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First Name : Michelle
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URL :
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Comment :
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Email Address : abdi.hirsi2@gte.net
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Age :
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Gender : Female
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Where You Live : Virginia
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First Name : sue
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URL :
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Comment : i thought i was the only person on the planet with h s !!!
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Email Address : susan shearman @hotmail
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Age : 44
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Gender : female
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Where You Live : doncaster s.yorks uk
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First Name : mary
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URL :
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Comment : i love this site its great, i have had hs since i was 18, and i have learned more in the past 5 min. on my condition than in 2 years... thanks
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Email Address : lilmermaid12mm
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Age : 20
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Gender : f
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Where You Live : horn lake, ms
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First Name : susan
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URL :
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Comment : Great to find these pages!I'm having a difficult time with my H.S.at the moment,i've just had my umpteenth drainage op and this one's not healing well.It's a comfort to know,in the middle of the night wide awake and in agony that i'm not the only one!
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Email Address : sioux5200@yahoo.co
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Age : 42
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Gender : female
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Where You Live : fleet,hants
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First Name : tracey
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URL :
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Comment : I HAVE BEEN LIVING WITH THIS GROSS DISEASE FOR MORE THAN 10 YEARS NOW
AND WOULD LIKE TO TALK WITH OTHER PEOPLE WHO SUFFER THE SAME FATE AS I.
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Email Address : cubbagegirl1@aol.com
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Age : 29
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Gender : female
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Where You Live : north carolin
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First Name : Nicky
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URL :
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Comment : Like most others, I thought I was alone with this disgusting problem. My doctor seems to think I over-react when I say they sometimes keep me awake at night, and I then think it must be me being really soft ! Roll on the day when they find a miracle cure.
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Email Address : nickyh21@hotmail.com
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Age : 32
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Gender : female
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Where You Live : Blackpool, UK
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First Name : Jesse
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URL :
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Comment : I have suffered from h.S. since August 2000. Ihave had 2 surguries since August. I am a teenager (15).I have not told anyone at my highschool that I have this diseas mainly because I am ashamed . Good Luck and GOD BLESS
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Email Address :
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Age : 15
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Gender : FEMALW
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Where You Live : TEXAS
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First Name : jESSE
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URL :
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Comment : This diseas should be called paindenitis, not hidradentis.
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Email Address :
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Age : 15
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Gender : female
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Where You Live : tx
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First Name : Eileen Tobin
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URL :
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Comment : I have suffered with the didease for years but was only diagnosed for about a year.
thamk you so much for your page. It has been very helpful and supportive.
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Email Address : eileenf@capital.net
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Age : 59
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Gender : female
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Where You Live : Thendara, New York
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First Name : marcella
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URL : none
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Comment : My dermatologist cured my HS very quickly with some type of antibiotic cream which I put IN MY NOSE (of all places). I know it sounds weird, but it worked! Look into it!
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Email Address : missmomm@hotmail.com
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Age : 30
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Gender : femal
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Where You Live : Los Angeles
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First Name : linda
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URL :
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Comment : i've had hidradenitis for over 25 years..before it had a name. it's ugly and I think it disgusting. i don't tell too many people about it because they may think i'm just dirty....even some medical professionals make me feel that way. i'd love to hear from
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Email Address : lantone518@aol.com
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Age : 42
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Gender : female
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Where You Live : boston, ma
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First Name : Patricia
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URL :
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Comment : Had H.S for 12 years and at times the frustration is unbearable. I've had
five operations but it keeps coming back even more painfull than the last
outbreak. Its nice to know that I'm not alone in this.
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Email Address :
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Age : 24
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Gender : female
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Where You Live : Leamington Spa, England
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First Name : Larry
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URL :
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Comment : Thanks for the page!!
