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First Name : Tara
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URL :
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Comment : I cant believe how many people suffer this disease. I have had HS for 5 years it is progressivly getting worse. I now get them on my groin, under breasts, armpits ears and sometimes on my bum. I have also had three surgeries on a pilonidal cyst. Most of t
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Email Address : taragoossen@hotmail.com
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Age : 24
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Gender : F
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Where You Live : Edmonton Alberta Canada
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First Name : Ross
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URL :
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Comment : Had11yr,got bad as time goes on,Stuck in bed most days with stingy strain pain till bursts,I get incapacity benifit.Does Anyone know of or get disibility benifit DLA etc
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Email Address : ross@maddock1916.fslife.co.uk
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Age : 26
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Gender : Male
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Where You Live : Scotland
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First Name : Kate
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URL :
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Comment : Just out of surgery today...28th operation, incl. skin grafts. Suffered for 25 yrs-strong family history. Tried every known medication & alternative treatment. But hey...it could be worse!
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Email Address : covertkate@hotmail.com
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Age : 32
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Gender : F
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Where You Live : New Zealand
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First Name : Jamie
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URL :
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Comment : Im so pleased to find someone else who has got hs ,but to my suprise there is so many people out there,my heart goes out to each and everyone god bless u all.
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Email Address : mebitch@fsmail.net
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Age : 37
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Gender : male
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Where You Live : GATESHEAD
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First Name : Jo
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URL :
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Comment : Hi!
Firstly, Is this site for UK residents?
Secondly, having searched on the internet on many occasions for HS related material and support groups this is the first time I have come across this Website!!
I think I will have a browse through the s
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Email Address : jo78@hotmail.com
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Age : 25
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Gender : Female
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Where You Live : Scotland
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First Name : josie
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URL :
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Comment : I know im not the only one but never met any one with the disease ive had it since i was 16 im now 30, even extentsive surgery hasnt made a difference, I just live in hope of a simple effective cure
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Email Address : josiphine321@aol.com
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Age : 30
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Gender : female
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Where You Live : south west UK
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First Name : Dana
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URL :
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Comment : Ive only been suffering from this since 6/03, but was just diagnosed today. I only get the boils under my arms and Ive never had one burst, however when one appears I get flu-like symptoms: body aches, muscle pain, my throat feels swollen. Does anyone els
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Email Address : baynick@comcast.net
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Age : 34
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Gender : Female
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Where You Live : Mechanicsville, VA
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First Name : Tracey
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URL :
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Comment : Thank you for this web-site.
I have suffered HS for 16yrs,and feel as if nobody understands,I can not keep going on like this Please can somebody help. I can not work but iam not classed as disabled no help from nobody and its hard trying to raise a fami
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Email Address : whitbytm@aol.com
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Age : 32
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Gender : Female
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Where You Live : Cumbria,UK
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First Name : Helen
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URL :
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Comment : Had many attacks over the years, was going in hospital last week for surgery but guess what op was cancelled...good old NHS can any one tell me the goods or bads about sugery how will it help afterwards
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Email Address : helenquelch@hotmail.com
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Age : 51
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Gender : female
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Where You Live : Milton Keynes
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First Name : Christine
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URL :
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Comment : I am amzed that I have found fellow sufferers, have had this for 12 years or more, it does affect your life and make you very self conscious, thanks for highlighting it.
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Email Address : chris.wheavil@btopenworld.com
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Age : 36
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Gender : Female
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Where You Live : Eastleigh, Hampshire. UK
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First Name : tracey
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URL :
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Comment : has any one tried colonic irrigation? maybe the less toxins i have in my body the better i can fight the thing.
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Email Address : crntracey@btinternet.com
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Age : 36
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Gender : female
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Where You Live : bournemouth dorset
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First Name : louise
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URL : england
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Comment : Ive had hs for 20yrs only just found out it has a name.Im desperatly seeking relief/cure please email me. Anyone heard of benefits of colloidal silver?
