|
First Name : Debbie
|
|
URL :
|
|
Comment : I have had HS since I was 13 yrs old. I am now 47. I have had surgeries on both arm pits and am now starting to get leasions there again. 3 yrs ago I was the lucky recipient of the flesh eating bacteria. the drs. say that it got in thru one of the lesions
|
|
Email Address : debbie_guess@earthlink.net
|
|
Age : 47
|
|
Gender : Female
|
|
Where You Live : Washington, USA
|
|
|
First Name : Cheryl
|
|
URL :
|
|
Comment : Isnt it sad that we have to do our own research and treat ourselves because the doctors cant or dont know how. :-( I have suffered with this for about 10 years now. If anyone would like to chat...feel free to email me. :-)
|
|
Email Address : cheryl.boswell@ed.gov
|
|
Age : 34
|
|
Gender : Female
|
|
Where You Live : Fredericksburg, VA
|
|
|
|
First Name : kath
|
|
URL :
|
|
Comment : katrina from Glenrothes in Scotland,I have also suffered with chest/joint pains with hs,email me to compare notes!!!!
|
|
Email Address : kathrynclarke1970@hotmail.co.uk
|
|
Age : 35
|
|
Gender : femail
|
|
Where You Live : Liverpool
|
|
|
|
First Name : jane jackson
|
|
URL :
|
|
Comment : i have suffered from the awful condition of hs since i was 16 and no one can understand how it feel when you can not use your arm as the lumps in your armpit are so sore you just long for them to burst. i got surgery on my left arm in 1994 and have had no
|
|
Email Address : janejack77@hotmail.com
|
|
Age : 38
|
|
Gender : female
|
|
Where You Live : scotland
|
|
|
|
First Name : clare
|
|
URL :
|
|
Comment : I would like to say hi to everyone i thought i was alone and a freak but i have learnt so much about HS over these past days since I found out after 9 years whats wrong with me. if anyone wants to chat email me.
|
|
Email Address : clarehartles@hotmail.com
|
|
Age : 20
|
|
Gender : female
|
|
Where You Live :
|
|
|
|
First Name : Emma
|
|
URL :
|
|
Comment : It is so awful that so many of us suffer with this illness, but good to know Im not alone. One day they will find a cure!!!
|
|
Email Address : emma_livesey_1@hotmail.com
|
|
Age : 26
|
|
Gender : Female
|
|
Where You Live : England
|
|
|
|
First Name : Robert
|
|
URL : http://hs-foundation.org
|
|
Comment : Thank you Andy for having the courage to create these pages.
|
|
Email Address : msab@hs-foundation.org
|
|
Age : 38
|
|
Gender : Male
|
|
Where You Live : Melbourne, Australia
|
|
|
|
First Name : pamela mcintire
|
|
URL :
|
|
Comment : since 1991 i have had 65 knotts lanced please im looking for help and cant take nomore
|
|
Email Address : bigrigd1@AOL.COM
|
|
Age : 36
|
|
Gender : FEMALE
|
|
Where You Live : WASHINGTON,STATE
|
|
|
|
First Name : pamela mcintire
|
|
URL :
|
|
Comment : since 1991 i have had 65 knotts lanced please im looking for help and cant take nomore
|
|
Email Address : bigrigd1@AOL.COM
|
|
Age : 36
|
|
Gender : FEMALE
|
|
Where You Live : WASHINGTON,STATE
|
|
|
|
First Name : Donna
|
|
URL :
|
|
Comment : Hi ya all! Well who would have thought that there were as many people as there is suffering - im 20 and have had HS since i was 12 only just recieved offical dignosis as i m lucky enough to have a very nice gynacologist and dermatologist. its a pain in th
|
|
Email Address : smily_welsh_girl@hotmail.com
|
|
Age : 20
|
|
Gender : lady!!