I have had these proberly one or two a year,for about 20 years. most times in the butt
I just use Boil-Ease, it seem to work real well in bringing it to a head,When it is at that point,I lance it,and then use my Rattle snake bite k
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Email Address : lreed237gte.net
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Age : 64
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Gender : Male
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Where You Live : Florida
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First Name : Jaimee
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URL :
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Comment :
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Email Address :
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Age : 25
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Gender : Female
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Where You Live : AZ
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First Name : Oliver
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URL :
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Comment : My wife is a HS sufferer since she was a teenager. She is now 34 with four kids. The HS got really bad when she was sterilised after our last child. This appeared to be because she stopped the pill. Since then she has started taking the pill again and is
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Email Address : otrethewey@meusli.freeserve.co.uk
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Age : 35
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Gender : M
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Where You Live : Suffolk
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First Name : Lori
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URL :
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Comment : I have suffered with HS for almost 30 years and didn't have a diagnosis till last year. I have had 5 operations and continue to try all natural remedies I hear about.
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Email Address :
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Age : 42
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Gender : female
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Where You Live : Oregon
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First Name : Thadys
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URL :
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Comment : Like most people with H.S., I have suffered with this horrible disease
for half of my adult life. In the ealy 70's there was no name and I was treated with steriods which led to diabetes type II. Surgery and drug therapy were used. Three-fourths of my bo
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Email Address : THADYSVW@aol.com
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Age : 52
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Gender : FEMALE
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Where You Live : Baton Rouge, LA
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First Name : Luke
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URL :
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Comment :
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Email Address :
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Age :
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Gender :
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Where You Live :
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First Name : Luke
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URL :
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Comment : Man I dont know about some of you out there but this thing is killing me I had this since I was 14 and thay told me that it would go away in time now I find out its H.S and it probly never going away. WHY! WHY ME! WHY YOU! WHY US!
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Email Address :
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Age : 22
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Gender : male
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Where You Live : Texas
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First Name : PHILIP
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URL :
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Comment :
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Email Address : philiphanrahan@survey.iol.ie
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Age : 46
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Gender : m
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Where You Live : Dublin
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First Name : Geraldine
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URL :
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Comment : I AM A SUFFER OF H.S. FOR 13YRS NOW,
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Email Address : Greenolds982AOL.COM
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Age : 47
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Gender : FEMALE
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Where You Live : BROOKLYN N.Y.
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First Name : sheli
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URL :
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Comment :
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Email Address : ibporter@aol
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Age : 36
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Gender : female
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Where You Live : wisconsin
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First Name : M
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URL :
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Comment : I have had Hs since I was 13 years old. This is a terrible disease and it hurts like hell sometimes. I had surgery once but it did not work. I use Dial Bar Soap and it seems to help a lot. Good Luck...we all need it.
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Email Address :
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Age : 22
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Gender : Female
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Where You Live : New York City
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First Name : Sharon
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URL :
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Comment : Hidradenitis on the face? Does anyone have information? Please!!!!! and thanks
Everything listed about H. fits except the location...including many tears, esecially with the dermatologists!
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Email Address : rtbrainart@yahoo.com
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Age : 49
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Gender : female
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Where You Live : California
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First Name : doug
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URL :
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Comment : I AM 52 AND I HAVE JUST BEEN DIAGNOSSED HS THROUGH THE VAMC
WPB FLORIDA
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Email Address : dougiejr@space.com
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Age : 52
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Gender : male
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Where You Live : micco fl.
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First Name : nikki
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URL :
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Comment : I am a sufferer of hs for the past thirteen years. I am new to the net and dont know how to get to chat rooms about it or in touch with other sufferers, so if someone could please help I would be very grateful
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Email Address : babyblue3105@aol.com
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Age : 29
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Gender : female
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Where You Live : N. Ireland
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First Name : J
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URL :
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Comment : Now that I have actually found out a name for it, HS!! I've had it since I was ten, it's a horrible thing to have. Had it in the groin first then spread to my armpits. It has totally changed my life, can't do or wear some of things I wish I could. I had t
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Email Address : corn_grl@yahoo.com
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Age : 17
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Gender :
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Where You Live : US
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First Name : Donna
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URL :
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Comment : Hi! I've had this disease for about
4 years and I didn't know what it was. I just recently found out what it is. I would appreciate it if anyone would like to write me to
share they're experiences. I had the operation to remove them this past Wednesday.
