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First Name : kevin
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URL :
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Comment : Hi i too have this thing called H.S I just found out what it is and don't like it. i would like 2 talk 2 some 1 out there with H.S.
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Email Address : dipping76@hotmail.com
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Age : 25
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Gender : male
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Where You Live : winnipeg canada
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First Name : marilyn
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URL : houlton
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Comment :
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Email Address : mhoulton360@msn.com
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Age : 60
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Gender : female
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Where You Live : merseyside
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First Name : Lori
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URL :
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Comment : My 12 year old daughter has just found out she has hs. she had 5 boils under 1 arm pit this week. after read the guest book I see no luck someone please give me some hope.
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Email Address : lorinotary@msn.com
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Age : 38
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Gender : female
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Where You Live : alabama
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First Name : Sandy
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URL : http://uk.groups.yahoo.com/group/hs-uk
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Comment : Please have a look at new Yahoo HS Support group for UK sufferers. There is no need to join to view messages, only if you want to post.
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Email Address : feline2000@cableinet.co.uk
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Age : 29
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Gender : F
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Where You Live : Middx
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First Name : Lisa
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URL :
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Comment : I have had HS for ten years and recently gone through very painful surgeries three of them so far and am now being told I need more. I am not sure if I can do it again.
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Email Address : lmc923@hotmail.com
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Age : 31
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Gender : female
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Where You Live : Philadelphia
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First Name : David
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URL : http://www.geocities.com/goldengirlfan91730/
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Comment : Hi Andy,
Thank you for all of the information on your webpage.
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Email Address : goldengirlfan91730@yahoo.com
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Age : 40
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Gender : Male
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Where You Live : California, us
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First Name : Jay
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URL :
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Comment : Just found this site. I have been suffering for over 2 years now. Yes its horrible, it smells its painful. I go and see a plastic surgeon next month and I find the thought of this treatment extremely scary. I read that Hugh McTavish from Perth, W. Austral
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Email Address :
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Age : 23
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Gender : f
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Where You Live : Waterloo, L'Pool, England
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First Name : GM
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URL :
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Comment : I have suffered HS for nearly 20 years, but had a course of isotretinoin with a very high dose for six months. I would warn anyone to think carefully before commencing this treatment as the side effect for me were very severe. I have also had two radical
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Email Address : gmai@mail.com
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Age : 33
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Gender : male
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Where You Live : UK (Midlands)
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First Name : Lisa
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URL :
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Comment : 31, single, good-looking, crazy girl, great career, much to offer, but afraid to initiate relationships because of this disease... I grossly scarred in groin area. I am afraid...
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Email Address : lisadoucet@hotmail,com
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Age : 31
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Gender : female
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Where You Live : Montreal
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First Name : Janet
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URL :
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Comment : Thanks for all the great info my doctors never told me. I have had HS for about 25 years. About 20 years ago a Dr treated me with Rifamkin (sp?)(used if treating TB). It cleared things up for 6 mos. On my second treatment I had an allergic reaction to the
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Email Address : jsap31@aol.com
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Age : 42
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Gender : Female
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Where You Live : NY
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First Name : Karen
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URL :
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Comment : I have HS for over 25 years. Thank you for your website. It's good (?) to know there are "others" like me.
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Email Address : babe61584@yahoo.com
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Age : 36
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Gender : Female
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Where You Live : Indiana, United States
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First Name : Tara
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URL :
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Comment : I am so glad I am not alone. Thanks for this site it has been a great help. At this point I'll try anything so anyone with suggestions please help!
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Email Address : tarame@alltel.net
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Age : 19
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Gender : female
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Where You Live : georgia
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First Name : Laura
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URL :
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Comment : Only diagnosed in January, luckily I only have it under my breasts.
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Email Address : Laura.beaton@cibasc.com
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Age : 21
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Gender : female
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Where You Live : Glasgow, Scotland
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First Name : Laura
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URL :
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Comment : Only diagnosed in January, luckily I only have it under my breasts.
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Email Address : Laura.beaton@cibasc.com
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Age : 21
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Gender : female
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Where You Live : Glasgow, Scotland
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First Name : scott
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URL : bear
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Comment : I can put up with the pain, the scars and the puss but my life is miserable with the social stigma associated with the smell this disease brings with it. I go into depression ever time people step away from me or snigger behind my back thinking I have not
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Email Address : polarbear173@hotmail.com
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Age : 40
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Gender : mail
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Where You Live : Australia
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First Name : Angela
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URL :
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Comment : I have been a sufferer of H.S. for 10 years now. It is more painful than child birth only because it is constant and never takes a break. I have it the worst in my armpits, but I also have it under my breasts and on both groins. I just had my first surger
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Email Address : mommyboyd01@hotmail.com
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Age : 23
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Gender : female
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Where You Live : central illinois
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First Name : Trisha
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URL :
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Comment : Have had HS for 2 yrs., finally got a solid diagnosis last week. Was prescribed Cleocin antibiotic, 2 caps every 4 hrs. No change yet. This is not a friendly disease. If I am able to keep laughing, I do ok.