|
|
Where You Live : Hampshire
|
|
|
|
First Name : Sharron
|
|
URL :
|
|
Comment : Very informative with a sense of humour added in. Its only by info like this I found out there was no cure for HS - the doctors know very little and I feel pushed to one side because they cant help. Thank god for sites like yours!
|
|
Email Address : dibbleghyl@aol.com
|
|
Age : 36
|
|
Gender : Female
|
|
Where You Live : United Kingdom
|
|
|
|
First Name : Nikki
|
|
URL :
|
|
Comment : I have had HS for 23 years, so I feel so sorry for people with this nightmare of a condition.
|
|
Email Address :
|
|
Age : 43
|
|
Gender : f
|
|
Where You Live : hertfordshire
|
|
|
|
First Name : Monti
|
|
URL :
|
|
Comment : I have had this condition since shortly after the birth of my youngest son 9 years ago. Not sure if the pregnancy or the lithium I was on for PND had anything to do with it. I have felt like a freak, like no one understood what I was going through. thank
|
|
Email Address : justmontiuk@yahoo.co.uk
|
|
Age : 40
|
|
Gender : Female
|
|
Where You Live : UK
|
|
|
|
First Name : Julie
|
|
URL :
|
|
Comment : Eliminating simple sugar and eating smaller, more frequent meals throughout the day made my HS disappear--hasnt returned for over a year.
|
|
Email Address :
|
|
Age : 39
|
|
Gender : Female
|
|
Where You Live : Wisconsin, USA
|
|
|
|
First Name : Julie
|
|
URL :
|
|
Comment : I have suffered with HS for over 20 years. I have seen doctors who prescribed anitibiotics and discussed surgery. Last year I discovered that by eliminating simple sugars in my diet, and by eating smaller, more frequent meals throughout the day, that the
|
|
Email Address :
|
|
Age : 39
|
|
Gender : Female
|
|
Where You Live : Wisconsin, USA
|
|
|
|
First Name : Nikki
|
|
URL :
|
|
Comment : I HAVE HAD HS SINCE I WAS 20 I AM NOW 43 & SO SICK OF THIS HS. ANY ONE OUT THERE WITH SOME UP TO DATE TIPS. THANKS
|
|
Email Address : tigerlilyb4@aol.com
|
|
Age : 43
|
|
Gender : female
|
|
Where You Live : cheshunt, herts england
|
|
|
|
First Name : Claire
|
|
URL :
|
|
Comment : I never have been diagnosed, the doctors here have no idea except that its a skin disorder. This website has helped me understand what it is I have. Its not good, but Im glad theres others to share this with. Email me if anyone wants to share privately.
|
|
Email Address : happy2bme621@yahoo.com
|
|
Age : 21
|
|
Gender : female
|
|
Where You Live : Texas
|
|
|
|
First Name : KATRINA
|
|
URL :
|
|
Comment : Me again I would like to know if anyone else suffers chest or joint pain with their H.S.My last message must have been too long.