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Email Address : Dmcnwbp@aol.com
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Age : 23
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Gender : Female
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Where You Live : NY
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First Name : chontell
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URL :
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Comment : My flare ups intensified 2 years ago. Now I'm considered an extreme case. They want to completely remove the skin and skin graft me. I can't seem to find info. on skin grafting before I make a decision. Any hints?
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Email Address : chontellmm@aol.com
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Age : 30
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Gender : f
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Where You Live : Rhode Island
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First Name : Sonia
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URL : Topliss
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Comment : Have had h.s now since the age of 22 years old, have had major surgery to no avail - shall mention carbon dioxide to my doctor and keep you informed.
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Email Address : s.topliss@virgin.net
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Age : 38
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Gender : Female
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Where You Live : Stourport, Worcester
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First Name : Deirdre
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URL :
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Comment : I have had HS for 15 years. It started at puberty. I have had major radical surgery 3 times (armpits/groin). To make a long story short my dermatoligist put me on ALDACTONE. It contains a anti-androgin. It seems androgins (hormones) play a large role in H
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Email Address : d_harash@hotmail.com
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Age : 35
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Gender : Female
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Where You Live : Maryland
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First Name : javawyo
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URL :
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Comment : I was a sufferer for 15 years, the Atkins Diet has stopped the outbreaks. I know it sounds silly, but eliminating carbs, sugar, etc has stopped the outbreaks for four years. Scars are heald and RELIEF is wonderful. Try it.
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Email Address : tricia@uwyo.edu
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Age : 31
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Gender : f
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Where You Live :
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First Name : Meredith
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URL :
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Comment : I've had HS for 6 years and haven't confronted it till TODAY. If anyone wants to talk, Im in Philadelphia PA. Please, I've got to deal with this somehow.
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Email Address : lets_gomer@yahoo.com
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Age : 23
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Gender : female
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Where You Live : Philadelphia or Boston
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First Name : CrystalSinger
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URL : http://www.geocities.com/killashandracrystalsinger/crystalsingershomepage.html
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Comment : Thank you so much for this web site.
I`ve had this since I was 12 and I`m now 53.Had all the feelings the others that signed this book had.I`ve had enough!No more shame!No more guilt!I`m putting up a HS page and I`ll be working on it while I endure yet a
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Email Address : killashandracrystalsinger@yahoo.com
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Age : 53
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Gender : female
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Where You Live : NB Canada
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First Name : Rhonda
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URL :
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Comment : Hi. I have suffered from H.S. for 15 years (since I was 12 years old), but only recently found out what it is. Fear, shame, depression...I've experienced all in relation to this disease. Thanks for all the information you give on your site. It has been a
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Email Address : rlk73@hotmail.com
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Age : 27
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Gender : Female
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Where You Live : Norcross, Georgia (USA)
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First Name : Emilie
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URL :
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Comment : I've been having these symptoms since I was SIX YEARS OLD. (am now 24!). Was told it was a rash or folliculitis. Finally I left my usual HMO and was diagnosed in five minutes by an independent dermatologist. Am just so relived to have a name to put to thi
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Email Address :
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Age : 24
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Gender : usually female, but it depends on how i'm feeling that day;)
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Where You Live : Ohio, USA
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First Name : lucy
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URL :
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Comment : I KNOW HOW YOU FEEL. WOW! Dealing since puberty. I truly believe that our diets can cause more frequent flareups. When I'm eating fruits, vegs and protein, I don't have too many problems. Chocolate and fatty foods cause a problem. Carbs? (Perhaps) I have
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Email Address : lucy_90254@yahoo.com
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Age : 37
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Gender : female
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Where You Live : Southern California
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First Name : Celeste
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URL :
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Comment : I have lived with HS for almot 16 years. I believe that sites like these will allow us to find a cure in the near future--while allowing us to live more comfortably today.
