Ellen Miracle - 09/26/00 19:56:09
My Email:ellenmiracle@hotmail.com
Disease/Disorder: fibromyalgia/arthritis
Length of illness: 3 years
City/State: Frankfort, KY
Age: 56
Interested 2nd Trial: Yes
L Portwood - 11/24/00 15:43:55
My Email:leslierae58@hotmail.com
Disease/Disorder: fms
Length of illness: 3 yrs.
City/State: Bellef. Ohio
Age: 42
Comments:
Ellen Miracle - 09/26/00 19:56:09
My Email:ellenmiracle@hotmail.com
Disease/Disorder: fibromyalgia/arthritis
Length of illness: 3 years
City/State: Frankfort, KY
Age: 56
Interested 2nd Trial: Yes
Comments:
debbie - 05/27/00 02:45:01
My Email:dsw2042@yahoo.com
Disease/Disorder: FMS
Length of illness: app. 4 years
City/State: Greensburg, IN
Age: 47
Sex: female
Interested 2nd Trial: yes
Comments:
I'm just sick and tired of being sick and tired.Sometimes I hurt in every inch of my body and the fatigue at times is more tha I can stand.
Just wnat a treatment that last or better yet a cure, real soon.
Debbie
TJ Bower - 03/27/00 05:45:30
My URL:See text commentary below...
My Email:thefugue@modempool.com
Disease/Disorder: Systemic lupus
Length of illness: approx. 18+ years
City/State: Jackson/MI
Age: 30
Interested 2nd Trial: Yes
Comments:
I have been treated abusively and traumatically, by strangers, my family, and even medical professionals (who you'd think would know better), because of their failure to understand my condition-- I am dangerously hyper-photo-allergic (yes, it affects my
hole body, not just my eyes), so please understand that I cannot go out during the day, without HEAVY-DUTY protection. (I am saving up the cash, for a "sunsuit," now. Sunblock and wearing long-sleeved clothes, does practically NOTHING for me... and most
people (again, even medical professional) do not seem willing, to truly help me. I am allergic to various foods and medications as well.)
I'm sick of people empathizing, but not doing much more. If you really care, then HELP ME! (I don't care how, just as long as it's REAL help, instead of shaming, buck-passing, and/or blamethrowing.) God knows, I've sure done enough, to help myself. (I
ve become an "amateur wholistic naturopath," as a result of conetional medicine's failure to properly assist me. I've gotten encouraging results, but not enough that I can go out in the Sun-- For that, it would take yet another miracle (although I am fo
lowing leads now, as we speak).)
I am the head of the Michigan Chapter of the HED (& Related Disorders) Foundation, for those of you who are interested. My webpage, isn't up yet, but the main HED page, is:
http://www.hedfoundation.org
Thank you. I hope this mailing list, will help us all. I'm praying for you.
Sandi Iannaccone - 03/21/00 18:38:33
My URL:http://http://www.geocities.com/HotSprings/Spa/9547/addbook.html
My Email:jjsn@cetlink.net
Disease/Disorder: Fibromyalgia, RSD, chronic nerve pain
Length of illness: 5 years
City/State: York, SC
Age: 35
Sex: Female
Interested 2nd Trial: YES !!!
Comments:
I started with bilateral Carpal Tunnel, which after four surgeries became worse. Then dx with RSD. Five nerve blocks later still no releif. Then dx with chronic nerve pain, and then fibromyalgia. The pain started in my hands and has now spread up the arms
to the neck and head and now it's also in my legs and feet.
I think I have taken every pill out there. Was up to 900mgs a day of morphine and also on the duragesic patch. The narcotics helped with the pain but I was unable to function due to the side effects.
I am now off all medicines, and I am willing to do anything to get back the life I used to know before pain. Desperate mother of 2!
God bless you !
Natasha Coker - 03/20/00 01:59:43
My Email:n_coker@hotmail.com
Disease/Disorder: Fibromyalgia
Length of illness: 1-2 years
City/State: English, IN
Age: 15
Sex: Female
Interested 2nd Trial: Yes
Comments:
I have been to many doctors trying to find the source of my constant, searing pain. I went to a pediatric rheumatologist and he diagnosed me with fibromyalgia. It has made my once simple world a world of frustration. Some days I can barely walk and kee
up at school. It is frustrating to all who know me. I have been a cheerleader for 7 years. Now, I can barely move. If I can get treatment, I think that I can deal with this. Otherwise, my goals will never be met because I will be bed-ridden. I need
a treatment plan that works, and I would be more than happy to contribute to medicine by volunteering myself for trials.