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Email Address : chowneylouise@lycos.com
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Age : 38
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Gender : female
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Where You Live : hertfodshire
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First Name : Mary
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URL : www.excite.com
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Comment : If ever the need for a public awareness on a disease it has to be this one. Unless a person has HS. They have no idea the torment in our lives.Through awareness I believe someday there will be a cure,at least I hope so. Peace & Love. Mary
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Email Address : masterjackca@excite.com
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Age : 50
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Gender : Female
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Where You Live : Prince Edward Island, Canada
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First Name : Suzanne
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URL :
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Comment : This is a great site. I have had HS for 15years and am now beginning to understand it thanks to web sites like this one!!! I am not alone!!!
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Email Address : dekkerhowe@zonnet.nl
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Age : 30
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Gender : Femaile
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Where You Live : The Netherlands
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First Name : Anji
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URL :
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Comment : I have had HS for as long as i can remeber, but was only told what it was this year, after many years of suffering.
I would love to hear from anyone who could give me some tips or who just wants to chat to someone about it.
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Email Address : anji_morrish@yahoo.co.uk
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Age : 20
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Gender : female
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Where You Live : Devon, England
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First Name : Ashley
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URL : www.geocities.com/ashame2004
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Comment : I have HS and I’ve had it since I was in 6th grade I never really did any research on it that was mostly my mothers department, but now my HS has gotten a little worse so I’m doing a little research of my own this page/website has been a big, big help I’m
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Email Address : ashame2004@yahoo.com
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Age : 17
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Gender : Female
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Where You Live : Maryland
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First Name : Dave
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URL :
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Comment : Have been diagnosed now for 31 years. I have it in the groin, buttocks and armpits. Many surgeries over the years. I do not have any words of wisdom. Just get used to it, no hope in site. I am not the best at it, but am still trying in my own way. Good lu
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Email Address : dnb239@comcast.net
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Age : 49
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Gender : Male
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Where You Live : Jacksonville, Florida, USA
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First Name : Carole
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URL :
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Comment : Suffered all over with hs for most of my life -I was told Id grow out of it- 39 now and worse than ever!!!!
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Email Address :
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Age : 39
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Gender : female
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Where You Live : Herts,England
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First Name : Jackie
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URL :
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Comment : Ive had HS for about 7 years, however, I was only diagnosed properly 2 years ago. I also suffer from Chronic Fatigue Syndrome (ME) and would be particularly interested in hearing from anyone else who has both conditions.
Heres hoping that a cure is fo
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Email Address : jacksterw@btopenworld.com
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Age : 27 but feel older!
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Gender : Femail
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Where You Live : West Sussex, UK
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First Name : karen
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URL :
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Comment : will some person come up with a cure to this painfull condition as i have suffered this for 13 long painfull years.
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Email Address : kmsc24380@blueyonder.co.uk
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Age : 39
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Gender : female
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Where You Live : dundee
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First Name : laura
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URL :
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Comment : my brother suffers from h.s and until now i have not realised the pain he has had to go through. this is because i have now had to suffer an absess in the groin myself and the pain can be excrutiating and i cant imagine knowing that this will be coming ba
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Email Address :
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Age : 15
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Gender : female
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Where You Live : liverpool, england
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First Name : Maggie
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URL :
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Comment : just stumbled across this web page and was glad i did, ive suffered from HS for 5yr, just recently had surgery and guess what they are back with a vengance, so glad info like this is available to sufferers, as at times i feel im the only one in the world
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Email Address : jay jay cutie@aol.com
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Age : 34
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Gender : female
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Where You Live : Scotland
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First Name : keith
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URL :
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Comment : I was diagnosed with this disease about 2 years ago. I have had one surgery and thought at the time that that would be the end. Not true as many of you know. I can figure out why at 35 this starts with me. I always had some boils behind my ears every coup
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Email Address : keitht@ahrcnyc.org
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Age : 37
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Gender : male
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Where You Live : NYC
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First Name : robin
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URL :
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Comment :
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Email Address : gburkett@kconline.com
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Age : 32
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Gender : female
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Where You Live : larwill indiana
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First Name : Lyn
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URL :
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Comment : New Petition Site Please sign.
www.petitiononline.com/acure4hs/petition.
