In July of 98 I wrote a letter to Rep. Jim
Talent about funding for FMS, CFIDS and MPS below is a excerpt from that
letter and scans of the responses i got.
Please give careful consideration to increasing
the NIH appropriation's budget for chronic
pain syndrome research, and more specifically for
the condition of FMS, which is under
the direction of NIAMS and NIAD, respectively. Only
recently has the NIAMS started to
take an active interest in FMS, but they have overlooked
promoting more research
programs that might address my most prominent and
disabling symptom: chronic body-
wide pain and exhaustion. At the end of last year,
NIAMS co-sponsored along with
NIAID a research program although it was not specific
for FMS. While I find the actions
of NIAMS and NIAID encouraging, the subject of pain
research seems to have been left
out of their agenda, and most specifically Fibromyalgia!
I would be very grateful if you would send a letter
of inquiry on my behalf to Stephen
Katz, MD, Ph.D., Director of NIAMS, and to Anthony
Fauci, MD, Director of NIAID, to
find out what plans they have to solicit applications
for pain-related research on FMS,
CFS, MPS and similar muskuloskeletal pain syndromes.
In fact, I am hoping that you will
urge them to collaborate on an aggressive research
program on this subject. At a minium,
I'm crossing my fingers that your letter will prompt
these two Directors at NIH to give
chronic pain syndrome research more serious consideration.
Congressional testimony
pertaining to this subject is enclosed along with
a concise fact sheet on FMS.
Mr. Talents Response
Dr. Katz Letter
Katz letter to Mr. Talent
Katz letter Continued