M. Cass - 03/15/00 01:22:51
My Email:m-cass@usa.net
Disease/Disorder: Fibromyalgia
Length of illness: 3-4 years
City/State: London, KY
Age: 45
Interested 2nd Trial: Yes
Comments:
I have been living with constant pain and fatigue, as well as almost daily headaches, for several years. It has become increasingly difficult to carry on with the necessities of day-to-day life.
Approximately two years ago I had to leave my job that I had worked at for approximately l8 years. I would like any information available that may offer some hope for this condition.
Vicki Fassett - 03/09/00 17:26:34
My Email:goofyrn1@msn.com
Disease/Disorder: FMS/Mps
Length of illness: 11yrs
City/State: orange, CA,
Age: 42
Sex: female
Interested 2nd Trial: yes!
Comments:
Kara Townsend - 06/28/98 04:37:37
My URL:http://www.dynamicSex.com
My Email:dwebmistress@yahoo.com
Comments:
Hi! I saw your site and thought it was great. I know how difficult it is to keep a quality site. Good Job! Let me know if you want to exchange links :) 
Roxie - 05/08/98 20:30:56
My URL:http://www.geocities.com/Heartland/Pointe/2993
My Email:RoxieKim@aol.com
Disease/Disorder: Fibromyalgia/CFS
Length of illness: CFS 10/FM 3
City/State: Bradenton, Florida
Age: 37
Sex: Female
Interested 2nd Trial: YES
Comments:
I have had FM for 3 years now, following an auto accident. I have tried conservative medications,
Herbs and vitamins, and then stronger drugs. My body reacts to everything in a negative way. I will at this point be willing to try anything to get some relief. I am very grateful for all the support of my friends here on the internet.
Connie Ransome - 05/08/98 12:38:32
My Email:cransome@awod.com
Disease/Disorder: FM/Lupus
City/State: SC
Sex: Female
Interested 2nd Trial: yes
Comments:
Please send me information....
Robert J. Kowal - 04/23/98 00:03:34
My URL:http://www.angelfire.com/oh/jmyoda
My Email:jmyoda@bigfoot.com
Disease/Disorder: FMS, CFIDS and Vasil Vagel (not sure on the spelling)
Length of illness: 9 1/2 years
City/State: Bono, OH
Age: 22
Interested 2nd Trial: Yes
Comments:
This illness has put me through hell and ruined my life since I was thirteen years old. I've been to countless doctors and have found almost no help and very little understanding(except for the emotional support of my parents). I would give anything or tr
anything to relieve all the pain and suffering I go through everyday that keeps preventing me from doing even the most simplest of things. I just want some kind of relief so I can start my life. -Rob
Linda Nickel - 04/10/98 18:16:51
My Email:Lyn37@hotmail.com
Disease/Disorder: Cfs/Fms
Length of illness: 8 - 12 yrs
City/State: Tucson, Arizona
Age: 27
Sex: Female
Interested 2nd Trial: YES YES YES YES
Comments:
Please contact me a/s/a/p about getting started !!
email: Lyn37@hotmail.com
or
phone 520-577-3614
Wendy Watson - 04/10/98 17:04:42
My Email:skytop@email.msn.com
Disease/Disorder: Fibromyalgia,Depression, Anxiety,Fatigue
Length of illness: 7 years
City/State: Sebastopol,CA.
Age: 34
Sex: Female
Interested 2nd Trial: yes
Comments:
I ready to get on with my life. Suffering day in and day out is not my idea of fun. We Fibromites are more than ready to get on with living. This is a debilitating Syndrom even if you can't see it from the outside. I have a 9 year old daughter I am ea
er to be with in more ways that I am able know. Like coaching soccer,etc. I want to get back to work and presently cannot because of overwhelming pain. It's time! It's a struggle just to be alive. If you can change that for us, we are eager to try ju
t about anything!