If probs. go to www.hs-usa.org
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Email Address : patricia.brooker@btinternet.com
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Age : Old Enough to know better
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Gender : Female
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Where You Live : In my own little world of pain
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First Name : zigi
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URL :
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Comment : my dr told me i would grow out of my hs i was 40 i am now 47 and still suffering 25 years ive had it and only just found this web site.
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Email Address : zigi.sharp2@ntlworld.com
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Age : 47
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Gender : female
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Where You Live : hertfordshire england
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First Name : Angie
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URL :
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Comment : Just had surgery yesterday to remove the infected skin in two places in my groin. I have suffered with this for over 10 years. Feeling posotive will let you know
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Email Address :
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Age : 37
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Gender : Female
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Where You Live : England
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First Name : Susan
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URL :
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Comment : I have just been diagnosed with this awful disease. I am trying to be positive about it because my internist seems confident that he can control it with 500mg of Ceftin 2 times per day for 30 days. He says that he has seen about 30 cases and this treatmen
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Email Address : slaugherty@aol.com
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Age : 51
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Gender : Female
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Where You Live : North Alabama
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First Name : daiy
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URL :
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Comment : Suffered from age 15, diagnosed at 24 years old. Went into remission for almost five years, but... its back, and worse than ever. Gonna have surgery soon... :( Hugs to yall
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Email Address :
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Age : 29
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Gender : female
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Where You Live : europe
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First Name : audrey
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URL :
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Comment : Really good website. have been suffering nearly 2 years doctor been really good finally put name on it. an suffering at minute like lots of others am glad am not alone.will be visiting this site again.
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Email Address :
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Age : 26
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Gender : female
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Where You Live : ireland
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First Name : Jessica Berndt
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URL :
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Comment : I signed this same page back in 99 cant believe i stumbled across it again, still not a whole lot of relief from my HS although surgically removing HS sites has slowed it down in those areas,,any wishes to talk about anything at all feel free to email me,
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Email Address : jberndt474@earthlink.net
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Age : 27
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Gender : Female
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Where You Live : FORT RILEY KANSAS
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First Name : mande toubkin
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URL :
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Comment : newley diagnosed and devistated,thank goodness my dr is wide awake.
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Email Address : mandet@absamail.co.za
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Age : 39
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Gender : f
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Where You Live : south africa jhannesburg
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First Name : Tanisha
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URL :
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Comment : I just found out last month that I have this disease even though Ive lived with it for over 13 years. Its very painful and I may need surgery. Im just glad to know Im not the only one.
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Email Address : tanisha.andy@verizon.net
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Age : 27
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Gender : Female
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Where You Live : Southern California
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First Name : sherri
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URL :
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Comment : Me Again. I was just reading some past guest book comments. My question is is there anyone out there like me who has Hs all over. I have it in my groin, neck, breast, trunk, underarms and forearms and inner thighs?
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Email Address : whi257@bellsouth.net
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Age : 38
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Gender : female
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Where You Live : Kentucky, USA
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First Name : sherri
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URL :
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Comment : Im in the USA and my dermatologist has started me on Dapsone she says if i can tolerate the drug (which can cause hemoglobin problems) that i will be the happiest girl on earth. I havent seen anyone on the web sites who mention this so I thought I would t
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Email Address : whi257@bellsouth.net
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Age : 38
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Gender : female
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Where You Live : USA/ Kentucky
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First Name : GINA
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URL :
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Comment : I AM SO GLAD TO KNOW I AM NOT THE ONLY ONE WITH THIS.
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Email Address : GINABGH@BELLSOUTH.NET
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Age : 36
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Gender : F
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Where You Live : TENNESSEE
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First Name : KRYSTEIA
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URL :
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Comment :
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Email Address : krysteiahake@yahoo.com
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Age : 45
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Gender : F
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Where You Live : IDAHO, US
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First Name : Shauna
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URL :
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Comment : I cant help myself but to become emotional while reading these pages I know the pain mentally and physically that comes with having this disease. I just wish that others could understand, the shame the ugliness and loathing that is felt when i glare in th
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Email Address : hssuffererpd@yahoo.com
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Age : 22
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Gender : Female
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Where You Live : Toronto,Canada
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First Name : Donna
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URL :
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Comment : I have had tons of lesions since I was 20. Many injected, others drained. Getting ready to get surgical removal of the ones that have tunneled. I take Aldactone, which is an androgen blocker, and that keeps them down to 1 or 2 lesions.