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Email Address : moore_celeste
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Age : 29
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Gender : Female
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Where You Live : New York
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First Name : Rachel
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URL :
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Comment : Thank you for doing this page- and with some humor-it's good to know I'm not alone-
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Email Address : trarac@msn.com
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Age : 27
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Gender : female
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Where You Live : Texas
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First Name : Nikki
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URL :
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Comment : Thank you for the information! I have now learned that what I have had in my groin for the past 14 years was HS and not sebaceous cysts like all the doctors thought. Thank you, thank you, thank you for all your info! I have tried surgery also and it didn'
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Email Address : nportnoff@home.com
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Age : 28
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Gender : F
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Where You Live : California
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First Name : Aly
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URL :
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Comment : Have just self diagnosed myself after suffering for about 7 years, would love 2 hear from fellow sufferers with any tips
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Email Address : sugar.lips@tesco.net
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Age : 33
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Gender : Female
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Where You Live : Kent UK
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First Name : Maripat
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URL :
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Comment : My husband Brent suffers terribly from HS. He has been thru many I&D's, surgical excisions and multiple grafting. I am so glad to find that others have this only because so few medical people have an understanding of the affects let alone the treatment.
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Email Address : hugnurse@AOL.COM
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Age : 44
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Gender : m
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Where You Live : Fl
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First Name : TERI
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URL :
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Comment : I HAVE BEEN DEALING WITH HS FOR OVER 20 YEARS. I HAVE HAD BOTH ARMPITS TOTALLY EXCISED AND OVER 4,000 DRAINAGES IN THE PAST FEW YEARS. I HAVE SEEN EVERY TYPE OF DOCTOR KNOW FOR THIS TO NO AVAIL. HAVE'T FOUND MANY SITES FOR THIS PROBLEM OR ANYONE ELSE WHO
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Email Address : TERIANDART@ADELPHIA.NET
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Age : 46
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Gender : FEMALE
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Where You Live : NEW HAMPSHIRE
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First Name : brenda
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URL :
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Comment :
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Email Address : brendacallbrenda@aol.com
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Age : 34
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Gender : female
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Where You Live : long lsland n. y .
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First Name : brenda
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URL :
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Comment :
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Email Address : brendacallbrenda@aol.com
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Age : 34
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Gender : female
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Where You Live : long lsland n. y .
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First Name : Sandy
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URL :
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Comment : I have had hs since I was about 11 years old. I am now 27. I have just within the last year figured out what it is. I have been to several doctors and still had not been clinically diagnosed with hs. I am seeing a new doctor next month and will be bringin
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Email Address : chummy2874@aol.com
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Age : 27
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Gender : female
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Where You Live : Massachusetts
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First Name : Stacey
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URL :
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Comment : Thanks for sharing such a great and important site....so glad I found you!
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Email Address :
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Age : 30 something
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Gender : female
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Where You Live : Midwest - USA
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First Name : Joyce Hsieh
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URL : www.geocities.com/yueh_ling_hsieh
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Comment : Joyce is always waiting for your calls and email.
Prepared to take her a free ride and you will enjoy the unexpected warmth.
My naked pics are free for collection and I will provide more through designated website at
http://communities.msn.com/Joyc
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Email Address : joyce000hsieh@yahoo.com
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Age : 27
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Gender : F
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Where You Live :
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First Name : Kandi
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URL :
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Comment : I was just diagonised with HS today but have had it for 5 yrs. Thanks to all who have shared info about hs
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Email Address : crzynurse2b@hotmail.com
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Age : 25
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Gender : f
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Where You Live : Oklahoma
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First Name : Mary
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URL :
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Comment : Had HS for 30 years, and going to the doctors again today. I get the lumps in all sorts of places, and had surgery etc. Get site and nice to know I am not on my own
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Email Address : mw@roundabout91.fsnet.co.uk
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Age : 49
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Gender : female
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Where You Live : Birmingham,England
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