Sandi Shoap - 04/10/98 01:10:07
My Email:believe@iline.com
Disease/Disorder: FMS/MPS, Depression, Anxiety
Length of illness: 2 1/2 yrs.
City/State: Cape Coral, Fl.
Age: 47
Sex: Female
Interested 2nd Trial: Yes
Comments:
Kathy Struewing - 04/09/98 23:53:52
My Email:Kathystrue@aol.com
Disease/Disorder: Fibromyalgia
Length of illness: years
City/State: yellow springs Oh
Age: 43
Interested 2nd Trial: yes
Comments:
Anne Morris - 04/09/98 23:36:40
My URL:http://netopia.geocities.com/powerplant
My Email:car53@total.net
Disease/Disorder: FMS
Length of illness: 5 yrs
City/State: Montreal
Age: 47
Sex: Female
Interested 2nd Trial: YES, YES, YES
Comments:
I am tired of this, I want to be normal again. I have a 1 year old grandson and I can't even babysit him. I am missing out on life. Please, let me help myself and others.
cherie - 04/09/98 20:59:42
My Email:bandycher@rocketmail.com
Disease/Disorder: fms
Length of illness: 15yrs+
Age: 40
Interested 2nd Trial: yes
Comments:
Mary Ann - 04/09/98 18:41:21
My Email:macgolf@netins.net
Disease/Disorder: fibromyalgia
Length of illness: 15 years
City/State: Newton
Age: 49
Sex: female
Interested 2nd Trial: yes
Comments:
what can I say but HELP!!!! :-)
Lynne Gucwa - 04/09/98 15:51:18
My Email:lag@hdtinfo.com
Disease/Disorder: Fibromyalgia
Length of illness: 10+ years
City/State: Michigan
Age: 55
Sex: female
Interested 2nd Trial: YES
Comments:
I am interested in trying to help others with this condition. I am looking for a cure some day soon, I hope. If not a cure, then to lead a much better lifestyle than I am now. I want to help all I can with fibromyalgia, possibly help them in ways that I
on't even know of right now. I am willing to do most anything to help in the testing of fibromyalgia.
Paula Krannawitter - 04/08/98 05:37:25
My Email:PaulettK@media-net.net
Disease/Disorder: FMS/MPS Hypothyroidism, DDD
Length of illness: 15 years+
City/State: Kansas
Age: 51
Sex: Female
Interested 2nd Trial: yes
Comments:
This study sounds interesting and I'm anxious to find out exactly what will take place. Will check back soon to learn of the details.
Jody Hoag - 04/08/98 02:28:25
My Email:rhoag@prodigy.net
Disease/Disorder: FM/celiac sprue
Length of illness: 3 yrs& 20 years
City/State: Eugene,Oregon
Age: 48
Sex: female
Interested 2nd Trial: ok
Comments:
Lee Smith - 04/08/98 00:29:32
My Email:sfamily@greene.xtn.net
Disease/Disorder: Fibromyalgia
Length of illness: 4 years
City/State: Tennessee
Age: 41
Sex: Female
Interested 2nd Trial: yes
Comments:
I would like to do my part to help others with fm
J. Jipson - 04/07/98 12:54:49
My Email:cyber_1@hotmail.com
Disease/Disorder: ADD
City/State: Maine
Age: 20
Sex: Male
Interested 2nd Trial: No
Comments:
I Have been talking with many FMers for a few years now and this sounds promising and hope that it becomes available soon.
Gail Merrill - 04/06/98 00:01:48
My URL:http://www.geocites.com/Heartland/Acres/8208
My Email:jgmerrill@mix-net.net
Disease/Disorder: Fibromyalgia/Raynauds
Length of illness: 3 years
City/State: Maine
Age: 28
Sex: Female
Interested 2nd Trial: yes
Comments:
I cant wait for this to be released to the public. So many are waiting for relief. I hope it comes soon.
Deborah Brown - 04/05/98 05:36:15
My Email:debbrown@nckcn.com
Disease/Disorder: FMS/Intermittant Cerebelar Dysfunction
Length of illness: 5 Years
City/State: Kansas
Age: 40
Sex: female
Interested 2nd Trial: Yes
Comments: