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First Name : karen
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Last Name : heath
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URL :
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Comment : i have cml since 1995
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Email Address: : seaweanch@yahoo.com
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Date : oct.22,2003
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First Name : Janna
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Last Name : Weldele
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URL : www.caringbridge.org/mt/joeywynn
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Comment : Been looking for a young CML survivor, daughters friend newly diagnosed with it at age 15-you give me hope
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Email Address: : jannaw@centurytel.net
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Date : 09/21/03
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First Name : Louie
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Last Name : Calleja
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URL :
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Comment : Hello Kirsten. Its your flute buddies from York. Remember Soliloquy? Anyway, just stopping by to say hello. Talk about a blast from the past eh?
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Email Address: : derkapellmeister@excite.com
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Date : August 28, 2003
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First Name : tony
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Last Name :
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URL : Diagnosed with CML 5/1/02. Having transplant 8/27/03.Have brother that is a donor match.I am 46 years old and married for 27 years.I have a wonderful wife and three great kids that are helping me through this.It will be the hardest thing I have ever done
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Comment :
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Email Address: :
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Date : 8/10/03
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First Name : Ian
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Last Name :
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URL :
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Comment : Hi
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Email Address: :
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Date : 2003-07-31
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First Name : Israel
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Last Name : Newell
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URL :
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Comment : The things you find on the web, eh! Needs a bit of updating, though. Give us a call when you read this and lets do lunch! Lots of love from visitor 3737...
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Email Address: :
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Date : St. Patricks Day 2003
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First Name : Jennifer
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Last Name :
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URL :
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Comment : Hey, im doing a project on leukemia and thier treatsments, im very very glad u fought it off. i know many ppl didnt, but im glad sum do.
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Email Address: : jennbaby327
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Date : 3/11/03
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First Name : Karen
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Last Name : Waguespack
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URL : You are an inspiration to me. My daughter is currently taking Gleevec and is in remission. If things should change, we are looking at unrelated bone marrow transplant. She is 18 and I hope she does as well as you!
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Comment :
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Email Address: : wags@budgettuck.com
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Date : 1/24/03
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First Name : pat
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Last Name : curtin
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URL : pocurtin25@aol.com
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Comment : my husband is scheduled for bmt andim just surfing hehas AML
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Email Address: : pocurtin25@aol.com
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Date : 1-5-03
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First Name : Debbie
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Last Name :
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URL :
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Comment : Kirsten, I am 46 and was dx in Feb. 2002, I am currently on Gleevec 400mg a day, will get my results from first bmb after being on Gleevec the 25 th of this month I pray I am in remission!! Your story gives me hope and I thank you!!! My oldest brothe is a
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Email Address: : mooseyone@aol.com
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Date : 10-20-02
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First Name : Wayne
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Last Name : Cox
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URL :
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Comment : Hi Kirsten, great story and great website. I hope your relapse is under control. I was dx in April of this year and am on 400mg of gleevec. I also see Dr. Lipton (quite a character) I am too old for a transplant but I hope that gleevec will do the trick.
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Email Address: : wcox26@rogers.com
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Date : October 14, 2002
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First Name : Paul
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Last Name : Barsevskis
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URL : Hi Kirsten. I found your site very informative. I too am going for a MUD transplant at PMH with Dr. Lipton. Sorry to hear that you needed a DLI.
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Comment :
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Email Address: : pbarsevs@yahoo.ca
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Date : September 30, 2002
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First Name : Jacob
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Last Name : Pendergrast
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URL :
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Comment : Hi. I'm just starting my hematology fellowship in Toronto, working at the PMH. I've been feeling very disillusioned with medicine recently, following my wife's illness and the loss of our baby, but your website has inspired me again. I'm sorry you've gone
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Email Address: : Jacob.Pendergrast@utoronto.ca
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Date : August 19th, 2002
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First Name : Michelle
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Last Name : Russell
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URL :
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Comment : Your story sounds interesting.
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Email Address: : Russls51@.aol.com
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Date : 8/13/2002
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First Name : luis
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Last Name : sarmiento
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URL :
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Comment : hi, I found out I had cml 2 months ago,i am on gleevec and my blood count is now normal.i don't notice any side effects as of now. thank you for your site,and good luck.
