- 11/17/00 17:13:15

Comments:


Gisele Tremblay - 11/03/00 03:38:23
My Email:gisele_tremblay@hotmail.com

Comments:
Hi Kirsten, I read your invitation to visit your website in the last TIG newsletter : congratulations for this great article "Homesteading on the Web" with Gwen Harris. It was very interesting to read your story, I'm really happy for you to see you have good health, great success with your transplant. I have a 8 years old son, in very good health. I do not live anymore with his father but we are still good friends and he is indeed a great father for our son. He had CML diagnosis two years ago, he had a first BMT in march 1998. He was very well until may 2000 and then he had a relapse : leukemia came back in an advanced stade. In june 2000, he had a second BMT, same donor than the first transplant, his brother. Before the transplant, in addition to chemiotherapy, e had also total body irradiation -TBI- (two twenty minutes seances, for three days). Medical technology progressed since his 1998 first transplant : that time, he wasn't given the whole marrow, but only stem cells, by transfusion. Today is day 135 afte transplant and he is very well : up to now, this second BMT is a great success for the greatess happiness of us all. We are so greatfull to the medical teams : Montreal Maisonneuve-Rosemont Hospital (transplant) and Montreal General Hospital (TBI), Dr D uglas Fish, hematologist, and Dr Roy, oncologist, and all the wonderful people at the hospitals. It's very generous to share your story on the web, I'm happy to share also. Thank you and good luck with all your projects : I'm a librarian too and I wish you the best with your career and your whole life! Gisele.

Deb Cairns - 10/11/00 21:00:54
My Email:deb.cairns@bloodservices.ca

Comments:
Hi Buddy Wanted to see how you were, long time no talk! Email me! Deb

Diane Hewes - 09/20/00 02:56:15
My Email:dhewes@snet.net

Comments:
I'm 42 with CML going to the Hutch when they find the right donor there are 12 potential donors as of now. Just looking at everything your site sounds interesting. glad to hear you are doing well keep up the good work

Tom Stevenson - 09/20/00 01:44:14

Comments:
Kirsten - A great website, and an inspirational story! Best wishes to you!

- 08/31/00 23:18:04

Comments:


Eric G Jones - 07/24/00 05:28:45
My Email:egavinj@hotmail.com

Comments:
Kirsten, I was diagnosed with CML on July 3rd, 2000 with a white count of 450,000 and just released from the hospital last week after getting my blood cell counts and other complications under control. I just turned 27 on May 2nd (ironically). I am now in the process of considering treatment methods including transplant (my brother and only sibling is not a match). It was very comforting to read your story. Thank you, I wish you the best!

Rob Hawley - 06/22/00 14:10:43
My Email:rhawley@mit.edu

Comments:
Kirsten, I have recently been diagnosed with CML. While searching for information, I came across your page. I hope that all is well and that you are still playing your flute. I am heartened by the fact that so many people are getting through this terrible disea e and continuing with thier lives. Thank you for your story. Rob Hawley

- 06/09/00 02:55:32
My Email:pikamewtew@aol.com

Comments:
I really enjoyed reading your story. My dad died from CML at age 74. At his age (diagnosed at age 70) there was not much to be done except take Hydrea. Anyway, I am glad for the younger population that something can be done and they don't have to exper ence the slow death that he did (he had no pain whatsoever - thank goodness - just chronic fatigue that got worse and worse) Best wishes to you Kirsten!

Laura Walton - 05/23/00 20:27:32
My Email:lwalton@georgian.net

Comments:
Kirsten, I am so glad to see your doing well. Your webpage is great! Talk to you soon.

