ENDO SISTER'S SURVIVAL KIT



Updated as of October 2000

Disclaimer: These links may not be current any longer, please search the web if the link doesn't work. I apologize for any inconvenience.

Dr. Cook's Endometriosis and Pelvic Pain page
Dr.Joseph Bellina and Dr. Robert Kelly
Omega Institute of Health in Louisiana

Drs. Albee & Lyons of the Center For Endometriosis Care

Dr. Redwine of St. Charles Medical Center

Dr. Harry Reich
(offices in NY and PA)

Dr. Daiter

Dr. John Rock
Emory Center for Reproductive Health
69 Butler St. SE
Atlanta, GA 30303
(404) 686-8095

Dr. Charles Miller
2101 South Arlington Heights Road
Suite 145
Arlington Heights, IL 60005
Phone (847)593-1040

Dr. James Dorsey
Greater Baltimore Medical Center
6569 North Charles Street, Suite 307
Baltimore, MD 21204
(410) 828-2767

Dr.Marc Laufer
Children's Hospital and Brigham and Women's
Boston, MA

Robert B. Hunt, MD
319 Longwood Avenue
Boston, MA 02115
617-731-6111
www.femhealthtoday.com

Dr. Robert Weiss
www.bostonivf.com
Boston, MA

David Adamson, M.D., Reproductive Endocrinology

Women's Surgery Group Specializing in Laparos...

Dr. Robert C. Shwayder
Newport News, VA

Anthony Luciano, M.D.
Center for Fertility and Reproductive Endocrinology
New Britian General Hospital
PO Box 100
New Britian, CT 06050
(860) 224-5467 Fax: (860) 224-5764

Dr. Charles Koh
Reproductive Specialty Center
2315 North Lake Drive, Suite 501
Milwaukee, Wisconsin 53211
Phone: (414) 289-9668

Dr. J.T. Wright
Rectovaginal Endometriosis article by Dr. J.T. Wright AND
Centre for Endometriosis & Pelvic Pain Home Page
Woking Nuffield Hospital
Shores Road
Woking
Surrey GU21 4BY

Dr. Ray Garry is listed as an Extra Mural Academic Staff:
Ninewells Hospital and Medical School
Dundee, DD1 9SY
Tel. - 01382-660-111
Fax - 01382-633-847
and:
Consultant Gynecologist & Medical Director Wel Foundation,
South Cleveland Hospital UK

Kamran Moghissi, MD
Reproductive Endocrinology & Infertility
Hutzel Hospital
4707 Antoine
Detroit, MI 48201
(ph) 313/745-7285

Dr. Charles Dubin, MD, FACOG.
Medical Director
Westside Menopause & Endometriosis Center
Santa Monica
phone #: (310) 899-9799

C. Paul Perry, M.D.
PCBrookwood Medical Center Drive, Suite 402
Women's Medical Plaza
Birmingham, AL 35209
and
PC1006 1st Street North, Ste. 105
P.O. Box 1389
Alabaster, AL 35007
Telephone: (205) 663-256
Email: 422589949@msn.com

Michael D. Birnbaum, M.D., F.A.C.O.G, F.A.C.E
8380 Old York Road, Suite 200
Elkins Park, PA 19027
Voice: 215.886.9116
Fax: 215.887.7072
Email: babymaker@home.com

ENDO ONLINE CHAT SITES

Endo Angels Chat Room
AOL subscribers only; this is a private chat that is open to all Endo Sisters anytime (to access, just put the name in the "private chat" option on your menu)

Health Conference Room
AOL subscribers only; chats are held every Monday night at 8:00 p.m. EST Host: Luv2Spike

Health Chat Room
AOL subscribers only; chats are held every Friday night at 10:00 p.m. EST Host: THRV Endo

OBGYN.NET p> FertileThoughts Chat Room

Endo online support friends

ONLINE SUPPORT GROUPS

alt.support.endometriosis
an UN-moderated newsgroup that you can subscribe to
through either your news server or www.Deja.com

The Swedish Endo Mailing list's website

Swedish Endo Mailing list

Endo and Interstitial Cystitis support group

About Women Endo Support Boards

alt.med.endometriosis
Moderated newsgroup, subscribe to it the same way you joined Alt.Support.Endo

ICIID'S Endo/PCOS Support Boards

Endo Support Board, check the main menu

Endometriosis@Thrive's Endo Support Folders
(note - if on AOL, the entire Endometriosis Forum can be accessed by going to KEYWORD: Endometriosis@Thrive)

Daughters with Endo - Support group for Parents

Teen Support Group

www.2cowherd.net/findings/sans-uteri.html

www.queendom.com

WITSENDO
To Subscribe, send email to: Click here! with the message: SUBSCRIBE WITSENDO your full name, do not include any other text

MENDO SUPPORT GROUP
This is the place for MEN to go to talk about endo.
A place for venting, suggestions, and support from other men who have been there too.

Endometriosis Research Center's Online Support Forum
Subscribe

ENDO ASSOCIATIONS AND FOUNDATIONS

Home page of the Endometriosis Research Center

Home page of the Endometriosis Association

Endo Assoc's List of Support Groups and links

Endo Assoc's Bedford, MA Chapter

Home page of the Endometriosis Foundation

Godzone Endo Zone - Endo in New Zealand

World Congress on Endometriosis Home Page

Hysterectomy Educational Resources & Services Foundation
4222 Bryn Mawr Avenue
Bala Cynwyd, PA 19004
215/667-7757

Endometriosis Action Group

Endometriosis Care Centre Australia

UK Endometriosis Resources

Endometriosis in the UK

ENDO WEBSITES

Sue's Endometriosis Page

GittiO's Twist of Fate

Raven's Nest

Toeloopy's Endorama

Endometriosis@Thrive's Endo Forum
(note - if on AOL, site is accessible through Keyword: endometriosis@thrive)

ThriveOnline's Pain Chart

The Endometriosis Webring Starting Page - surf the ring from here

Tricia's "Giving Endometriosis a Face" Site

Mary's Endo Awareness Site

John's "MENDO- Men and Endometriosis" Site **Now Featuring** MENDO - Version en Espaņol

"Carey's Endo Window" - also featuring a Version en Espaņol

Endometriosis Pavilion at ObGyn.net; home of the Endo Quilt

Menoi's "Endometriosis Story"

Tatti's Endo Site
(click on "Serious'" in the right frame and follow the Endometriosis link)

Antonia's Web Site

Cindy's Endo Web Page

C1's Endo Page

Endo - A Woman's Battle With Pain

Karen's "Unofficial Awareness Site"

Heather's "Endometriosis Awareness & Information" Site

Amanda's "Endo Spot on the Web" Site

Annie's Garden ~ Endometriosis, African Violets, Fun and Chat

Endometriosis Information and Links

Ability's Endometriosis Page

HandiLinks tm To Diseases - Endometriosis

www.colstate.edu/student/health/Ivminter/selfcare/endometr.htm

www.commnet.edu/QVCTC/student/dlogan/

Dream's Place

Endometriosis - Coping Together

Rebecca's Endo page

Jennifer Lewis' homepage

Ilan and Adriana's Endo Site in Portuguese

Endometriosis.org - Home of the video-
"Endometriosis. The Inside Story"

Shawnna's Endo Website

Empty Arms UK - Endo and Infertility

Endo Sisters Poem
By John A. Nix
Written 9-8-00

Endometriosis Banner Exchange

Vanessa's EndoAwareness Files

"Endo & You"

SnowKim's Endo Page

My Battle With Endometriosis

EndoMagazine

Victoria's Women's Health URL's

RECOMMENDED READING ~ Check your local library or bookstore for copies

If you want to order any books online from Amazon.com and would like part of your payment to go to Endometriosis research, you can go to the ERC's websiteand click on the Amazon link. Any Endometriosis related books listed there will have a portion of the payment contributed to the ERC for Endo research.

"Coping With Endometriosis:
A Practical Guide to Understanding, Treating, and Living With Chronic Endometriosis"
Robert H., Ph.D.
Phillips, Glenda J., M.P.H. Motta;
Paperback; @ $14.35 each

PCOS: A Woman's Guide to Dealing with Polycystic Ovary Syndrome
by Colette Harris, Adam Carey
Thorsons Pub; ISBN: 0722539754

Alternatives for Women With Endometriosis: A Guide by Women for Women
Ruth Carol

Endometriosis: Current Understanding and Management
R.W. Shaw, MD

The Endometriosis Answer Book: New Hope, New Help
Niels H. Lauerson, MD / Constance Deswaan

The Endometriosis Sourcebook
Mary Lou Ballweg / Endometriosis Association

Endometrium and Endometriosis
Michael P. Diamond, MD / Kevin G. Osteen, Ph.D.

Living With Endometriosis
Kate Weinstein

Natural Treatment of Fibroid Tumors and Endometriosis
Susan M. Lark, MD

Atlas of Endometriosis
R.W. Shaw, MD

Endometriosis
Julia Older

Endometriosis (Advances in Reproductive Endocrinology, Vol 1)
R.W. Shaw, MD

Endometriosis (Contributions to Gynecology and Obstetrics, Vol 16)
M.A. Bruhat / M. Canis

Endometriosis: A Natural Approach
Jo Mears

Endometriosis: A Problem-Oriented Approach
Donald E. Pittaway

Endometriosis: Contemporary Concepts in Clinical Management
Robert S. Schenken

Endometriosis : Symptoms/Signs/Strategy
Art Vvflgf 407 Ulene - VHS Tape

Endometriosis: The Proceedings of a Symposium Held at the VIII World Congress on Human Reproduction / Joint VI World Conference on Fallopian Tubes
L. Mettler

Endometriosis and Infertility: Traditional Chinese Medicine
Bob Flaws

"Endometriosis and Other Disorders and Infections"
Fertility and Sterility Series, Vol. 5

Endometriosis - the Enigmatic Disease
Stephen Corson

Endometriosis Today: Proceedings of the V World Congress on Endometriosis, Yokohama, Japan, 1996 (International Congress, Symposium, and Seminar) Sugimoto, World Congress on Endometriosis 1996

Laparoscopic Appearance of Endometriosis: Atlas
Dan C. Martin, MD

Medical Management of Endometriosis
Jean Pierre Raynaud, MD

Modern Approaches to Endometriosis
Eric J. Thomas / John A. Rock, MD

Overcoming Endometriosis
Mary Lou Ballweg

Peritoneal, Ovarian, and Recto-Vaginal Endometriosis: The Identification of Three Separate Diseases
Michelle Nisolle / Jacques Donnez

The Treatment of Endometriosis and Other Disorders & Infections
Y. Boutaleb / A. Gzouli

Endometriosis - Atlas
Dan C. Martin, MD

Coping With Endometriosis
Lyle Breitkopf, MD / Marion G. Bakoulis

What Women Can Do About Chronic Endometriosis
Judith Sachs

Prescription for Nutritional Healing
James F. Balch, MD

Endometriosis: The Enigmatic Disease
Stephen Corson

Every Woman's Body: Everything You Needed to Know to Make Informed Choices About Your Health
Diana Korte

The No Hysterectomy Option: Your Body, Your Choice
Herbert Goldfarb

Women's Bodies, Women's Wisdom
Christine Northrup

Women's Home Remedies Health Guide
Michelle Harrison

Managing Pain Before it Manages You
Margaret Caudill, MD

Healing Mind, Healthy Woman
Alice Domar, PhD

Our Health, Our Lives
Eileen Hoffman, MD

AMA Complete Guide to Women's Health
The American Medical Association et al

My Body: Women Speak Out About Their Healthcare
Marion Cook

Take Charge of Your Body
Carolyne DeMarco, MD

The New Our Bodies, Ourselves
The Boston Women's Health Book Collection

Hospital Benchmarks
American Health Consultants

"The Effects of Endometriosis on Implantation:
Results From Yale University on IVF & Embryo Transfer Program"
Fertility & Sterility, Vol. 65 No. 3

"A Skeleton in the Closet?
Bone Health and Therapy for Endometriosis Revisited"
Fertility & Sterility, Vol. 65 No. 4

"Adhesion Formation and Reformation after Laparoscopic Removal of Ovarian Endometriosis"
The American Journal of the American Association of Gynecologic Laparoscopists, Vol. 3 Page 389

"Ovarian Remnant Syndrome after Laparoscopic Hysterectomy and
Bilateral Salpingooopherectomy for Severe Pelvic Endometriosis"
The American Journal of the American Association of Gynecologic Laparoscopists, Vol 3. No. 3

"The Impact of Preoperative Gonadotropin Releasing Hormone Agonist
Treatment on Laparoscopic Excision of Ovarian Endometriotic Cysts"
Fertility & Sterility, Vol. 65 No. 6

"Effective Nonsurgical Treatments for Vulvar Pain"
Women's Health Digest, Vol. 3:88

Operative Techniques in Gynecologic Surgery
D. Gershenson / D. Olive

"Expression of Interstitial Collagenases is Related to the Activity of Human Endometriotic Lesions"
Fertility & Sterility, 68:246

"Laparoscopic Surgery in Infertile Women with Minimal or Mild Endometroisis"
New England Journal of Medicine, 337:217

"Cancer Risks After a Hospital Discharge of Endometriosis"
Obstetrics & Gynecology, Vol. 176 No. 3:572

Endometriosis FAQs
Ari Babakania, MD or
Click here for the website

ObGyn Journals

MEDICAL SITES

www.certifieddoctor.org

www.gradeyourdoc.com

Inlet Medical's Endometriosis Web Page

WebMD

A-FEM Medical Corporation
A-Fem is a medical technology company with multiple
platforms targeting unmet needs in women's health.

Reuter's Health News

Doctor's Guide to the Internet

Medscape

Doc Info Search Index

Medinfo

Medline

Johns Hopkins Intelihealth

A Woman's Health Guide to Typical Symptoms and Meanings

Sapient Health Network

Women's Health Site

DRUG REFERENCE SITES

When you can't afford to pay for your medications

WebMD

RXList - The Internet Drug Index

Health touch Drug Information

A GUIDE TO DEALING WITH INSURANCE COMPANIES

Mary's "Fight Your HMO" Site

DISABILITY INFORMATION

Disability Discrimination

Government Guide

Disability.gov Home Page

THE DISABILITY RIGHTS ACTIVIST

Social Security Representation

National Organization on Disability

World Association of Persons with Disabilities

Questions/ Social Security Disability

Social Security Online

#1 Disabled Online Magazine for the Disabled Community

Americans with Disabilities Act Document Center

RESEARCH AND STUDIES

The Oxegene Foundation Study on Familial Endometriosis

A Documentary in the Making

www.indra.com/natracare/dioxin-press.html

www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9070728&form=6&db=

www3.hmc.edu/~clewis/endocrine/intro.htm

www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=7926144&form=6&db=

SURGICAL REFERENCE SITES

Contraindications For Prolastic Sheeting

The Virtual Anaesthesia Textbook

www.beachcenter.com/surgical/laparoscopy.shtml

Adhesion Prevention - Incidence of Adhesions

www.asrm.com/fact/intradh.html

home.cyberave.com/~hsquare/asrm/intradh.htm

www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9050617&form=6&db=

www.laparoscopy.com

MEDICAL ASSOCIATIONS

Continental & National General Medical Societies

American Medical Association

Food & Drug Administration

LUPRON

The National Lupron Victim's Network

Fertilitext's GnRH Page

DEPO PROVERA

Provera Info on WebMD

Depo Provera Information

Depo Provera

The Depo Provera User's Information Resource

CHART OF ENDO DRUG THERAPIES AND POSSIBLE SIDE EFFECTS

www.springnet.com/ce/j710as02.htm

FERTILITY & GnRH DRUGS

www.fertilitext.org/drugs.htm

SYNAREL

www.searlehealthnet.com/pi/synarel.htm

www.suba.com/~daveb/synerad.html

home.intekom.com/pharm/searle/synarel.html

LUPRON VS. SYNAREL - STUDY

www.searlehealthnet.com/pr/endometr.html

DANAZOL

Danazol versus placebo in treatment of endo

HYSTERECTOMY/MENOPAUSE

www.menopause-online.com/estrogens.htm

www.healthy.net/clinic/dandc/menopaus/index.html

www.obgyn.net

Sans-Uteri

www.oxford.net/~tishy/asm.html

ALTERNATIVE MEDICINE AND HERBS

www.healthyagain.com

www.theherbalist.com/texthome.htm

www.bachcentre.com/index.html

members.aol.com/HerbEZine/index.html

PAIN CONTROL

www.painnet.com/contents.html

Pain Journal

www/.healthtouch.com/level1/leaflets/ahcpr/ahcpr041.htm

Relaxation Techniques

www.pain.com

"SECOND LANGUAGE"

Annie - email: idenco@total.net
French

Ute - email: missfits@t-online.de
German

~MENDO~ Men and Endometriosis ..... Version en Espaņol

Ilan and Adriana's Endo Site in Portuguese

Since March 13, 1998