Wishing for a cure for Multiple Sclerosis

Now what is written here is not to scare anyone nor do I want pity just want to let you know how it has been for me. No two people with MS is the same so here is the story about me.

I was diagnosed with Multiple Scelerosis in 1996. Was told in 95 that I possibly had MS but I got better and it was forgotten about, then about 9 months later well it all started again. It started both times with pain in my lower back, I was bent over real bad and could hardly walk. A friend of mine seen me doubled over and she stopped to ask what was wrong with me that I looked like a old lady all humped over, well now that was odd for I had not ever relized that I was so humped over but with all the pain I was in guess that was for it.

Sometimes I have pain in my hands and oh it hurts so bad it is hard for me to do anything with my hands. I also can't even write,type and to crochet well I only hope that it never takes over for any longer than it has in the past. It has lasted for up to two weeks at a time when it acts up. Haven't talked to the doctor yet about this but plan to when I see my pain management doctor and Neuro and get their advice on it. I did once ask a therapist about it and all he told me was to keep using my hands no matter what and that typing was good exercise for my hands. Though there are days I think no way I do just think of that therapist and grin and bare it.

Well I finally got into see a real good doctor for my pain. It is in a pain management at a local hospital here. Now I will tell you some of the treatments hurt real bad but at least it gives me some relief. I have had trigger point injections, SI injections. The trigger point I usually get at least 6 shots each time about once a month. If these shots didn't help I sure wouldn't go through it for nothing in this world.

I have had numbness, fatigue,memory problems, trouble writing, speach problems and even contineunce problems. MS sure can play havoc to people. We do not know from one day to the next let alone from month to month how we are going to feel. My favorite saying is "Take one day at a time".

This is my new wheels just got it the week of February 4th 2002, after waiting 5 months sure was glad to get it. It sure has been a lot of help this last couple of weeks. Think her name is going to be "CHERRY BOMB" at least that is what I have come up with so far. My MS has flared up an am not walking so good. Am having alot of pain in my spine . That is about all the newest with me at this time. Let me know how you like my new wheels!!!! If you want click on the picture of my new wheels and take a look at the site that sales them online. There is alot more stuff there also.

If you want you can contact me on the yahoo messenger if I am online.

Here is some links to some really informational site on Multiple Sclerosis. Hope you check out some more on MS.

MSWATCH.

Jooly's Joint.

Doctors Guide.

MSers online website.

This is a gift from another lady with MS that belongs to a newsletter group that I belong to called MSers online.

This is a gift from Jo for signing a guestbook.

You can click on either of the two above graphics and go check out Jo's website, I am sure you will enjoy her site and besure to let her know you were there by signing her guestbook.

I love meeting others with this disease to learn more about it. Some things are scarry but one never knows how much this disease will effect them some have many problems with MS others you would never know they have the monster.

This award was given by Wm. C. Gowacki. Thanks Bill.

If you would like to visit some of my other pages to check out my family just click on the link below.

Index page.

I just went to the eye specialist and he says all is great. I had a question about my eyes getting black like when one has been in a fight his reason for it was there is no medical reason for it. Then a few days later I go to my neuroligist and he says yes there is a reason for it something to do with the vascular what ever that means. I am doing some research to check this out. If anyone that visits my web page that knows anything on this or has had the same problem please email me. I am very interested to know more on this. My eyes get blurry and are painful I have trouble with alot of light so I keep my house dark, also have had some double vision. These times when this all happens I am not able to be on the computer nor able to read. Thanks alot.

Last updated on 08/16/2001

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Please sign my guestbook and let me know what you think of my website. Thanks Amanda

Sign My Guestbook View My Guestbook

Click on the above graphic and vote for my site.

Thanks Kathy.

Thanks for all that voted for my site. I can't belive that I won this I am so excited.

Here is another award one for September. Thanks again for all you that voted for my site.

Disabilities WebRing This site is owned by Amanda Daniels
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The music your listening to is "Lean on Me", I feel this is a great song for people with MS for we all need someone to lean on and are always there for others to lean on when times are bad. Hope you enjoy this as much as I do.