CHAD BUNCH - 05/05/00 10:28:08
My Email:FORD94sc@AOL.COM

Comments:
HI ,HOPE YOU ARE DOING WELL, MY DAD WAS JUST DIANOSED WITH CML ,I GOT THE WORD THIS PAST WEEKEND.I TOOK IT PRETTY HARD IM REAL CLOSE WITH MY DAD. I REALLY DONT KNOW WHAT TO EXPECT,HE IS ON INTERFIERON RIGHT NOW , AND LOOKING FOR A DONER RIGHT NOW FOR A BM . WELL I HOPE EVERYTHING GOES OK FOR YOU, YOU AND EVRY BODY WITH CANCER IS IN MY PRARYS. THANKS FOR THE EAR.

Wendy - 04/27/00 03:01:00
My Email:windycity_98328@yahoo.com

Comments:
Dear Kirsten, I am so happy that you beat the odds:-) A dear childhood friend of mine died just a few months short of her 20th birthday. That was 16 years ago. It is harder today to deal with it, then it was then. I have alot of wonderful memories of my dear friend. I will be building a webpage in her memory soon, hope you will visit. As soon as I get it up and runny I will give you the URL. I hope you continue to do well. My prayers are with you, and so many others who have this horrible desease. Love, Wendy

Angela Wilson - 04/14/00 20:39:41
My Email:babybratt30@hotmail.com

Comments:
A friend of mine recently had a bone marrow transplant. Since I'm too far to visit, I thought sending some success stories would help. Thanks for posting your story.

Ale - 04/13/00 01:23:48
My Email:snigerts@ig.com.br

Comments:
Hey Kirsten! I love your music! Keep up the good work and congrats on your webpage(s). Cheers, Ale (the Brazil "Nut") %-)

Tessie - 04/07/00 22:45:48
My Email:chichi@hotmail.com

Comments:
had a biopsy yesterday.(WOW)I'm 41 years old with 2 kids.will not know anything till monday on results.I pray its not cml.Hang in there Kirsten. Best Wishes

miranda - 04/06/00 23:41:37
My Email:mamatsfedup@yahoo.com

Comments:
dear Kirsten, recently, my best friend was diagnosed with acute lymphocyctic leukemia. he is still in a hospital in New Orleans. it's been hard for me the last three months at school without him. in my biology class, we are doing a "portfolio". i chose th subject leukemia. Any information you can give to me about your experience would be greatly appreciated. also would you please e-mail me to let me know a little more about your experience. Thank you, Miranda Trahan

Keith Davis - 04/03/00 03:00:20
My Email:Kwdweld@aol.com

Comments:
Hello, i just want to thank you for sharing your experience with us, my brother Craig who has CML just had his BMT on 3/28/00. Thanks to you and others we have a better understanding of the procedure and recovery of this desease. By the way, i found you o my brother's web site under cancer links.He is at the Hutch in Seattle and his web site is http://w3.ime.net/~cadmaine/progress.htm Good luck and GOD BLESS YOU

LISA WOODS - 03/31/00 16:59:24
My Email:LMW277@AOL.COM

Comments:
MY TRANSPLANT WAS ON 11-10-1999. SO FAR I AM DOING OKAY.

Teresa - 03/31/00 01:49:15
My Email:STOPacciano@gateway.net

Comments:
Hello, thanks for the website. My four year old daughter Olivia also has Leukemia. it was diagnosed one year ago. Last year I did okay, this year I am panicky. Olivia is in her last year of treatment. We are trying to gather more and more information We are very active in the Leukemia Society. Just thought we would say hello. good meeting you.

Tricia Nowicki - 03/30/00 00:49:38
My URL:http://www.geocities.com/BuffyChic14_2000/Chosen.html
My Email:angel_lover_4ever@hotmail.com

Comments:
Hi, My name is Tricia, I am 14 years old(also a Canadian) and I am a survivor of CML, too. I was only 11 when I was diagnosed, but now I am cured. I am happy that you survived this devastating experience, even though I don't know you, I feel like I really d know you because we have been through the same thing. I wish you more good luck, happyness, and healthyness in the future. ~*Tricia*Nowicki*~

KATHY - 03/12/00 08:11:28
My Email:KATHERINE.A@prodigy.net

Comments:


