood checks, of
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First Name : Dean
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Email Address : dtravis@vtown.com.au
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Comment : am just getting over my reaction to chemo,what an ordeal!the cure is worse than the complaint!!my wife & I have had great comfort from all your experiences & stories.thank you.we still have some way to go but know it has an ending.
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First Name : Dee
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Email Address : pluto1955@hotmail.com
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Comment : I have leukocytoclastic vasculitis. Some times this can be a sign associated with HCL. Can you tell me if you know of anyone with the combination. For some reason my doctor won't do a blood test even to see if I am anemic. I have been so tired lately, to
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First Name : susie
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Email Address : pattsgranddma@aol.com
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Comment : asbestos ?????
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First Name : Alan
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Email Address : thesurvivor@planet.nl
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Comment : I am also a HCLer, first diagnosed & treated in 2000. Relapsed in autumn 2001 & retreated this April/May with 2CdA. WBC = 2.6 is the main concern. I live in The Netherlands, one clinic here has had 100 HCLer's over 10 yrs.
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First Name : susie
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Email Address : pattsgranddma@aol.com
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Comment : hi im still in remission--so far 1 round of chemo. has done the trick--next dr. apt. is in sept. 6mo. im feelin good--my best to you all [now if i could just quit dreamin at night about it comin back]
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First Name : Rustantio
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Email Address : Roust38@yahoo.com
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Comment : It't good site to sharing together
but :
I have Good News for solution of Leukemia :
Need Prevention or solution for leukemia !!!
see at :
www.dxnusa.com
www.dxncan.com
Don't forget my ID number :
name : Agustinus Rustantio
ID : 3173948
you need
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First Name : Rachel
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Email Address :
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Comment :
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First Name : Mark
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Email Address : dovelake1@cs.com
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Comment : I want to remind all of you that space is limited in the guestbook...if you want to discuss in more detail go to the message board
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First Name : Scott G
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Email Address : webmaster@hannabery.com
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Comment : Thanks for the site. At 36, I was just diagnosed with HCL on 9-13-02.
I'm a little scared and depressed of dealing with a future of hospital visits and constant bloodwork and tests, and infections...
The worst part is it is really putting a damper on m
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