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Email Address: : nutinserius @aol.com
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Date : july10,2002
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First Name : marc
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Last Name : dewey
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URL :
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Comment : A very well put together sight. Reading the guestbook you have guided alot of folks in from the dark, good job. I had unrelated BMT in april of '89. And now work as a raditaion therapist, one of my assignments is to deliver total body irradiation to those
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Email Address: : cmlbmt89@hotmail.com
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Date : 6/25/2002
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First Name : NINI
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Last Name : NUNEZ
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URL : I WAS TOLD I HAD CML 3 DAYS AFTER MY 28TH BIRTHDAY THIS APRIL I HAVE ONE BROTHER AND I'LL KNOW IN TEN DAYS IF HE IS A DONER. YOUR STORY HAS HELP ME IN SO MANY WAYS AND YOUR JOKES AS WELL. THANK YOU AND GOD BLESS.
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Comment :
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Email Address: : NINI427@WEBTV.NET
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Date : 06-21-2002
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First Name : NINI
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Last Name : NUNEZ
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URL : I WAS TOLD I HAD CML 3 DAYS AFTER MY 28TH BIRTHDAY THIS APRIL I HAVE ONE BROTHER AND I'LL KNOW IN TEN DAYS IF HE IS A DONER. YOUR STORY HAS HELP ME IN SO MANY WAYS AND YOUR JOKES AS WELL. THANK YOU AND GOD BLESS.
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Comment :
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Email Address: : NINI427@WEBTV.NET
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Date : 06-21-2002
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First Name : Lara
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Last Name : Coscia
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URL :
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Comment : writing a book, could you answer some questions?
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Email Address: : lusciouslara99@hotmail.com
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Date : 6/13/2002
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First Name : Elisabeth
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Last Name : Schultz
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URL : I don't even know where to start in explaining how I found your web sight, except to say that my sister had a BMT this past November. Unfortunately, we lost her earlier this year. She however did not have leukemia, she had a very rare disease called PNH,
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Comment :
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Email Address: : lizzibunni@aol.com
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Date : 06.11.02
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First Name : Candida
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Last Name : Danroth
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URL : Hi i am from Prince George, BC and and wanted to let you know I found your site to be very informative. My sister was just diagnosed with CML and I was searching for info in plain english. Thank you
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Comment :
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Email Address: : cdanroth@hotmail.com
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Date : May 16, 2002
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First Name : CALEB
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Last Name : HARTSOCK
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URL :
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Comment : HI
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Email Address: : 43570
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Date : 2002
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First Name : CALEB
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Last Name : HARTSOCK
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URL :
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Comment : HI
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Email Address: : 43570
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Date : 2002
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First Name : Barbara
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Last Name : Doorhy
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URL :
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Comment : my daughter has CML
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Email Address: : Doorhyj@aol.com
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Date : 3-29-02
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First Name : John
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Last Name : Doorhy
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URL : DoorhyJ@aol.com
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Comment : Hi Kirsten, My daughter is 19 and a freshman at NC State University. She was just diagnosed with CML in the early stages. She is now on Gleevec and we have just been told that she does not have a sibling match. She and the rest of the family are very scar
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Email Address: : DoorhyJ@aol.com
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Date : 3/7/02
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First Name : John
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Last Name : Doorhy
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URL : Doorhyj@aol.com
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Comment : Hi Kirsten,
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Email Address: :
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Date :
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First Name : Lisa
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Last Name : Reynolds
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URL : Musclebound@worldnet.att.net
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Comment : My brother is a survivor of childhood leukemia (remission for about 25 years). He has difficulty in social situations and making friends and I suspect that he is experiencing depression. Do you know of any leukemia survivors support groups or do you know
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Email Address: : musclebound@worldnet.att.net
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Date : March 1, 2002
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First Name : Julie
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Last Name : Kennedy
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URL : Hi Kirsten,
I'm 27 and I received a cml diagnosis 2 weeks ago. Thank you for sharing your experience. My oncologist has not been very forthcoming with information about the disease (most of my notions I have gathered off the internet) and about the thi
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Comment :
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Email Address: : juliemaykennedy@hotmail.com
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Date :
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First Name : Tommy
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Last Name : Vega
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URL :
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Comment : CML seeking unrelated donor
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Email Address: : tommy_vega@yahoo.com
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Date : 2-25-02
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First Name :
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Last Name :
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URL :
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Comment : god bless you
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Email Address: :
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Date :
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First Name : Jack
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Last Name : Reaster
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URL :
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Comment :
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Email Address: :
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Date :
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First Name : DEBBIE
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Last Name : JULIANO
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URL :
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Comment : MY HUBAND 24 IS GOING TO UNDERGO A TRANSPLANT IN MARCH THANK YOU FOR YOUR IMPUT
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Email Address: : MIA007MM@AOL.COM
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Date : 02-11-02
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First Name : Tracey
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Last Name :
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URL :
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Comment : I can't tell you inspiring your story was for me. I was just diagnosed with CML 2 weeks ago and have been a wild rollercoaster ride ever since. Looking back I probably had the disease for at least 3 yrs before i bothered to see a doctor about my symptoms.