Kirsten McKnight - 12/20/99 01:59:24
My Email:mcknight@oregon.uoregon.edu

Comments:
Hi Kirsten, My friend was just surfing the web and as a joke entered my name in a search engine and sure enough your site came up. My name is also Kirsten McKnight so I thought that I would just write to say hello. I coach basketball at the University of Oregon bu I am originally from San Francisco. And my roommate wants me to tell you that Canada rules! She's from Kamloops, B.C. From reading your site, I respect your courage and strength. Have a very Merry Christmas and a great start to the year 2000. God Bless, Kirsten McKnight 2 Corinthians 4:7

Laryssa - 10/07/99 21:59:22

Comments:
Hello Kirsten!! I dig your puddytat.

Tiffany Schmidtberger - 09/17/99 02:18:06
My Email:Tiffy_69@hotmail.com

Comments:
I really liked your info on bone marrow transplants. I am researching bone marrow transplants for a speech and if you know any good sources would u please let me know about them.

Minh Tran - 06/03/99 00:15:03
My URL:http://www.competitor.net
My Email:mtt@competitor.net

Comments:
Hi Kristen, This is a great web site...really inspirational. I hope you continue your most excellent work. GOOD LUCK! -minh

Minh Tran - 06/03/99 00:14:54
My URL:http://www.competitor.net
My Email:mtt@competitor.net

Comments:
Hi Kristen, This is a great web site...really inspirational. I hope you continue your most excellent work. GOOD LUCK! -minh

Minh Tran - 06/03/99 00:14:39
My URL:http://www.competitor.net
My Email:mtt@competitor.net

Comments:
Hi Kristen, This is a great web site...really inspirational. I hope you continue your most excellent work. GOOD LUCK! -minh

Sara Thomas - 05/28/99 18:18:32
My Email:sara@tycoch87.freeserve.co.uk

Comments:
Hi Kirsten It was really good to hear you've done so well and very inspiring. I was diagnosed with CML in December 1992, I am now 23 (24 on Monday)I live life to the full and am on Interferon which I have been administering for 6 years. I know I will have to have MUD transplant but until destiny decides I will enjoy life!

Dale Lewis Jr. - 05/07/99 20:20:05
My Email:lewis_dale@hotmail.com

Comments:
Kristen, my wife came down with CML in June of 95, she had been on interferon every since, in April of this year her last bone marrow biopsy showed where she was no longer responding to the interferon. Her doctor now says it's time to start thinking abou BMT. My wife has 3 sisters, none of them matched which means unrelated transplant.My wife will be 49 in Sept, the risk we are told are higher for a woman her age, the percentage rate for success is also lower. If you have any information this please e-ma l me. We live in Boonsboro Maryland. Thanks alot, God bless .

David Marks - 04/19/99 15:59:14
My Email:marks3@ix.netcom.com

Comments:
Great to hear how well you are doing. I lost my father to CML on 4/9/99, he was 67. But I get special solace in knowing that people like you are out there, fighting and surviving...it warms my heart.

Kandi Long - 03/21/99 02:48:29
My Email:kandi428@hotmail.com

Comments:
Hi Kristen, I read your web page quite a while ago but couldn't remember the url to come back. Well, I finally found your page again off another link. I have a brother-n-law who is 20 and was diagnosed with CML in June of 1998. He will be going in for an unrealted BM on April 13th. We are scared to death but believe he will pull through this. I want to thank you for sharing your story. It's wonderful. Take care of yourself and god bless you, Kandi and family

Laurie - 03/09/99 20:29:27
My Email:lkposadas@yahoo.com

Comments:
God is watching over you! My son will be nineteen years old and was recently diagnosed with CML on January 9, 1999. He needs an unrelated donor. I hope he is as fortunate as you were.