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Email Address : ppkshires@webtv.net
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Age : 51
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Gender : female
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Where You Live : Santa Barbara, CA
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First Name : Trisha
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URL :
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Comment : Have had HS for 2 yrs., finally got a solid diagnosis last week. Was prescribed Cleocin antibiotic, 2 caps every 4 hrs. No change yet. This is not a friendly disease. If I am able to keep laughing, I do ok.
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Email Address : ppkshires@webtv.net
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Age : 51
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Gender : female
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Where You Live : Santa Barbara, CA
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First Name : Maria
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URL :
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Comment : I have had HS for 5 years. It IS a terrible thing to have and most people seem to think that I don't have a problem at all...it's good to know other people have this and know what I go through each and every day.
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Email Address : the_kidz_mom@yahoo.com
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Age : 35
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Gender : Female
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Where You Live : USA
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First Name : bob
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URL :
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Comment : Just got myself a computor.at first attemt i have found support for my condition.Going in for sugery next week iwill let you know how i get on.
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Email Address : RbtSheridan@a0l
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Age : 48
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Gender : male
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Where You Live : Glasgow Scotland
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First Name : Shannon
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URL :
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Comment : I was glad to find your page!! I have been a sufferer for 10+ years now and was only diagnosed this month with it. Thanks Again
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Email Address :
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Age : 28
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Gender : Female
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Where You Live : Idaho
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First Name : Laura
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URL :
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Comment : I have had this foul thing for about 2 years. Took me ages to go to the docs with what I thought were "boils" on my backside. Tried all sorts of antibiotics with little effect. Now my worse areas are my groin. Am currently taking my second dose of steriod
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Email Address : laura_marks1@hotmail.com
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Age : 30
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Gender : female
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Where You Live : Bedfordshire, England
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First Name : karen
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URL :
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Comment : thankyou for this great website. i hve suffered for the last 15yrs & now it seems to be getting worse. are there any other sufferers in nz?
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Email Address : bricklayer@xtra.co.nz
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Age : 42
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Gender : female
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Where You Live : westland nz
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First Name : Cathy
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URL :
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Comment : One of my younger sons, who is 15 and who also happens to be a twin was diagnosed with HS over a year ago and although he seemed to cope - things are beginning to change. I am signing in in the hope that there will be another parent who can provide some u
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Email Address : cathybelvedere@yahoo.com
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Age : 48
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Gender : female
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Where You Live : Bermuda
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First Name : annie
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URL :
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Comment : I've had this for 13 years since my daughter was born. Something needs to be done. I've only just found this site. Think I'll to Homeopathy.
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Email Address : annieharvey@bigpond.com
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Age : 44
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Gender : female
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Where You Live : Australia
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First Name : LUCY
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URL :
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Comment : just found this site-always wondered if men got this... i'm feeling self pity today,spent most of the weekend facedown in bed -so crazy, cause to all outward appearances i seem so "normal" it is uncomfortable, to be complemented on my body , by people who
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Email Address : lucy@icehouse.net
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Age : 38
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Gender : female
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Where You Live : washington
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First Name : LUCY
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URL :
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Comment : just found this site-always wondered if men got this... i'm feeling self pity today,spent most of the weekend facedown in bed -so crazy, cause to all outward appearances i seem so "normal" it is uncomfortable, to be complemented on my body , by people who
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Email Address : lucy@icehouse.net
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Age : 38
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Gender : female
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Where You Live : washington
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First Name : Ess
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URL :
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Comment : My son, aged 16, has suffered HS for many years - it's so frustrating not to be able to just take the pain away. Would love to hear from other parents in the same boat!
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Email Address : S.Matt@fsmail.net
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Age : 42
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Gender : F
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Where You Live : London
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First Name : Nicky
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URL :
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Comment : Suffering for the last 5 years -
After being sent away by my GP about 15 times.
Sent to see Dermatologist last week, learnt nothing.
Need some advice on diet.
Have the joy of taking MINOCYCLINE for the next 3 months.
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Email Address : Nikkiareed@hotmail.com
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Age : 31
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Gender : F
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Where You Live : South West, England
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First Name : Jody
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URL :
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Comment : Ive had Hidradenitis for 5 years. Many surgeries, has done nothing but worsen. Its very hard knowing that I have it so young and Ill have it forever. Any words of encouragement?
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Email Address : jody-1@msn.com
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Age : 18
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Gender : female
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Where You Live : Pittsburgh
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First Name : Yvonne
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URL :
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Comment : Have been suffering with HS for over 30 years. So pleased to find website as after all these years didnt even have a name for my illness! A cure must be found as we shouldn't be suffering as we do not in this day and age
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Email Address : sidbel@tinyworld.co.uk
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Age : 51
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Gender : Female
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Where You Live : South East London
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First Name : Tara
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URL :
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Comment : I have commented on this page before but will again now. I have had HS for eight years and am 19 now. I have my first appointment in 3 days with a dermatologist. I have seen my gynecologist and a plastic surgeon for this but no help even though they both
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Email Address : tarame@alltel.net
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Age : 19
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Gender : female
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Where You Live : GA
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First Name : tara
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URL :
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Comment : anyone else experience any vomiting and upset stomach when hs is flared up really bad? someone email me need ing a friend who can relate
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Email Address : tarame@alltel.net
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Age : 19
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Gender : female
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Where You Live : Georgia
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First Name : Bree
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URL :
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Comment : I have had this disease since I was 12 years old. I just found out a year ago that I have HS. I would LOVE to talk to anyone who can help.
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Email Address : brenana1@hotmail.com
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Age : 21
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Gender : Female
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Where You Live : Florida
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First Name : Diane
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URL :
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Comment : Thank you!! Thank you!! Thank you!!
I have been suffering from this illness since I was 15 and I am now 33. I have seen countless doctors who told me, I just need to shower more. I showered until my skin peeled and the outbreaks still came. Till this ver
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Email Address : dneuenfeldt94061@yahoo.com
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Age : 33
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Gender : female
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Where You Live : Bay Area, California
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First Name : Rebecca
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URL : becqy78@hoymail.com/
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Comment : Hi,
I was hopeing to get in touch with anybody suffering this horrible condition, who live in Australia, as I am myself and would love to talk to someone that understands me. please email me: becqy78@hotmail.com.au
Thanks this is the best site, lots
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Email Address : becqy78@hotmail.com/
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Age : 24
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Gender : Female
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Where You Live : Melbourne, Australia
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First Name : Kristen
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URL :
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Comment : Hi, wow im so happy i stumbled upon this site, i too am suffering from HS and have been for years n years, feel free to contact me to chat and rant :)
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Email Address : jkansully@aol.com
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Age : 24
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Gender : Female
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Where You Live : Fitchburg MA
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First Name : Janice
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URL :
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Comment : i have had HS for about 6 years, more intensely so for the last 3 years. Gone through 5 or so surgeries, am fed up with surgeons. I have HS under my armpits, and have been draining for the last 3 months constantly...
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Email Address : caylorm001@hawaii.rr.com
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Age : 41
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Gender : female
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Where You Live : Hawaii
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First Name : Tara
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URL :
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Comment : anyone who doesn't already know go to www.PetitionOnline.com/1015hid/ it's a petition for us.
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Email Address :
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Age : 19
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Gender : f
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Where You Live : milledgeville ga
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First Name : Vicky
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URL :
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Comment : I have h.s since I was 15, many antibiotics,lancings and dermatologists later, I have been declared disable. If anyone has any suggestions besides boil ease and level 2000 antibacterial soap please email me.
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Email Address : torresvictoria@hotmail.com
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Age : 40
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Gender : female
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Where You Live : New York
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First Name : Darryl
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URL :
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Comment : how are you able to work, i have it very bad in the groin.
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Email Address :
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Age : 23
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Gender : male
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Where You Live : akron,OHIO
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First Name : Darryl
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URL :
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Comment : I find it very hard to work, could anyone tell me if you can be disable,and still live.
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Email Address : mdhill719@aol.com
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Age : 23
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Gender : male
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Where You Live : akron OH
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First Name : Darryl
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URL :
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Comment : It seems it gets worse as it get,s hotter.Is surgery worth it.How do anyone out there earn a living. I have alot in my groin,and two under my arm. Everyday I wear blue or black shirts. same thing in briefs,because it links right through.
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Email Address : mdhill719@aol.com
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Age : 23
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Gender : male
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Where You Live : akron ,OH
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First Name : Darryl
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URL :
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Comment : It seems it gets worse as it get,s hotter.Is surgery worth it.How do anyone out there earn a living. I have alot in my groin,and two under my arm. Everyday I wear blue or black shirts. same thing in briefs,because it links right through.
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Email Address : mdhill719@aol.com
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Age : 23
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Gender : male
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Where You Live : akron ,OH
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First Name : Darryl
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URL :
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Comment : can anyone tell me how they get SSI or how they work, I am 23 but it is very painful to try to work. Is this considerd a disiblity. Does anyone have one in the groin were it is open.
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Email Address : mdhill719@aol.com
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Age : 23
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Gender : male
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Where You Live : ak, OH
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First Name : DARRYL
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URL :
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Comment : IS SSI LIKE unemployment $300 to $500 A MONTH OR IS IT TWICE A MONTH. CAN YOU SURVIVE ON THAT. CAN YOU GET MORE.
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Email Address : mdhill719@aol.com
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Age : 23
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Gender : m
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Where You Live : AKRON
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