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Email Address: : tfeldman@altavista.com
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Date : January 20, 2002
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First Name : victoria
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Last Name : stephens
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URL :
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Comment : Diagnosed 4-18-01 with Cml. On Gleevic since June 01.
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Email Address: : vstorymom@aol.com
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Date : 1-26-02
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First Name : Jeanne
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Last Name : king
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URL : Found out that I have cml 10-5-01
& just browsing internet to get idea of what is in store. I am currently on Gleevec which was released in U.S.A. MAY 2001 for use.
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Comment :
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Email Address: : kingelsie@attbi.com
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Date : 01-22-02
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First Name : Melody
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Last Name : Napier
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URL : Hi Kristen your story was very helpful for me.My daughter Emile was diagionosed with cml July 2001.Emile is 5yrs old .She has been on Gleevac for about 3mths and her wbc count is normal now.She has to go back for a bone marrow aspiration the 23rd of Janua
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Comment :
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Email Address: : melody.napier@verizon.net
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Date : 1-13-02
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First Name : Deanna
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Last Name :
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URL :
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Comment : I just want to thank you for putting your story up. My husband was just diagnosed with CML a week ago, and we are awaiting the results of his siblings tests. Reading your story gives me hope. Thank you!
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Email Address: : mrsjones93@hotmail.com
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Date : Jan 7, 02
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First Name : Morgan
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Last Name : Eliopulos
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URL :
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Comment : Dear Kristen, My name is Morgan Eliopulos. I'm currently a senior in high school in the state of Ohio. I have been doing extensive reseach on cancer fighters and surviviors. I'm planning to put together a journal video interviews from cancer patients/ sur
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Email Address: : lme_elio@hotmail.com
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Date : 12/17/01
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First Name : Sharon
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Last Name : Morris
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URL : HI!
I think your website is great. I was diagnosed with CML three weeks ago. I´m 28. Your story is an inspiration for everybody. It has really helped me come to terms with the illness. But I´m still feeling scared. I would really like to chat with you!
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Comment :
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Email Address: : sharon.morris@gmx.de
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Date : 21.11.01
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First Name : Tracy
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Last Name : Bausum
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URL :
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Comment : Thank-you for all of the wonderful and inspiring info. on your battle (and triumph) I am facing BMT in January and am scared to death. I am 32 years old, have a six year old son and was on interferon for 7 years. I would greatly appreciate any more info.
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Email Address: : tbausum@yahoo.com
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Date : 11/16/01
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First Name : Thomas
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Last Name : Bartholomew
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URL : N/A
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Comment : CML Diag. 09/01
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Email Address: : zipbunny@uia.net
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Date : 10/18/01
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First Name : Frances
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Last Name : Mulone
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URL :
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Comment :
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Email Address: : mulone@bbcpa.com
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Date : 10/15/01
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First Name : cheryl
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Last Name : vogel
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URL : thank you for your story,i am going to have my son bryan read it he is 17 and has cml he is being treated by gleevec .he also does not have a related donor and they havent found a match yet.i like your upbeat attitude .thank you cheryl
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Comment :
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Email Address: : vogel912@bellsouth.net
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Date : 10-04-01
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First Name : Danette
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Last Name : doucette
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URL : just was hoping to get back in touch with you about some problems i am having with cytogenic relapse, want to know how you are and what you may have gone through that would be of help for me.
Thanks
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Comment :
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Email Address: : mddoucette@hotmail.com
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Date : august 28
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First Name : Danette
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Last Name : doucette
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URL :
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Comment :
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Email Address: : mddoucette@hotmail.com
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Date : august 28
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First Name : Barb
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Last Name :
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URL : I think your web site is wonderful. My mother to has leukemia and has been treated at PMH. Would very much like to chat with you, e-mail me please
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Comment :
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Email Address: : bjvesters@hotmail.com
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Date : July 27, 2001
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First Name : Barb
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Last Name :
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URL :
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Comment :
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Email Address: : bjvesters@hotmail.com
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Date : July 27, 2001
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First Name : kim
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Last Name : logue
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URL :
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Comment : pls contact me, i'm back in toronto!
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Email Address: : loguek@hotmail.com
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Date : july 4
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First Name : Laura
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Last Name : Smart
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URL : Hi,
My husband had his unrelated transplant almost six months ago and this site has helped me understand what he has gone through. Thankyou for putting this site together.
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Comment :
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Email Address: : laurasmart78@hotmail.com
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First Name : Jerry
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Last Name : Quintyne
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URL :
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Comment : good to hear you're doing well. Keep in touch!
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