Jiffy Seto - 02/22/99 04:45:03
My Email:jiffyseto@hotmail.com

Comments:
Kirsten, Just surfing the web and taking a break from my studies. I am a second year medical student at Georgetown Univ. in Washington, DC and we are studying leukemias now in our pathology course. It is often difficult to place the relevance on much of the mate ial, but to know that there are people "surviving" with leukemia gives me inspiration to become a better physician and learn as much as I can about not only the scientific aspect of the disease but the social considerations also. God bless and be well. -Jiffy Seto, M'01 Georgetown Univ. School of Medicine

Marie-Paule Beland - 02/22/99 02:19:47
My Email:yowie@travel-net.com

Comments:
Dear Kirsten; I have just read your web page. Although I knew of your battle with leukemia, let me congratulate you on the courage and determination you showed. The best always,May God bless. Love Marie-Paule and Ray.

Kathy Jones - 02/18/99 01:48:01
My Email:kathyj@avalon.net

Comments:
My sister was my donor (CML) in August, 92. I relapsed in May, 96 and she again was my donor in July of that year. Presently, still experiencing cGVH (skin--legs). Doing well, singing and smiling.

paul Edwards - 01/19/99 16:14:05
My Email:pje1968@hotmail.com

Comments:
Cool and Hi

Jennifer Eichenauer - 01/13/99 22:29:22
My Email:mjike12430@aol.com

Comments:


Steven Schmidt - 01/08/99 14:02:55
My URL:http://www.stsi.net/~schmidt
My Email:schmidt@stsi.net

Comments:
Hi Kirsten, Nice site. I was diagnosed with CML 9/97. No matched sibblings but I do have a minor mismatched unrelated donor and am heading to Seattle for a BMT 1/16/99. In addition to CML I also have Crohn's (since 1990). BMT has been know to cure Crohn's, too. I was on interferon for over a year and never was able to give myself the injections. I always had my loving wife do it. Best wishes, -Steve

Sonny Rabusseau - 12/26/98 17:15:38
My Email:CML0698@aol.com

Comments:
Nice story, glad to hear your doing so well I was dx back in june of 98. Going in hospital Jan 22, 99,to have unrelated bmt looking to get this behind me Nice story keep up the good work!!!

Bill Holland - 12/21/98 20:07:28
My URL:http://ibm.net
My Email:holla15@ibm.net

Comments:
Your story is very encouraging. I have been diagnosed with cronic CML and will be undergoing a BMT in the spring. My folks were from Toronto, and I can relate to a number of the places that you mentioned I'm looking forward to many more hunting trips to the Minden Dorset area, and to fishing on Lake Simco.

Grace - 12/16/98 00:01:36
My Email:wilhelmm@earthlink.net

Comments:
Dear Kirsten

Grace - 12/15/98 23:46:37
My Email:wilhelmm@earthlink.net

Comments:
Dear Kirsten I enjoyed reading your story and marvel at how brave you are to share it with others.

Kevin Dully - 12/15/98 03:34:07
My Email:ldully@earthlink.net

Comments:
Kristen - I had a BMT in 1993 for CML. Hang in there.

Jim Galvanek - 10/16/98 20:10:09
My Email:GymeeG@aol.com

Comments:
You give me hope that my transplant will be successful in the coming weeks. Thank you an God Bless.

Liz Pope - 09/19/98 02:44:04
My Email:Zerdzy

Comments:
My sister was recently diagnosed with CML. There are 8 siblings and not one of us matched. So it is good to read a story about someone who survived an unrelated match. I printed out your story for her to read, hoping it gives her encouragement. Thank you nd I wish you the best.