|
|
Email Address :
|
|
Age : 41
|
|
Gender : F
|
|
Where You Live : Fife, Scotland
|
|
|
|
First Name : katrina
|
|
URL :
|
|
Comment : I had been going to my G.P. for fifteen years with abcesses in both axilla, my groin,but I was never diagnoised until five years ago on holiday in Greece when I developed chest pain, it appears because I had suffered with this condition undiagnosed for so
|
|
Email Address :
|
|
Age : 41
|
|
Gender : F
|
|
Where You Live : Glenrothes, Fife, Scotland
|
|
|
|
First Name : Hamish
|
|
URL :
|
|
Comment : So i finally made it to university after having to retake my second year of A-Levels due to this curse. I say curse because most days i feel like Frodo having to carry that damn ring around with him everywhere he goes! Its the little things i miss about n
|
|
Email Address : karamsadkar_8@hotmail.com
|
|
Age : 20
|
|
Gender : Male
|
|
Where You Live : Essex, England
|
|
|
|
First Name : louise
|
|
URL :
|
|
Comment : ive had h.s for 5 years(diagnosed}god knows how many years b4.im on my 5th surgery so far .im so glad ive found others who suffer to.was beginning to think i was some sort of freak.its gd to know im normal.anyone out there who wishes to chat please contac
|
|
Email Address : looouuuw@yahoo.com
|
|
Age : 35
|
|
Gender : female
|
|
Where You Live : england
|
|
|
|
First Name : louise
|
|
URL :
|
|
Comment :
|
|
Email Address : looouuuw@yahoo.com
|
|
Age : 35
|
|
Gender : female
|
|
Where You Live : england
|
|
|
|
First Name : karen
|
|
URL :
|
|
Comment : hey i thought it was only me lol had it for years stage 3 always have them my brother now has a few anyone who wants to chat please e mail and i will reply to all they must be able to look into this more
|
|
Email Address : jistweeme@hotmail.com
|
|
Age : 41
|
|
Gender : female
|
|
Where You Live : nr bathgate scotland
|
|
|
|
First Name : Shell
|
|
URL :
|
|
Comment : Is so nice to know that you are not alone! Although my friends and family are supportive, no-one understands what this is like unless they have gone through it. Am considering surgery and would be interested to hear others experiences of this.
|
|
Email Address : derek@dcoulson.wanadoo.co.uk
|
|
Age : 26
|
|
Gender : Female
|
|
Where You Live : North East
|
|
|
|
First Name : Nancy
|
|
URL :
|
|
Comment : Been dealing with this since age 10. I really feel sorry for anyone who has it. Its like a stigma. My mother had it also and passed it on to me but not to my sister; neither of my children have it, thank God.
|
|
Email Address : nansigali@gmail.com
|
|
Age : 57
|
|
Gender : female
|
|
Where You Live : SW Florida
|
|
|
|
First Name : shirley
|
|
URL :
|
|
Comment : Just had first surgury, only know what I have read about HS on net, now know that all I have been going through is not my fault for example the tiredness is part of the condition and not me.
|
|
Email Address : kenneth.barrett2@btinternet.com
|
|
Age : 44
|
|
Gender : women
|
|
Where You Live : Suffolk England
|
|
|
|
First Name : Tracy
|
|
URL :
|
|
Comment : Ihave suffered from HS for 24 years and it is getting worse, but I am not the only one, it helps knowing there are other people out there
|
|
Email Address : racey38@aol.com
|
|
Age : 40
|
|
Gender : Female
|
|
Where You Live : Newcastle
|
|
|
|
First Name : Clare Vaughan
|
|
URL :
|
|
Comment : I have recently been diagnosed with HS and it is just so comforting knowing there are other people out there just like.
|
|
Email Address : coolkitty@blueyonder.co.uk
|
|
Age : 28
|
|
Gender : Female
|
|
Where You Live : Telford, Shropshire
|
|
|
|
First Name : gilly
|
|
URL :
|
|
Comment : Have never been diagnosed but having come across sites with pictures of sufferers, i know i have hs. I have had it for 15 years. I look and feel disgusting. Doctor said i get boils due to stress. My whole life is affected by it and it really depresses me.
|
|
Email Address : sunshinek@hotmail.com
|
|
Age : 35
|
|
Gender : f
|
|
Where You Live : tayside/scotland
|
|
|
|
First Name : Lynda
|
|
URL :
|
|
Comment : Would like to get in contact with Helen from Penzance as I live about a mile away but the e-mail address is no longer valid.
|
|
Email Address : lycoates@aol.com
|
|
Age : 36
|
|
Gender : F
|
|
Where You Live : Newlyn, Cornwall
|
|
|
|
First Name : Maggie
|
|
URL :
|
|
Comment : Diagnosed 3 years ago after 15 years of suffering? Got a brill consultant/surgeon and very sympathetic GP. Had 3 surgeries and putting off a 4th! Very caring partner and brill employer. Just found this site although searched for months. Good to hear I am
|
|
Email Address : deadcross60@hotmail.com
|
|
Age : 32
|
|
Gender : female
|
|
Where You Live : Milton Keynes
|
|
|
|
First Name : angela
|
|
URL :
|
|
Comment : ive had hs for 23 years and had numerous treatments, surgeries, and been sent all over britain by my wonderful consultant, as im so extremely unfortunate to have hs in every part of my torso, including my back, down my sides, upper body under [and of cour
|
|
Email Address : agela.bradley517@ntlworld.com
|
|
Age : 44
|
|
Gender : female
|
|
Where You Live : glasgow, scotland
|
|
|
|
First Name : Kelly
|
|
URL : Yahoo
|
|
Comment : I have today just been diagnosed after some 25 yrs of suffering. got to start the routine of antibiotics but apprently its a case of put up and shut up. Thought I was the only person in the world who suffers these awful things. I get them all over my body
|
|
Email Address : kelly_carpent13@hotmail.com
|
|
Age : 42
|
|
Gender : female
|
|
Where You Live : kent
|
|
|
|
First Name : Val
|
|
URL :
|
|
Comment : Decided to look for up to date info on this condition which I have had for 40 years on and off.
I mostly try to ignore it! Have printed off a lot of pages and will study at my leisure.
|
|
Email Address :
|
|
Age : 57
|
|
Gender : female
|
|
Where You Live : near Canterbury, Kent
|
|
|
|
First Name : Charlotte
|
|
URL :
|
|
Comment : Just want to say i got diagnosed when i was 17/18. I had surgery, then they realised what it was but my dermotologist was great and im now pretty much lump-free and im 21. I was on dianete for a year, alongside a solution called zineryt for the entire tim
|
|
Email Address :
|
|
Age : 21
|
|
Gender : Female
|
|
Where You Live : Nr Leicester, UK
|
|
|
|
First Name : Shirley
|
|
URL :
|
|
Comment : Great site, I didnt realize so many people have this dreadful thing
|
|
Email Address : johnrobert.emmerson@btinternet.com
|
|
Age : 58
|
|
Gender : Female
|
|
Where You Live : Co Durham
|
|
|
|
First Name : tracey
|
|
URL :
|
|
Comment : I have suffered with HS for 10 years. I had surgery on my right underarm 2 years ago. Although it was traumatic as I didnt have skin grafts (just a large ugly open wound) and the dressing changes were almost unbearable, I can say now that my underarm feel
|
|
Email Address : traceyface@excite.com
|
|
Age : 36
|
|
Gender : female
|
|
Where You Live : Washington state
|
|
|
|
First Name : Melissa-Canada
|
|
URL :
|
|
Comment : I just wanted to say its great that there are support groups out there for suffers out there i was diagnosed last year!! I feel like there are others out there and im not alone :-)
|
|
Email Address : mycrotch_rocks@hotmail.com
|
|
Age : 25
|
|
Gender : Female
|
|
Where You Live : Canada
|
|
|
|
First Name : Ruth
|
|
URL :
|
|
Comment : Hi! Thank the gods, I thought I had the bubonic plague! ;) (joking)
I have had this for quite a few years and never knew WHAT it was - then I was told by the doctor I had Hypothyriodism - and after a lot of googeling I found that people with this often g
|
|
Email Address : ulvhedina2@yahoo.com
|
|
Age : 52
|
|
Gender : Female
|
|
Where You Live : Scotland (Am Norwegian though)
|
|
|
|
First Name : George
|
|
URL :
|
|
Comment : HI I have suffered with HS for 8 years.I have had surgery 3 times and all have failed.Ive also found more on my inner thighs and groin.Any advice welcome.THANX GEORGE.
|
|
Email Address : userhy3383@aol.com
|
|
Age : 24
|
|
Gender : MALE
|
|
Where You Live : South Tyneside
|
|
|
|
First Name : Ramilee
|
|
URL : http://www.geocities.com/ram21548/index.html
|
|
Comment : I have suffered from HS since 1968 and stopped counting my surgeries after #62. Although I have been using my computer for everything under the sun for the past 5 or 6 years, today is the first time I decided to research my condition. I am so thrilled to
|
|
Email Address : ram21548@yahoo.com
|
|
Age : 56
|
|
Gender : F
|
|
Where You Live : Spartanburg, SC, USA
|
|
|
|
First Name : Dee
|
|
URL :
|
|
Comment : Good to find this site .My doctor has just diagnosed HS . She prescribed antibiotics but they make me feel worse ,I have never suffered with my skin , not even spots ,so im totally bewildered by this disease . Its good to know you are there for informatio
|
|
Email Address : deepbrennan@hotmail.com
|
|
Age : 48
|
|
Gender : F
|
|
Where You Live : London
|
|
|
|
First Name : dianne bainbridge
|
|
URL :
|
|
Comment :
|
|
Email Address :
|
|
Age :
|
|
Gender :
|
|
Where You Live :
|
|
|
|
First Name : Helen
|
|
URL : hec57@aol.com
|
|
Comment : Hi,just came out of hospital yesterday,and finally told what condition im suffering from so here i am. I have them in my groin mainly and the pain is terrible so i can sympathise with all of you. I get prescribed the usual antibiotics and bath concentrate
|
|
Email Address : hec57@aol.com
|
|
Age : 33
|
|
Gender : Female
|
|
Where You Live : Penzance Cornwall
|
|
|
|
First Name : Louise
|
|
URL :
|
|
Comment : Has anyone heard of/tried an anti-chlamydia diet? I understand it is very effective in relief and reducing lessions.
|
|
Email Address : lou@packfamily.com
|
|
Age : 46
|
|
Gender : female
|
|
Where You Live : Hampshire UK
|
|
|
|
First Name : Louise
|
|
URL :
|
|
Comment : So pleased to find this guestbook but cannot find a link to a site. Is there one? Can anyone help? Have suffered with HS for about 26 years. Mainly bum, armpits and groin. Had about 9 operations the latest on breast in April. Have learned to live with it
|
|
Email Address : lou@packfamily.com
|
|
Age : 46
|
|
Gender : female
|
|
Where You Live : Hampshire UK
|
|
|
|
First Name : Jaye
|
|
URL :
|
|
Comment : My husband posted below. It is nice to find I am not alone although I have heard that Colloidal Silver can help. If Anyone has used/heard of it can they contact me
|
|
Email Address : Jaye_0@excite.com
|
|
Age : 26
|
|
Gender : Female
|
|
Where You Live : Dublin, Ireland
|
|
|
|
First Name : Kamel
|
|
URL :
|
|
Comment : Thank you so much for your site, my wife suffers HS in the groin area, mostly on her thighs, at the worst times she screams in agony as she cant sit, lie or stand to ease it. Thanks to your pages I now have some ideas on how to help her and better underst
|
|
Email Address : Jaye_0@excite.com
|
|
Age : 37
|
|
Gender : Male
|
|
Where You Live : Republic of Ireland
|
|
|
|
First Name : Robin
|
|
URL : Robo815@aol
|
|
Comment : Have suffered for several years in groin area. Just got a diagnosis 3 wks ago. Mu doc decided to try 14 days of IV (intravenous) Cipro done at home. Just got off the drip yesterday. Things are amazingly calmed down. I am feeeling hopeful but, who knows? H
|
|
Email Address : Robo815@aol.com
|
|
Age : 48
|
|
Gender : F
|
|
Where You Live : Missouri USA
|
|
|
|
First Name : Andy
|
|
URL : http://www.btinternet.com/~little_willow/
|
|
Comment : Hi there, welcome to my guestbook.
Feel free to leave a message, and browse through the old messages.
|
|
Email Address : hidradenitis@thebarricade.free-online.co.uk
|
|
Age : 27
|
|
Gender : Female
|
|
Where You Live : Outside London, UK
|
|
|
|
