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When you subscribe, you will receive an introductory note containing more information as well as useful commands.
Please note that the "REVIEW" command, which returns the network address and name of all the subscribers is turned off for security reasons.
More information on LISTSERV commands can be found in the LISTSERV reference card, which you can retrieve by sending an "INFO REFCARD" command to listserv@lists.missouri.edu
Dear New HYCEPH-L Subscriber,
Your subscription to list HYCEPH-L (HYCEPH-L - hydrocephalus information and support lisst) has been accepted.
Welcome to HYCEPH-L!
This mailing list is for people with hydrocephalus, their friends and family members, health care professionals and anyone else with an interest in the condition. The purpose of the list is to share information and support in dealing with hydrocephalus. Keep the information below for future reference. It contains commands you may find useful. A good way to start is to send a message to the list introducing yourself. The list address is found below.
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As list manager I see my role as related to technical responsibility for maintaining the list as well as assistance for people with questions related to using the list e.g. how to send a message to the list. It is my hope that responsibility for the functions and roles which contribute to the smooth running of a discussion will be shared by all list members e.g. indicating where resources can be found, providing encouragement, sharing information. Any discussion invariably runs into differences of opinion and this is good. Different points of view on an issue promote greater understanding and more informed decision making. However, treating the comments of others with the respect we all desire is paramount. Flaming and put-downs are unacceptable.
If you are new to the list please send a note to the list introducing yourself. You might indicate topics of interest to you and experiences you have had. Your comments will add to the discussion, particularly if you relate them to what someone else has said. Questions can generate a number of direct responses which may help you feel more at home on the list. It might help to view the list as a physical space rather than cyberspace. Imagine a room with comfortable overstuffed chairs where the coffee is perpetually ready and there is always a friendly person who immediately understands your situation and is looking for conversation. Pull up a chair. We are all very pleased that you have come to join us.
Below you will find a disclaimer, a few policy issues and some commands that will be helpful in using mailing list software. Please take some time now to read them. This message is one that you should save for future reference.
DISCLAIMER
HYCEPH-L is intended to provide information for people experiencing hydrocephalus. In the spirit of open information sharing any subscriber may post messages to HYCEPH-L. Information posted to HYCEPH-L and its files may or may not be accurate or medically appropriate for any particular situation. The files and posts to HYCEPH-L including those of any guest speakers, doctors or other health care providers should not be regarded as rendering medical advice or other professional services. The posts and associated files for HYCEPH-L are not a substitutes for readers securing their own medical advice or other professional services. Readers who suspect or have health problems are strongly urged to consult their own health care providers before acting on any HYCEPH-L information.
Readers should be aware that in some areas of the Internet role playing and the assumption of alternative identities are an accepted part of behaviour. While this behaviour is not an accepted, encouraged or condoned part of HYCEPH-L the listowner does not verify the identity of any poster to HYCEPH-L including guest speakers. The mention of services, resources, references or products in messages or associated files for HYCEPH-L does not constitute verification or endorsement.
SOME POLICY ISSUES
Questionnaire and Survey Requests
Online information is public in nature and we are concerned with keeping the personal information we share with each other out of the wrong hands. Some requests for surveys that we receive are for good educational causes, and will truly benefit others and should be granted. Others we have received have not been clearly documented as how the information will be used and ultimately what is the end purpose of the request. It is because of the latter requests that we have discussed the following changes to the HYCEPH-L list policy.
All questionnaire and survey requests must be cleared through the Administrative
Committee. A cover letter must accompany a copy of the survey questions
that details:
1. Who is conducting the survey?
2. If it is for a project, term paper, thesis, etc., which school is
involved?
3. What is the end purpose or goals of the survey or project?
4. The name and e-mail address of the mentor, over-seer of the project.
5. How will the identity of respondents be protected when results are
discussed, written up, published etc. and whether HYCEPH-L will be mentioned
by name (identifies where the information came from and the information
and identities can therefore be found by others).
6. Professionals and college and university students need to state
whether their research has been through an ethical review process.
7. Elementary and high school papers will be handled on an individual
basis and would be viewed as opportunities to educate other children and
teens about hydro.
If the request is approved, the survey request will be presented to the list with an e-mail address for the person conducting the survey. Any correspondance between the surveyor and respondees will be kept off of the general list. All participation in surveys presented will be at the discretion each listmember.