Suzanne Lee - 09/16/98 20:50:23
My URL:http://www.mcg.com
My Email:sulee@mail.mcg.edu

Comments:
One of my best friends was just diagnosed with CML, I found your web-site while doing some research. Please give me ideas on where to find out as much as possible about the success rates of BMT and the treatment/recovery process. Support groups? etc. I am thrilled and inspired by your survival and I hope and pray that you are still well and recovering. I wish I could extend a big hug to you and have you know what it really means. Thank you for your story. Suzanne Lee

Suzanne Lee - 09/16/98 20:42:35
My URL:http://www.mcg.com
My Email:sulee@mail.mcg.edu

Comments:
One of my best friends was just diagnosed with CML, I found your web-site while doing some research. Please give me ideas on where to find out as much as possible about the success rates of BMT, and most importantly, the most successful doctors that perf rm the experiment. I am thrilled and inspired by your survival and I hope and pray that you are still well and recovering. I wish I could extend a big hug to you and have you know what it really means. Thank you for your story. Suzanne Lee

kja - 08/20/98 02:01:37
My Email:allbrite@gateway.net

Comments:
i'm 32, my husband is 36. he was diagnosed with ALLl in 1991, he was in remission for 6 years, but came out in december 1997. he will be undergoing an unrelated donor transplant in two weeks. thank you for the encouraging page. too many pages i have f und are not so encouraging...god bless and be with you.

- 07/06/98 03:24:32

Comments:


roger - 06/25/98 00:39:46
My Email:RFroger@aol.com

Comments:
My daughter, age 34, was dx with CML last year. she is trying her best to cope, has been following the standard medical profession protocols, interferon, etc.. she is interested in pursuing alternative therapys, if there are any for this condition. doe anyone know of such? please email me, so i can pass it on to her. I am always facinated by peoples responses when the get a good treatment result, they often thank God for it, and say things like "God is good" etc. i wonder what they say if the outcome is bad, or why did God do this to them in the first place> guess will never understand those folks with faith and/or superstition. oh well, what else would an agnostic say? thanks for your site, and you have done a nice job. Roger.

- 06/20/98 03:33:22

Comments:


janet - 06/16/98 05:01:30

Comments:
Your story is very inspirational. My mothers partner has been recently diagnosed with CML and is being treated with interferon... with terrific results to date.... any good news about CML is helpful and supportive.... keep fighting the good fight.... God Bless

melissa hughes - 05/29/98 03:22:35
My Email:melissdoug@aol.com

Comments:
I just found out I have CML and will have to undergo a non related transplant. I am 30, married, with two daughters. Your homepage was a big help and encouragement. Thanks!!

Kevin - 04/29/98 14:36:26
My URL:http://members.tripod.com/~cancerguy
My Email:kevin.acamail@mailcity.com

Comments:
Saw a link to your site on Kim's and figured I'd check it out. Very nice work...Take care & be well

Comments:
Your web site was quite useful. In particular, the www.bmtinfo.org stuff is helpful. I am recently diagnosed with cml and have initiated a search for an unrelated donor.

shannon nelson - 04/21/98 04:08:28
My Email:weagle12@juno.com

Comments:
I hope everything is well with your health now. I was diagnosed in January 1994 while I was pregnant with my only daughter. Like you, my brother wasn't a match and they wouldn't test my sister because she was only a half sibling. I did the Interferon d ring the last 2 1/2 months of my pregnancy and my daughter is fine. In June 1995, I began high dose chemotherapy. I was in and out of the hospital at that point up to six months. My doctor elected to do the autologous (self donor- stem cell transplant) I am now facing the decision of doing a allogenic transplant, with the hopes that my brother will match now enough for the miss matched related donor transplant. Right now I am having a hard time dealing with it again. It seems harder now that my daug ter is 4. I guess when the time comes to make the decision, I will get back into the battlemode and attempt once again to beat this thing. Right now, the cml is suppressed into the bone marrow, but I have developed myeloid dysplasia, do to my stem cell not grafting and being dependant on transfusions and growth hormones. I'm glad I was able to read your story. Thank you, I think reading success stories will get me through the decision process. P.S. Isn't it just like doctors to find humor in the mo t unrealistic situations????

shannon nelson - 04/21/98 03:57:41

Comments:


Becki Miller - 04/17/98 02:31:03
My Email:becanee@hotmail.com

Comments:
Hi Kirsten my name is Becki I am from West VA in US I too was diagnosed May 20 1996 with CML and I underwent a sibling donor from my sister in Jan 1997 I am now 15 months cancer free and it feels great I also wanted to say that i never realized that other patients stories were a lot the same as mine I had a really hard time with cyclosporine too I was sick for 76 days and I couldnt eat for that long so I think you are very lucky I hope you are doing well god bless you email me Becki Miller

marc dewey - 04/07/98 03:15:34
My Email:medewey@capecod.net

Comments:
really enjoyed your sight. sent you a mail. i am unrelated bmt class of '89. doing great as it sounds so are you. best of continued luck and good health. keep strong, its spring again :)

Sean O'Keefe - 03/30/98 01:41:16
My Email:seano@istar.ca

Comments:
Just signin' in here Kirsty, Sean Hi.

Jackie - 03/12/98 04:44:50
My Email:JackieJ912@aol.com

Comments:
Husband dx with CML 12/95. Allo transplant 3/96 at age 53. All 3 of his brothers perfect matches including blood type. Complete remission since 6/97. Working fulltime and doing great. God is so good. On no meds. Your story brought back memories. Than you. Have 1 cocker "Kopper" and 2 pigs. Love cats but our bird feeders priority at this time.

Rich Soucey - 03/03/98 12:44:21
My Email:rsoucey@lmco.com

Comments:
Kirsten, I was happy reading your story and was glad that it had such a happy ending. I had a allogenic BMT on April 7, 1993 for CML also. If I could have your address I would like to drop you a line. Take care of yourself, Richard M. Soucey 13 Zieglers Lane, Hamilton Square, NJ 08690

Drew Morrison - 03/01/98 15:31:10
My Email:DrewMorrison@QCOnline.Com

Comments:
Kirsten, Your homepage looks great! I found it encouraging too. I'm in line for a transplant from a babboon or someone who matches, also I think (and this is my opinion) that you should remove any reference to your site being under construction... I think both you and your site are past the point where that designation needs to remain as a label. I loved your analogy to your situation with the new growth you saw on the trees. I have a favorite quote that says "The beauty of Autumn reflects the glory of Gods love!" God bless you and Godspeed! Drew

mum - 02/15/98 17:43:46
My Email:mcknign@capitalnet.com

Comments:
Finally get to see this wonderful web page.GREAT!!!

Jenny Liane Hull - 02/13/98 12:12:09
My Email:jhull@dade.ca

Comments:
I knew Sylvester when he was really called Sebastien.

Tim Chennell - 02/13/98 06:48:11
My URL:http://www.netacc.net/~fcmlnet
My Email:fcmlnet@netacc.net

Comments:
Kirsten I read your story It brought back some memories and some simularities. I was lucky in that both my brothers were good matches. In 1985 they were not doing all the things they are doing today. I hope you are feeling good. I remember the 1st year wa the toughest getting back to (normal)? Tim C Positive Attitude

Elaine Kemp - 02/13/98 01:07:11
My URL:http://www.geocities.com/HotSprings/Spa/1515/index.html
My Email:lanners@geocities.com

Comments:
Hi Kirsten, Just checking out the competition . You have done a great job so far! I will put a link to your page on mine the next time it's updated.

Meryl - 02/13/98 01:06:01
My Email:meryls@pacbell.net

Comments:
Hi, Just stopped by to say hello

Richard Warriner - 02/06/98 14:42:23
My Email:richard_warriner@hotmail.com

Comments:
Your homepage is really looking good, Kirsten. It already looks miles better than the homepage of the guy who's designing a page for us at work. I'm going to enjoy watching your page grow and develop over the next few months. Can't wait for those .mid fil s! Am also looking forward to reading the rest of your story, even though I already know how things turned out (A Happy Ending! Yay!).

Dad - 01/25/98 22:12:50
My Email:mcknighr@capitalnet.com

Comments:
You found out. My ISP site does the same thing when I FTP files across. Luv, Dad

Becca Whitla - 01/21/98 16:14:23
My Email:rwhitla@beachnet.org

Comments:
Great web page Kirst!!