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Email Address : SkyB1@msn.com
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Age : 42
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Gender : Female
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Where You Live : North Carolina
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First Name : Monica
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URL :
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Comment : Thankyou thankyou thankyou. I have suffered with hs since i was 21yrs old. I have had some horrendous times with it. I am relieved that there is someone out there who understands just how awful and inconvenient this thing is.
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Email Address : m.jefferies@armymedic.org
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Age : 37
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Gender : female
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Where You Live : North yorkshire
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First Name : Debbie
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URL :
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Comment : Id like to wish all sufferers of this nightmare of a disease the very best of luck that a cure is around the corner!! I have suffered for more than 20 years now and tonight I took my 14 year old daughter to the Doctor because of a lump under her arm. This
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Email Address : kinless@bigpond.com
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Age : 41
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Gender : Female
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Where You Live : Queensland, Australia
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First Name : Sally
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URL :
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Comment : Thank God. Im not a freak. There are others with this crippling disease.
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Email Address : spratt@tory.com.au
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Age : 42
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Gender : Female
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Where You Live : Australia
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First Name : Eli
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URL :
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Comment : My name is Eli Im 63 years old and Ive had the chronic disorder, which has a name now called Preianal Hidradenitis Suppurativa. Ive had H/S for over 40 years Ive had surgery 27 times as of 2/5/03, Its not talked about in this country (U.S.A.) and thats be
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Email Address : elijahbud@hotmail.com
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Age : 63
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Gender : male
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Where You Live : Houma, Louisiana
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First Name : Denise
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URL :
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Comment : It appears there is not room for my life story. Well then, I would enjoy speaking with others about HS. Please feel free to shoot me an email...I would enjoy conversing with others who suffer!
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Email Address : calicaffeinefreak@yahoo.com
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Age : 27
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Gender : Female
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Where You Live : East Bay Area, California
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First Name : Denise
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URL :
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Comment : I have had HS since I was 12 years old. I was treated by a dermatologist for Acne at that time. I tried every antibiotic available and finally took Acutane, which we all know does not help HS. I quit seeing a dermatologist after about a year of religious
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Email Address : calicaffeinefreak@yahoo.com
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Age : 27
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Gender : Female
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Where You Live : East Bay Area, California
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First Name : Debra
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URL :
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Comment : Ive had it for a really long time. Did anyone else have major reproductive problems? Im finally a Mom but it was a miracle! Trying to find clues,links and answers.
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Email Address : MsDebraTS@AOL.com
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Age : 42
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Gender : Female
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Where You Live : Bardonia, NY USA
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First Name : Lisa
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URL :
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Comment : Ive suffered with Hs since puberty but I always put it down to being overweight. Ive been too scared to go to the doctors about it and never actually know what it was until today when I discovered it on the Internet. I suffer mostly with my inner thighs a
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Email Address : ebs_lisa@yahoo.com
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Age : 22
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Gender : f
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Where You Live : UK
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First Name : ruth
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URL :
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Comment :
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Email Address :
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Age :
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Gender :
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Where You Live :
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First Name : Dora Gjelaj
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URL : From Toronto Canada
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Comment : I have just found out that I am suffering from H.S. If you can please mail me any information that will help me research and become involved in. 1-62 Cassandra Blvd. Tor. Ont. M3A 1S6 Thanks so much. Dora
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Email Address :
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Age : 31
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Gender : female
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Where You Live : Toronto Ontario
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First Name : Sarah
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URL :
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Comment : Hi. Ive had HS since I was 13. Had an operation then to remove the first lump, didnt heal very well and was scared to tell my parents when I got more because I thought theyd send me back to hospital. Im now 21 and at last know what Ive got (strange how so
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Email Address : eiffel252@hotmail.com
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Age : 21
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Gender : female
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Where You Live : Norfolk, England.
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