Survey requests shall be mailed directly to the list owners at hyceph-l-request@lists.missouri.edu
Private vs. Public Messages
Suggestions for private mail include: "thank yous", "welcomes", "me toos". Other instances of private mail are direct requests for a listmember for more information that is of individual interest to you. Any questions that will benefit the entire list or will open up points of discussion are appropriate for public messages. Contributions do not have to be information oriented. Personal experiences are appreciated and welcomed!
Balance
There would also seem to be a need for balance between enough friendly conversation to establish a feeling of community and provide support while at the same time keeping the conversation focused on subjects of interest and adding something new or building on the conversation.
When replying to a message on HYCEPH-L it is most easily done with the reply function in e-mail. This is the time to consider whether your message should go publicly to the list or privately to the individual.
In order to send a message publicly use
the reply function of your mail program. To send a message privately when
you use the reply function of your mail program you must change the address
to the personal e-mail address of the individual to whom you are replying
(see the "From:" part of the mail header in the message). Personal e-mail
addresses are found in the "From" part of the header of the message.
Disturbing Content
From time to time ( it doesn't happen often) subscribers submit messages that may be disturbing to some people. An example might be a message about the death of a person with hydrocephalus. These kind of messages are desired by some and upsetting for others. If you think that the content of your messages could be upsetting for some subscribers please flag it so that people may delete without reading. E.g.
Subject: Hydrocephalus related death
In the first sentence explain that the message may be upsetting. E.g
You may wish to delete the following message without reading if discussions
related to death and hydrocephalus are upsetting for you.
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HOW TO POST A MESSAGE TO HYCEPH-L MEMBER LIST:
Send mail message to the HYCEPH-L member list to the following address:
When you post a message please be careful to note the subject of your post in the subject line. This will allow people to be able to chose the posts they are interested in by reading the subject line. At the end of your post it is beneficial to sign the mail with your name and e-mail address, for example:
Don Cook - doncook@navix.net
Some HYCEPH-L subscribers have mail headers which do not display the origin of the note.
You are now ready to begin communicating with us. More commands follow but they are not essential for interacting with list members.
HOW TO INTERACT WITH THE LISTSERVER:
You can ask the listserver (the computer that operates the list) to
mail files to you, to set your mail options, and to request information.
To interact with the listserver computer, you want to send mail to
the LISTSERVER, not to everyone on HYCEPH-L.
Send a mail message to: listserv@lists.missouri.edu
and in the body of the note, use any of the following commands:
NOTE: Do not include the explanatory comments in ( ) below.
SUBscribe HYCEPH-L Yourfirstname Yourlastname (Join the list)
UNSUBscribe HYCEPH-L (Leave the list. Your name is not required)
SET HYCEPH-L REPRO (You get a copy of your own mail to HYCEPH-L)
SET HYCEPH-L NOREPro (Set it back to NOT getting a copy of your own
mail)
SET HYCEPH-L DIGests (You get the day's mail in one large note with a table of contents, rather than note by note. A good option if you do not like dealing with large quantities of incoming mail.)
SET HYCEPH-L INDex (You get a list of subject lines once daily along with instructions on how to retrieve the messages that interest you.)
SET HYCEPH-L NOMAIL (Temporarily stop getting mail from HYCEPH-L. You are still subscribed. Useful when going on vacation.)
SET HYCEPH-L MAIL (Start your HYCEPH-L mail coming again after it has been set to NOMAIL, or if your mail option is set to DIGests or INDex, start your mail coming note by note again)
INDex HYCEPH-L (Get a list of files you can retrieve from the HYCEPH-L listserver)
GET HYCEPH-L filename (Get a file from the HYCEPH-L listserver)
Query HYCEPH-L (Review your optional settings on HYCEPH-L)
HELP (Get a brief summary of listserv commands)
INFO REFCARD (Get more information on listserv commands)
ABOUT ARCHIVES:
All contributions to HYCEPH-L are automatically archived.
So for example, if files were archived starting in January 1996
These monthly files are named:
HYCEPH-L LOG9601
HYCEPH-L LOG9602
etc.
Request the INDEX from the server to get the complete list. You
can get these archive files by requesting the log file you want.
As example, to have the January and February 1996 logfiles sent
to you, send a message to the LISTSERVER and in the body of the
note, say:
GET HYCEPH-L LOG9601
GET HYCEPH-L LOG9602
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To communicate with the list manager, send mail to:
hyceph-l-request@lists.missouri.edu
Revised Setember 2002 to reflect the move to lists.missouri.edu.
